Hi Bridget and Helen

Bridget I do not know if they do accomodation,but I will ask,I have been told its the main trauma hospital in London,deals with anything bad that,s going down,The easiest solution would be go in one day have test then come out after 2 days of test,I am lucky I have a daughter who lives in Sevenoaks,but last time she…[Read more]

Hi Bridget

Thanks for the prompt welcome.
I hope your back has improved and not causing you much discomfort. I too have lost 3 inches in height. My back pain isn't too bad at the moment – as long as I don't walk or stand longer than 10 mins!
I think my consultant wants my SCT to take place before they start playing around with my back.…[Read more]

Hi Mavis and Tom
thank you for your good wishers.Tom I posted on your face book,don,t you want to be my friend:-( 🙁 🙁

Hi Bridget

Although I originally come from Liverpool,I am a country bumpkin at heart,so London was a bit daunting,Just cannot see Slim coping well with train,all though easier option,last time we went my daughter took…[Read more]

Hellow Eve and Slim

Well am pleased (if you and Slim are pleased) for my Penny's worth for me I am pleased I did the SCT. Good Luck with it all cant offer advice re train or car sorry 🙁

Love to you Both

Tom "Onwards and Upwards" xxxxx

Hi Liz and Kev

Yep treatment free now its been a while but well worth the wait, and we also say Long may it last 😎

Love Tom "Onwards and Upwards" xx

Hello Alan and Dave
Welcome to the site.

Dave pp levels at 6,it just might be a blip,Jo on here had food poisoning and her levels went up,only to go down again when she was better,its going to be a hard 6 weeks waiting for next blood test.As to new treatments as Gill said lots in the pipe line,

Alan there are lots of people who had SCT on…[Read more]

Thanks Elaine

Frank is convinced that it is muscular, As MRI and skeletal X-ray were ok. The dr gave him anti inflammatory tablets and he said they have helped a bit. Consultant won't be happy as she doesn't believe in those tablets. We see consultant in 10 days so as nothing else can be done he is going to wait.
Thanks again
Jean x

Hi Dai

I also have a poor right arm and am sure its not linked to my MM and as Eve says its the ammount of pint glasses I pick up lol, I understand your feelings about geting it checked out.

Good Luck on your "D" Day hope all goes well

And you also enjoy your Sunday 😎

Tom "Onwards and Upwards"

Ok Ok Ok Eve you know me as much as My Young Bride (Elaine) its a couple of pints these days dont drink as much as I used to ;-( but the Vodka is OK 🙂
Love iccle ole Me "Onwards and Upwards" xxx

Thanks Eliz, and am sure it will be "Onwards and Upwards" xxxx

Hi Jo

Still don't know. Frank and our doc say no. Consultant says yes. So waiting game till next visit to consultant. He is still in a lot of pain. We are supposed to be going to Spain on Monday but he says he will see how he's feeling on Monday. I would prefer to stay at home. Hey lucky you having sun. It is quite mild but windy and overcast.…[Read more]

Hi Tina
No,no break,if your on intensive pathway,if you have bad side effects they can reduce dose,4 days of dex is very full on.If you have problems please mention them .At least you will only go to hospital for bloods,tablets and Zometa,if you hospital is well organised should be able to do it in 1 trip.

Try not to worry everything will fall…[Read more]

Hi Everyone

Come on Tom admit it right arm pain,how many pints do you have to lift until pain starts!!!LOL

Slims pain started in his back when x,ray came back had an old brake plus new brakes,told would heal in 3 months,6 months down the line diagnosed with MM.
Only went to doctor,s because I nagged him!!!!
My advice is go to your own…[Read more]

Hi Helen you and i also lol, thanks for your best wishes 😀

Hi Gill and that it is wonderful news I and my young Bride Family and Freinds Cant smile wide enough 😎

Hi Phil yep am up for that Long may it last and be trouble free 😀 and al do my best to stay safe 😀

Love to you all

Tom "Onwards and Upwards" xx

Hi Min
I feel like Gill,but I am also very proud of you,you have picked yourself up and started to find a new life,as David says we all know what the future has in store,but you are just showing it can be done.

I cannot find you on facebook Min,I would like to keep in touch,I will all ways be grateful for all your help with Slim,you kept me…[Read more]

Hi Jean and frank
Well thats good then as I have a problem with my right arm and its nothing to do with MM its just that I have strained it too many times, I never learn when i need to just get that bit closer rather than trying to stretch my arm I should move closer or move the Table.

Good Luck when you see the consultant

Love
Tom…[Read more]

Hi Dave

Yes I try to go on and answer a newcomer as soon as poss as i know when I first found out I had MM and posted here and other places it was the waiting for a reply that I found frought :-S so even if I dont know the answer i feel beeter just to say Hi.

Good Luck on your road to Remission Dave.

Tom "Onwards and Upwards"

Hi Sylvia, Thanks for that and yes am sure we do want to hear about the Good results, and my treatment is not that new or strange, i was on CDT for about 5 months and during that time I was taking about 49 Pills a day :-/ then went on to Stem Cell Transplant and walla I found myself in Remission and now drug free, Sylvia dont ask me what my PP's…[Read more]