Hi Nicola
Thank you for your kind words on the passing of my brother. I am so sorry that your dad has passed away. It sounds as if he was a very well loved and respected man. You will have great memories of him and it is good to know how much he was loved by others. I wish you the very best of luck with your find raising. My best wishes to…[Read more]

Hi Susie

A Warm welcome to this great site, hey am the (one of them) man for the giggles if you need them as for the para thingie bob I aint a clue :-/ if My Doc is smiling then am happy 😎 so al leave all the techie stuff to the others.

Take it one day at a time and as has been said dont do too much rest when your body tells you, and…[Read more]

Hi NeelieAnd Dad

First of all That aint no rant trust me lol, and next a warm welcome into the site that now part belongs to you 😀 pull up a chair and have a seat as its gonna be a long ride am afraid.

Now your dad is confirmed as an MM sufferer am sure it wont be long before they stop his pain and get Dad sorted and into…[Read more]

Hi Teresa
Just caught up with your posts – I've not been posting long myself but have learned a lot from the wonderful and supportive members of this forum. I was diagnosed October 2011 but recently my treatment has stalled a bit. Hopefully I'll get to a sct stage soon.
Anyway a belated welcome to the forum
Andy xx

Hi David
It's great to hear your good news it gives everyone a lift. Especially me as I seem to be stuck in a bit of limbo at the moment. I hope you cough soon passes and you can get out and about again. Though the weather we're having here is good indoors weather.
Let's hope for more good news posts
All the best
Andy

Hiya Neelie.
First of all welcome to the forum. Not that it's a forum that one would choose to be a member of but we are where we are. You'll find it's a good supportive group with good advice.
I had to wait 18 months for diagnosis from first going to the doctors with back problems. Nearly a year spent going back and forth for pain killers and…[Read more]

Yes I agree Dai

Slim never had pn when on Chemo ,but he has it now,people have recommended drinking a glass of milk,plus another thing from boots coco ??????,if the gentleman who recommended it is looking in.I would be grateful for the name again.he said it helps him.

Dai I think its because it,s an anti depressant,Slim was of the same…[Read more]

Hi Neelie

Well I thought my husband was treated badly by his doctor,but I think your dad,s case beats it.the surgery will now bed over backwards and everything will be by the book from now on,you will have to take my word for that.I was lucky I found a young Canadian gp in the practice that listened to me.She is now are designated doctor,plus I…[Read more]

Hi Gill
It does come home to you when you realise children are fighting Cancers as well,My daughter spends an awful lot of time in different hospitals,in and around London,the conditions for care for very sick children needs improving plus it get worst the older you get 14 to 18 year olds are treated on a childrens ward or adult wards. They…[Read more]

Hi Susie
Welcome to the site,by the sounds of it,you are going to find more information from here,than your own doctor told you,did you doctor mention the word Myeloma??????
If you went to the hospital,without any knowledge,it must have felt like a boxers punch knock out!!!!!,its a wonder you managed to take any thing in.

Susie there is a…[Read more]

Hi Dai
As you can see,its early hours of the morning,enjoying a cuppa and watching a program on the Royal Navy,in ST Lucia,if Slims awake so am I:-P

I do not know if this will be of any help,but Slim takes a mild ant depression Amitriptyline 10 mg,it worked wonders for him for a few months,then he had high dose Cyclophosphamide prep for…[Read more]

Hi Helen
I feel fine thanks. If it wasn't for my back I wouldn't know I was ill!
I started my first REV – DEX cycle yesterday so I'm on DEX time. Feel tired during the day and wide awake at night lol. What's you excuse being awake so late?

Andy xx

Hi Dai
The beer festival is held at Nottingham castle mid October last year it was a week after Steph and I got married and 10 days after my diagnosis. This years dates are October 11th – 13th inc. They're aiming for a thousand different beers this year :-0
Hopefully I'll be fit enough to go 😉 I've been a member of CAMRA a few years now.…[Read more]

Hiya Susie
Sorry to have to welcome you to the war on myeloma. You will find loads of support and advice from the happy band that makes up this forum. I was diagnosed October 2011 after 18 months of back trouble when my paraproteins were 50. I'm down to the mid 30's now but it is proving difficult to get them lower. My consultant wants me below…[Read more]

Hi Kay
Thanks for your reply it has given me a lift knowing your pp's where high and you still got a decent result from sct.
I haven't actually drank hardly anything since Christmas and I can't say I've missed it. It was good to go out Saturday just to feel "normal" for awhile.

Cheers 😉
Andy xxx

Good on you Andy. Mine was a disaster. Not sure what I did wrong!

Jean

Hi Everyone
Slim had not had a drink for 17 months as it all taste awful and he was a drinking man,tried on a number of occasions but no go.

Then he tried some port with his cheese and biscuits,loved it.Now an occasional white wine,but still does not like his bitter any more or red wine so all the more for me. lol Eve

Thanks for all your input into the alcohol question. I will see how I get on with revlimid before I try some beer but hopefully I'll be ok because there's a beer festival at the club over Easter weekend and I wouldn't want to miss it.…[Read more]

It worked

[url=http://www.easyfreesmileys.com/facebook-smileys.html][img]http://www.easyfreesmileys.com/smileys/free-random-smileys-741.gif[/img][/url]

DEX is good for something lol

Hi
Here's my attempt from an iPhone.

[url=http://www.easyfreesmileys.com/facebook-smileys.html][img]http://www.easyfreesmileys.com/smileys/free-random-smileys-1006.gif[/img][/url]

Andy xx