Hi Pamela

Good to hear from you and hope you are well. Thanks for the info. Frank is in bed and I went up and woke him to read what you had written, as the only info we were getting was from the site. It is good to have some info when you say IV is that introveinus (??) He was in so much pain today that he phoned the doctors to speak to him -…[Read more]

Hi Jo

Will cross every thing for next month. I hate the build up to consultant visits – i get my knickers in a twist!! Derek's wife phoned to say that consultant says there's been a slight improvement. So thank God for that.

Keep well
Love Jean xx

Hi Jill
My husband has just finished a course of Velcade which he found ok,except for the hospital visits at your mums age they will only do it once a week,but first it,s blood then velcade and it can be combined with her Zometa so one less hospital visit. It does depend on what hospital you attend some can do the whole process under 2 hrs.some…[Read more]

Hi Dai
Min is right about less liquid needs to be day before 24 hr bottle.!!!!

If I am correct Dai you have Kappa Light Chain like Slim,so bloods do not detect it and urine is the marker,so as Min says how do they know you have it back,have you had a MRI scan or BMB,if its showing in light chain test it has to be going through the kidneys…[Read more]

Hi Vic
A warm welcome to the site.

Sory I cant add anything to your Q re Kyphoplasty as i have not had it, done the 5 cycles of CDT then Stem Transplant.

Good Luck in your road to remission, and some one will pop on and give you the information you ask

Keep strong

Tom "Onwards and Upwards"

Yea Tom she does look posh. Good on you Mavis

Love Jean x

And may I say its a great photo, you look "Posh"

Love Tom xxx

Hi Jo

Thanks for your reply. I will tell frank about the cider vinegar. He still says its not shingles. I don't know about shingles but the skin is not sore, it is underneath and I can see him wincing with the pain. He has no faith in his doctor but I have persuaded him to speak to him tomorrow. I just hope they can get it sorted. My younger…[Read more]

Hi Eve

Yes I love my Breakfast the full monty is good for me 😀 am feeling great after two weeks off work sick fighting fit now so its back to work tomorrow 😀

You two take care

Love Tom "Onwards and Upwards" xxxx

Hi Tom
At least your eating breakfast even if I cannot see it,explains those cheeky choppers,nice to see a healthy face,Slim loves his breakfast,scrambled egg and smoked salmon on toast this morning,trying to wean him off bacon sausage and fried bread,needs to put on weight but needs good weight,it,s not working as the minute I reduce fat intake…[Read more]

Hi Bridget

How you doing I must have missed this post (well no must have i did miss it) am sure I will get used to this site soon.Hope ur on the mend and the dex is not as bad as I/We thought it was :-/

Lots of Hugs ((()))) and love sent

Love Tom xxxxx

Eve am still not sure about that breakfast and it on F/B? might not be my breakfast lol.

Love Iccle ole me xxx

Hi Graham

Sometimes its better to be admitted to hospital then they can do the tests Faster than as on outpatiant 😀 and it will save all that travling back and forth, good luck with it all and hope it is soon resolved

Tom "Onwards and upwards"

Hi Ros
I would agree with Mavis,mums have to have very broad shoulders your the one person she can hurt,and you would still forgive her time to toughen up lady she is no longer a child and is responsible for her own actions.

There comes a time when people cross a line,get on with your life Ros,Michael would want you to be happy.
What this…[Read more]

Hi David
As for me I had a spell of nearly a week in bed with flu 🙁 and to top that off I then got a chest Infection so took a trip to Dr's and he gave me some Anti Biotics and a sick note for a week:-/ when I told him i dint want to be off another week he said "Where were you last week?" and i said I told you I was in bed with Flu? to which…[Read more]

Hi David

Sorry to hear your not feeling too good. When Frank gets coughs or colds he takes Manuka honey. I read about it on the forum and did some research on it. Supposed tobe a natural anti biotic. It has worked for him, there are different strengths. Hope you feel better soon

Love Jean xx

Thanks Mavis and Bridget for your replies. Frank has had this pain on and off for months – a long time said at first it was a pulled muscle – actually Frank told them it was a pulled muscle!! It was just tonight he was very uncomfortable and he wanted Volareen rubbed in (doctor had given him a rub to put on and he was doing a war dance round the…[Read more]

Hi Graham

Well its a start and getting on with the NHS for you is another first, good luck with your MRI and all the best for April (wont be long now)

Tom "Onwards and Upwards"

Hi Terry, First of all Good Luck with it all, and now for the movement? do you know what you are having fitted? I had a Femerol Line inserted (groin area) and that had if I remember four other tubes coming out of it and with those they gave took and did everything, Harvested My Stem Cells, returned them and gave me a blood transfusion and two lots…[Read more]