Hi Terry
Its me again, I just wonder how you will cope with the "Run's" when you get them in a strange room and trust me Terry you have no time to think your jim jams need to be down as you reach for the plug from your drip and you need to kick off the jim jams as you RUN to the loo most of the time I dint make it and I can see he he,…[Read more]

Hi Carol
Good Luck with all it will be well worth it, think Helen has got you covered

Love Tom "Onwards ans Upwards" xx

Hi Dai, and I spotted your post.

If its any help Dai I also have a bit of pain in my right shoulder and am putting that down to stretching under the small table to pull a plug out (its easy done) keep strong Dai I beleive a lot of healing is done in the head.

Tom "Onwards and Upwards"

Hi Mavis

Well as for the "Rolled up Towel" for me it was not painful at all and two yep two of my local gp's told me its was a pulled musclel or a bruised rib?
the reason I had two was I told the first one she was wrong thats when the 2nd one came in checked me over and said she concurured with colleage,

And to make it short I then started…[Read more]

A Warm Welcome Terry you wil find the folk on here a great Help…… Tom Onwards and Upwards….

Hi Lyn,

I care for my wife Etta and as many of the others have said, it's not easy and there are times when you wonder how you will cope.

Me and Etta are very close and I've found the best way is to be honest with her about everything. There came a time with her treatment were she was practically a pill popping zombie and it was breaking my…[Read more]

Hi Peter
You do not mention Diana,s age or back ground of MM,and this is important because the symptoms could be connected to her general health,I think when you come off Chemo you think you will feel better,and it comes as a surprise to find you have all these symptoms,you start thinking,are you in remission.

CTD the dreaded DEX also gives…[Read more]

Hi Dai I found it yesterday and loggged in to have emails from here http://jetblackliving.wordpress.com/?blogsub=confirming#blog_subscription-4

Hope that Link works for you I got it from the where are you thread here

http://www.myeloma.org.uk/patient-services/discussion-board/off-topic/who-the-heck-are-you/re-who-the-heck-are-you3/

Hope…[Read more]

Hi David
I think it,s great,it does get rid of the elephant too,must ask you??? is that a garden with a lovely lake at the bottom?????

Slim and I talk very openly about his illness,with grandchildren around,so if they have any questions,it can be talked about as a family.
Lets see some more pictures as you go on,must say you look if your many…[Read more]

My Dear Jet

I am so sorry you didn't any time out of your sct after all you went through.

Now lets go see if I can find your Blogg (bear with me am a iccle bit daft at times 🙂

Love and Hugs

Tom xxx

Hi Craig and Etta

Good Luck in your task to get what you are legaly entitiled to have, although you should get it they make it hard for you to get it without a bloody fight.

I am not on Beifits as I still work full time but I have the Blue Badge and thats worth its weight in gold (except in Scunthorpe General Hospital who has done their best…[Read more]

Hi James

I hope that you get the best one for you as you know not one size fits all in this deck of MM

All the best

Tom"Onwards and Upwards"

Hi Mal And Bruce

Well thats great news all round, getting to grips with your own life and not having to worry about getting to hospital.

Like your thoughts re a few more cheeky late ones at the local :-D.

Love and Hugs

Tomm "Onwards and Upwards" xx

Hi Graham

Well Good with it all I know its an uphill struggle but it has to be done, the xray wont hurt but you will be in a long time so after the Nurse has forced you to rush you can have a nice long lie in.

Good Luck for thos two days and please keep us posted.

Regards

Tom "Onwards and Upwards"

Hi Craig

Well I am shocked,sorry you have to get people on board and start ruffling a few feathers,if you cannot get help from macmillan nurses go to local papers specially now as the lords have just thrown out a bill concerning disabled people.

No one gets Myeloma over night,you have to get your doctor on board,to put it bluntly this is out…[Read more]

At the moment Eve not getting a blooming penny!

The DSS came out in November for a home visit and basically said she has to be ill for 12 weeks before we can claim for anything. Then we have to prove that she is going to be in the same (or worse) condition for at least 6 months from then!

Basically he said don't hold out any hope of any…[Read more]

Hi all
Well there's a turn up fit the books! Here in N Ireland we always get the rough weather but at the moment the temp outside is in the balmy 7's or 45 in real money. Enjoy the snow. We will probably get it eventually!

Jean x

Hi Craig and Etta

Sounds if you have been through the mill a bit,I can only tell you Slim was in this position,in may last year,in a wheelchair,at this present moment he is out walking the dog.!!!!!

As you say with food a little and often,as much as you can Slim has now put on 1st 8ib,after loosing 4 st.so getting there.I found buying small…[Read more]

Seems like ages since I've been on here but had lots to do to keep me busy!

Etta is doing fine at the moment, slowly getting her strength and sense of humour back. She's eating a lot better now and her muscles are returning (damn those steroids!).

They arranged for a wheelchair for her as at the moment she's walking with a frame, but still…[Read more]

Hi Everyone
Well the garden of England has become a white garden over night.

Woke up and the ground is white and the sky dark grey plenty more on the way.Hard to say how much has fallen as its drifted and looks lots in some places.Eve