tom replied to the topic HERE WE GO AGAIN !! in the forum Treatment 13 years, 8 months ago
Hi Bridget
Hows you doing ?, hope your doing good and this now warmer weather is helping you 😎
Am sure you are like me and love the warm weather 😎
I also hope you are drinking the Wine still 😀
Love and ((((hugs)))) sent for you Tom xxxx
tom replied to the topic CDT then PADS now DT PACE! in the forum Treatment 13 years, 8 months ago
Hi Andy
All the best for Tomorrow M8 am sure you will sail through it 😎
I have attached a couple of my files to show you what I was taking when on CDT and what each was for?
Ps Hope the links work Lol
Tom "Onwards and Upwards"
tom replied to the topic Sudden sickness in the forum Side-effects 13 years, 8 months ago
Hi David
I hope this Email doesn't wake you from your well deserved afternoon Nap :-0
I have suffered a regular sore throat and intolerance to hot drinks and food since my SCT 🙁 as for the sickness well I was still taking Anti Sickness Pills for nearly a year after SCT but a lot of sickness is going around near where I live :-/ might be…[Read more]
tom replied to the topic We have reached the end of our battle in the forum End of Life and Grief 13 years, 8 months ago
Hi Nicola
Am sure it helps a little bit knowing that they have got to grips with your dad's Pain, Stay strong and I an sending my Prayers.
Love and Hugs to you and your Family
Tom xxxxx
tom replied to the topic Delay in Chemo in the forum Treatment 13 years, 8 months ago
Aww Bless Tina I know how you feel, I was like that when I was missed (forgot about) for my stem cell transplant they sent some one else instead it put me back by 5 weeks 🙁 I wasn't Happy, but as David say's it all worked out in the end 😎
Love
Tom "Onwards and Upwards" xxx
tom replied to the topic We have reached the end of our battle in the forum End of Life and Grief 13 years, 8 months ago
Hi Nicola
Just wanted to send my thoughts to you, and hope you are all doing as well as you can.
Lots of Love and Hugs ((())))
Tom xxxxx
tom replied to the topic Terrified in the forum End of Life and Grief 13 years, 8 months ago
Hi Joe and Gem
I am pleased to hear you are both doing well in the circumstances.
Good Luck for Monday Gem
Love
Tom xxx
tom replied to the topic Moving at last in the forum General 13 years, 8 months ago
Hi Eve and Slim
Am pleased that things are moving along at last 😀 , Its good to have the treatment near home am sure all the travel isn't that good when you arn't feeling 100%
The train sound a good idea, and could Slim use his Blue badge to make less costly?.
Good Luck for it all and Give my regards to Slim.
Love
Tom "Onwards and…[Read more]
eve replied to the topic Moving at last in the forum General 13 years, 8 months ago
Hi Everybody
Well things are moving fast now,all dates have been moved forward.
Slim was lucky,he asked could he have anything done locally instead of travelling 85 miles to London,so they allowed him to have BMB in Canterbury.
Hoping he might be allowed to have the Cyclophosphamide 5 hr drip also in Canterbury.( fingers crossed ):-P
Off…[Read more]
jmsmyth replied to the topic We have reached the end of our battle in the forum End of Life and Grief 13 years, 8 months ago
Dear Nicola
I am so sorry to hear the news about your dad. I hope that you get him home. My thoughts and prayers are with you and your family at this terrible time
Love Jean xx
tom replied to the topic We have reached the end of our battle in the forum End of Life and Grief 13 years, 8 months ago
Dear Nicola
I am so sorry your Dad has got to this stage so fast, My thought's are with you and your Family at this sad Time.
Please Take Care
Love and Hugs to you all
Tom xxxx
andyg replied to the topic CDT then PADS now DT PACE! in the forum Treatment 13 years, 8 months ago
Many thanks for all the supportive comments.
I've just been looking at the list of drugs I'll be on during my stay in hospital. It's a very long list! Cisplatin, cyclophosphamide, etoposide and doxorubicin all by IV and continuous for 4 days. Thalidomide and of course dexamethasone orally and 5 or 6 anti side effects drugs.
I think I may be in…[Read more]
tom replied to the topic velacade not worked in the forum Treatment 13 years, 8 months ago
Hi Nicola
I am sure Micky will be soon sorted out, and I know that Hospitals aint that good for the rest and relaxing but it will be better for Micky as they can sort his problems out as they go along rather than re book another out paitants.
Give my regards to Micky and please tell him that I and others have been through it and came up…[Read more]
tom replied to the topic CDT then PADS now DT PACE! in the forum Treatment 13 years, 8 months ago
Hi Andy
Am sorry to hear the treatment is not doing its job 🙁 But Good Luck for the DT Pace? I also have not heard of that.
Tom "Onwards and Upwards"
andyg started the topic CDT then PADS now DT PACE!. in the forum Treatment 13 years, 8 months ago
Hi all
When first diagnosed in October 2011 I was put on CDT regime. After 5 cycles my paraproteins refused to go below 30. My chemotherapy was changed and I was put on to PADS(Velcade) regime. Today I had an appointment at the hospital for bloods and to see my consultant. I was told my paraproteins are resisting the Velcade and that another…[Read more]
eve replied to the topic Benefits Fog -Outdoors Paul in the forum Under 50s 13 years, 8 months ago
Hi Paul
IT took me a long time to get Slim to claim benefits,his thinking, was he was retired.he would not get anything.
All though it was costing us a lot of money on petrol, parking,and general things that I would not normally buy,all his clothes were to big for him,plus lots of extra washing,not to mention the carpet that was ruined.
tom replied to the topic Delay in Chemo in the forum Treatment 13 years, 8 months ago
Hi Tina
Am sorry to hear you are having to delay your treatment 🙁 because if you are like me I want it all to start "Yesterday" but am sure its for the best, get shoulder all better then you can start again 🙂
Good Luck and roll on April 11th, its not long now xxx
Love
tom replied to the topic velacade not worked in the forum Treatment 13 years, 8 months ago
Hi Nicola
First and formost am with you on the Wine "Red" and next I know its hard to see a loved one feel and look ill its not good to watch, but on the bright side we have a lot of people on here that went to nearly bottom then something that was tried kicked in and worked as Dai says Keep your Dad as strong as you can and keep dad as…[Read more]
eve replied to the topic Starting CDT in the forum Treatment 13 years, 8 months ago
Hi Mavis
Lets hope this is just a blip and your BMB and your test comes back negative,Giving your condition you will not go on the intensive pathway,so should have a break in treatment.Slims has injected himself for over 6 months,because of blood clots,so you will soon learn
He did not loose his hair,but it got very thin,and blocked plug…[Read more]
eve replied to the topic Spring is on it's Way! in the forum General 13 years, 8 months ago
Hi Shirley
Just replied to a post on treatment you might be able to answer a few questions???? sorry to put this on you .Eve