Hi Pete

Well you know how good we are and how good YOUR Forum is, so use it and us for advice to have a moan and or a winge as am sure that you and Ann will want to use it to the max, dont worry about saying/asking a Q you think might be silly (av done it loads and loads Lol)

Good Luck for Tues as for Full X Ray I had no bone damage? hoping…[Read more]

Hi Stuart its not a problem we can cope with it till its sorted 😀 so many thanks to you and the rest of the team on doing a great job.

Tom

Way to go that young lady Well done Wendy am well chuffed for you.

Its great to read about some one getting good results and i know its just great to be told they are good 😎
Enjoy the next three months and put this MM out of your mind 😎

Love from One "Onwards and Upwards" MM Person to another 😀

Love Tom xxxx

Hi Sally

A Warm welcome to the site 😀

Sorry to hear you are back into MM and need more treatment.

I am not on any treatment I had my SCT in dec 09 but am sure people in the group are on the same as you and will pop in and give you advice.

Keep Strong am sure you will soon kick the MM back 😎

Love
Tom "Onwards and Upwards"…

Hi Tina

Good Luck on the CDT I started my CDT in Feb 2009 and had 5 cycles then onto my SCT in December 2009 😀

Now My CDT well I was tired and week lost weight and taste buds were not working 🙁 think I had to go on sick on my end of my 3rd cycle (just too tired) so I will tell you listen to your body when you feel tired sleep and when…[Read more]

Hi Ron and Christine

Sorry to read Christine is not too well 🙁

As For me I had CDT for 5 cycles (28 day cycles) then onto stem cell transplant, I also had Zometa for about 2 years post SCT

What treatment is booked for Christine now?? the CDT has finished? as for the Kidneys am not sure if the can heal themselves??

Love

Tom…[Read more]

Hi Gillian

As for me after SCT I had the same as Eva and to be fair I dont like to go too far from the loo after eating 🙁 no pain though am pleased to say.

Good luck

Love Tom "Onwards and Upwards" xxx

My picture is huge and I use Safari

Jean

Your More than welcome Ann, and I think we all know how you and Pete feel at this moment, and I had gone onto some other sites before finding the good ones 🙂 so it was scary but a relief when I found these good folk 🙂 dont forget ask away 🙂

Love
Tom "Onwards and upwards" xx

Hi Ann

Welcome to the site. This is the place to rant, ask advice or just to talk. I know what you mean about hubby not going on site. My husband Frank was diagnosed in 2006 – not on treatment yet, but going for CAT scan and retake of bloods tomorrow. I cannot get him to go on forum. I give him info that I have gotten from friends on here but…[Read more]

Hi Ann

A warm welcome to the forum.

Use these threads as your sounding board and ask manything you feel you need to know nothing is too sill a question so if you feel it ask it.
David is correct MM is an Individual Illness.

What Hospital will Hubby be having his treatment as I find it good if you know someone else is or had treatment in…[Read more]

Hi Trish and peter

Your welcome, I also had Zometa every four weeks for two years post SCT. struggle to find a vien near the end though Lol.

All the best

Tom "Onwards and Upwards" xx

Hi Trish

Well I had same in 2009 and I am in remission (well thats what am told) and have been since before my SCT it was the CDT that put me into remission.

Good Luck on Hubby's treatment and recovery.

Tom "Onwards and Upwards" xx

Hi Stan

Sorry to hear about your Partner is going through a rough patch.

I think its all been said above just want to say welcome and Good Luck to you Both and soon get a reason for the pain.

Tom "Onwards and Upwards"

Hi Phill

My husband (also SMM) went for a session of physiotherapy at Belfast city Hospital (recommended by consultant). He was in agony – he said that he felt that he had been electrocuted. The only relief that he got was with a Chinese doctor who researched Myeloma and then carried out treatment which included accupuncture. He swore by it.…[Read more]

Hello Stan

Welcome,I can well understand your concerns,have you mentioned to the doctor the MM history?

Some Myeloma,s do not give any indication in the blood,there are number of different Myeloma,s and the correct blood test plus urine test have to be done. This will indicate if myeloma is possible,the only positive test is a bmb,if they…[Read more]

Hi Tracey

Just quick reply as doing this on I pad in hospital

Slim takes Amitriptyine 10m to help him sleep they have just upped his dose to 25m because they also use this for PN as this is used for PN might be worth asking you doctor. Eve

Hi Duncan, Yes you are in the right place, if you ring Ellen she will be able to tell you about it plus send you booklets. There are a few people on here with Amyloids so I am sure they will reply when they see your post. I believe there are only about 600 cases a year and Royal Free is the…[Read more]

and I am on Tom Lappin and photo of my young bride and I 🙂 xxxx

Hi charlielouise?s

A warm Welcome to the site. and am sorry you had to join, but we have some great folk on here to help and give advice.so any thing you need to know just ask and more so if you feel you need to vent your stress or anger at times here is the best place 😀

Good Luck on the MM road.

Love to you Both

Tom "Onwards and…[Read more]