tom replied to the topic Blood tests in the forum Treatment 13 years, 6 months ago
Hi Andy
Do you know am sure I replied to this once??? hell I bet its gone on another post Lol
So Again am pleased your test were goodand if you need to take Banana's and a few pills that aint too bad is it (love banana's I do)
Good Luck with your BMB and Zometa I have just finished my Zometa treatment.
I am with you Andy to beat that…[Read more]
tom replied to the topic Hello to All in the forum Newcomers 13 years, 6 months ago
Hi Jacqui
I hope your still doing good, and trust me the crying is good for you it has been for me over the years (best in shower for the crying) but to be fair I think am all cried out 😐 am now the "Onwards and Upwards"
Love and Hugs
Tom "Onwards and Upwards" xxxx
tom replied to the topic 18months later in the forum End of Life and Grief 13 years, 6 months ago
Hi Roz
I am pleased you are doing good and yes i bet its hard work to be on your own 24/7 but i think it was Min who said open up your life make your life larger/bigger and your loss will seem smaller although your loss is still the same it feels smaller as your world gets larger. (well i think that how it went?)
Say Hi and Thank your two…[Read more]
tom replied to the topic Rev Failure Mk II? in the forum Treatment 13 years, 6 months ago
Dai you my friend are one that I know will crack it you are the one that will push your dr and consultants into your way of thinking unless they prove to you that what they want for you is better for you, you are no one's fool we can all see that, so good luck with it all.
And Mari I found this on You Tube…[Read more]
tom replied to the topic I love My Mum gone but never forgotten x in the forum General 13 years, 6 months ago
Hi Michelle
I hope all goes well on thursday, our thoughts and love are with you and your Family.
Love and Hugs
Tom and Elaine xxxx
tom replied to the topic A Step in the right direction in the forum Treatment 13 years, 6 months ago
Way To Go That Tina, well done girl now you keep it up the fight i mean and your pp down 😎
And Gill you my girl can moan all you want cos thats whayt we are here for 🙂
Love and Hugs to you all
Tom "Onwards and Upwards" xxx
tom replied to the topic Two years tomorrow….. in the forum General 13 years, 6 months ago
Hi Nicki
Its not a problem but you know we are here for (and I hope you dont need it)you both when you feel you need it.
Tell Sam not to worry too much about the tests as I am three years and four months or their abouts 🙂 and am still going strong 🙂
The green tea I did not read about that but googled it today and am going to get some…[Read more]
tom replied to the topic SCT Underway in the forum Treatment 13 years, 6 months ago
Hi Eve and Slim
Yep the smell is different am pleased Slim is doing good, I was given Anti Sickness pills when i had my transplant and was on them for about two months after.
I hope you get to Matty's Memorial Service and as for the wicked sense of humour I know where that comes from 😀
And Eve dont talk about the "Runs" just yet I…[Read more]
eve started the topic SCT Underway. in the forum Treatment 13 years, 6 months ago
Hi Everyone
Slim had harvest back last night and is doing fine,sick a few times plus hard to keep tablets down,very tired but much better than I expected,nurse has arranged a pump if he continues to be sick,plus having lots of fluids through drip. It,s the smell thar is getting to me I think it,s put me off sweetcorn for life.
I am very…[Read more]
eve replied to the topic Just back from Skiathos in the forum General 13 years, 6 months ago
Hi Jo
Glad to see things are going well for you,sounds if you had a lovely time.
Better get planning another holiday as you have another 2 months clear.Love Eve
jmsmyth started the topic starting treatment. in the forum Treatment 13 years, 6 months ago
Hi All
We were at the consultant this morning and I was feeling great when doctor told us white cell, Haemoglobin, Neutrofills were up, protein dropped from 28 to 23, Calcium normal, kidney function normal. We asked about CAT scan results. Frank has complained about this pain in his ribs for 14 months and got the scan 4 weeks ago. Doctor told…[Read more]
tom replied to the topic 18months later in the forum End of Life and Grief 13 years, 6 months ago
Hi Roz
Well we have moved on aint we girl 🙂 and thats Good to read 😀 reading about your help do you now have some one working 16 hours and another working 24 ? well done you if you need it and its working keep on with it 🙂
And you are doing wonders 😀 but am sad you thought about suicide 🙁 am sure you are stronger than that and…[Read more]
jmsmyth replied to the topic Revlimid Failed in the forum Treatment 13 years, 6 months ago
Dear Gill
I am so very sorry to read about Stephen and hope that there is something out there that can help him. My love prayers and hugs go to you both.
Love Jean xx
jmsmyth replied to the topic Just back from Skiathos in the forum General 13 years, 6 months ago
Hi Jo
Welcome back from me too. Glad you had a great time and I'm over the moon about your results. Long may it continue. We are off to consultant tomorrow. Dreading it as usual. With a bit of luck we will get the results of the scan that was done 4 weeks ago!!
Take care
Love jean xx
tom replied to the topic Revlimid Failed in the forum Treatment 13 years, 6 months ago
Hi Gill and Stephen
There should be a few swear words in here but i will refrain from them (I hope)
I am sorry to read about it failing its a bloomin nightmare all this MM.
I do hope something can be done to throw the blooming MM into remission or slows it down a bit till something has been brought to the forefront.
Stay Strong and…[Read more]
tom replied to the topic Just back from Skiathos in the forum General 13 years, 6 months ago
Hi Jo
And a warm welcome home (but the weather is not as hot as Skiathos though)
And you are one "Onwards and Upwards" young Lady having good reading's 😎
Enjoy the two months of no hospital its great when you are going longer with no Hospital visit's 😎 but am not sure about giving myself injection's?? but hey ho if I had to am sure i…[Read more]
tom replied to the topic Latest blood test in the forum Treatment 13 years, 6 months ago
Hi Andy
Well only posted once so far Lol.
Great news on your Bloods and if it means you eat more banana well thats great.
Good Luck on your BMB am sure it will be Spot on, and am up for throwing this MM into submission 😎
Keep strong and fit
Tom "Onwards and Upwards" x
eve replied to the topic The next step in the forum Treatment 13 years, 6 months ago
Hi Mari
Slims on Waddington,had to change wards as beds have to be seen to be filled with bodies all about filling beds these days,after 3 hour journey made him sit round for 2hours,as you can imagine I lost the plot a little bit,it worked,next day was moved to have chemo,only given half does as kidney function not good,after not having much…[Read more]
eve replied to the topic Revlimid Failed in the forum Treatment 13 years, 6 months ago
Hi Gill So sorry about the news,can understand how angry you must both feel, Slim says if this SCT does not work he will not have any more as 6 months not being able to travel abroad and no guarantees it will work is a lot out of life,We are travelling to NZ once this is…[Read more]
jmsmyth replied to the topic 18months later in the forum End of Life and Grief 13 years, 6 months ago
Good to hear from you Roz. As Gill says it does sound that you are moving on. Glad about that. See some of your posts on FB. take. care
Jean x