Hi Teresa
I had problems posting that picture,I tried one of Slim and me sitting together,and just got his ear and mine,resorted to dog as only picture i could fit in,there are instructions on how to do it at the start,the web team will help you,you can contact them by E Mail,or someone reading this might come on board with a solution.
I get…[Read more]

Hi Andy
my local hospital is Canterbury which is 15 miles away,but the nearest hospital for SCT is kings in London. That is were the problem lies for most people on the SE Coast,but as I said my daughter lives nr Sevenoaks,so Camping on her drive,I wonder how much she will charge me:-/

I do not know if its any help,Slim had low potassium ,and…[Read more]

Hi Lynda

Good to hear things are OK with Pete,I think we all feel the same,just want a result and an ending,but it is early days for Pete.

I know he will have to go the hospital more,but if it works!!!!is Pete having sub cut or infusion???,Slim had to go,for blood test morning then infusion afternoon,the actual injection takes all of 3…[Read more]

Hi Jo
Do not know Skaithos is it mainland or a Greek island,only been to the mainland once,we have always said we would do Cyprus with Motor Home,alas one of the many things on are list:-(
Just so pleased for you,after the scare of you might be needing treatment again,make the most of it.8-)Love Eve

Hi Eve
I take my DEX just after breakfast – not that it makes much difference because some nights I'm wide awake and others I crash out. Today I was like a zombie all day just wanted to lie on the sofa with my eyes closed! Now I'm in bed I'm wide awake 🙁 Hopefully as soon as I put my phone down I'll nod off.
Tomorrow is blood test day – with…[Read more]

Jean, thanks for the reply, nice to have support from folk who are going through the same difficulties. wish you the best of luck for Thursday, be positive,Tony

hi Ted, first day with the tablets, I think it was 34 early this morning and one this evening. Less tomorrow. Touch wood , no side effects, I took my dog for a 1 1/2 hour walk in the country this morning, admit to falling asleep in the chair during the 10 oclock news, but thats nothing new. thanks for explaining smoldering myeloma, I hope you just…[Read more]

Hi Ted
Frank has been nearly 6 years SMM. going on Thursday to see consultant on Thursday and I'm dreading it. Feel like "we have got away wiih it for such a long time". Just pray God is good and Frank is still stable. My best wishes to you Ted and a welcome to you Tony you are in the best pace for support

Love Jean xx

Hi Wendy

Yep when you get MM you are never the same but you look like your Immune system is fighting it so thats good, as for me mine has been a cough and chest infections by the bucket load :-S but I fight it so am happy 😎

Hope your soon better Wenday

Love
Tom "OInwards and Upwards" xx

Hi Lynn and pete

Ye its a bugger when the MM tells us what to do or not to do :-/ am sure Pete's "Bring it On" tude is going to stand you both in good stead 😎 I hope the iccl beggers are soon moved and SCT is sooner than you think 😀

Love and Hugs

Tom "Onwards and Upwards" (hope it made you smile again 😎 ) xxx

Thanks for the reply and the welcome to the group, thought I was alone out there for a while, so appreciate the contact

Thanks for the welcome and the reply, I have found the whole site interesting, no doubt will be using it a lot in the future

Thank you, I intend to keep strong, guess there will be days when I am down
appreciate any advice.

Thank you for the advice, it sounds sensible and positive.

Thanks for the welcome, why is there no treatment for smoldering myeloma, and whats different? I am still getting to grips with this. thanks again.

Hi Tony
My husband Slim is on the Myeloma X1, he got the CTD side,because of his fitness he was on the intensive pathway.
I can only tell you to listen to your body,if you do not feel well, do not think you can cope with it,make sure you phone the hospital for advice,its a very hard call and you do not want to bother anyone,but it is very…[Read more]

Hi Dai

We bought are first van an old vw,because we had two old smelly jack russels, and having a guest house myself,did not fancy staying in one.First major trip was 6 weeks to Spain,wish we had done 3 months,that must be over 20 years ago. We now have a Concorde Charisma,will be living in it,when Slims in hospital for a month.
Have been to…[Read more]

Hi Susie

Ye its a daunting thing this MM, but I said that now i have it I will do my best to keep it at bay untill they find [u][b]"The Cure"[/b][/u] and am sure they will 😀 take one day at a time and to be honest I found it better tocry in the shower that way no one seen my tears8-) as am sure you will shed some BUT we have some great folk…[Read more]

Hi Dai

Well you have had some good thinking out loud time my Friend as for my treatment I think it was a great shock and i told him "You dont want me to decide what treatment I want are you?" when he gave me lots of leaflets/books :-/ where i was told that he and his team would decide the best road for me so I followed his lead and have to say…[Read more]

Hi Jorge

A warm welcome to you.

As for a Carer? my young bride say's she has been my carer long before I got MM Lol, as for you returning to your Native Ireland for your "Final Days" am sure it will be years before that happens 😎

Keep fit and stay strong

Tom "Onwards and Upwards"