Hi Val

My hubby suffers with his legs,not so much cramp or even PN, just very painful,they feel very hard around the calves,I massage his legs as much as possible to take some of the tension from the calves,plus walking seems to help,it seem his leg problem is more effected with the cold.
I will not tell you what Slim suggested,but it had to…[Read more]

Hi Helen and John

Hope you are both doing well so far 😀

Well as for Johns hair and the need for a leccie shaver, its when it starts to grow back, if like mine it looked like the preverble hedge that was dragged through another preverable hedge :-S then the leccie shaver kept it bald till it started to grow back something like 😎

Hope…[Read more]

Hi Michele

I can relate to your problem,as we are in the same position,at last we have remission,and waiting on Kings to see if my husband is suitable for SCT,his consultant says although very fit has had pneumonia which has damaged his lungs,so feels it might not be in his interest,but has told us to go to kings,they are the experts,so we…[Read more]

Hi Clara

Great to hear from you and am pleased your Dad is doing great 😀

is your Dad due to or had a Stem Cell transplant?, and its great to read you are another "Onwards and Upwards" Family 😎 its the best way.

Keep in Touch and give your Dad my Regards and a well done hand shake please 😎

Love Tom "Onwards and Upwards" as…[Read more]

Hi Bridget
Do not understand it myself LOL loosing the plot I think:-P Eve

Dear Gill

I am so sorry to read of the horrible time you and Stephen are going through. My heart goes out to you both. The only thing I know about Dex is what I read about it on here. As Eve and Bridget say is there nothing else he can take? I have been following your journey and am so sorry that you find yourselves here. My love thoughts…[Read more]

Hi Scott

Frank is also like you – if he needs to know anything his consultant will tell him. That is great. I only look at myeloma uk, myeloma beacon and ASH.

best wishes
Jean

Hi Gill

Gill you should never feel like that,this is when you need this site the most,because it,s hard to talk to family about it,and most of us carers have earned are stripes with DEX.:-/

I am able to say to Slim is it the DEX talking or Slim and he does calm down,its a bit harder in public ,when he makes a remark that,s uncalled fore. I…[Read more]

hi Everyone
Can some one tell me what has Gary O Brien??????? Eve

Hi Helen
I don't know anything about Cardamon although i am doing some research on it. Going to ask consultant about it. There was a thing going round a couple of years ago – think it was Curcumin. Not sure if is same thing Myeloma Beacon is an organisation in America which gives information on Myeloma. Not sure what other members of forum…[Read more]

Hi Helen and John

Gosh what a job they made of the BMB, I have been very Lucky with the Nurses and Dr that did mine, ye I knew I had it but could drive home and even went to work the morning after my first one :-0 yep it hurt but hey ho it has to be done 😀

And gong back to the shaver I had to get one when I had my Transplant so I did not…[Read more]

Hi Clare

Sorry to hear that you are feeling down. My husband has MM and when diagnosed I went to pieces. It was organised for me to see a counsellor through Action Cancer. I went and it was a disaster. Although I just met the counsellor, there was nothing between us. I got the impression that she would rather be elsewhere. I never went back.…[Read more]

Hi Mari and Steve

You are more than welcome and am pleased Steve is better.

I know how Steve feels liking the beer but it does bloat you up with the treatment and I found Vodka was better for me or the odd bottle 😀 of red workes for me also.

I do my Vodka with Lemonade but only a little bot of lemonade 😀 and a good glas of vodka…[Read more]

Hi Heather

Great to read you are More positive again.

As for exersice I love a walk and bought myself a new Bike (i know i spoil myself:-D ) and my Dr said it was Ok as long as I dint do mountain climbing with it lol.

Take care and Keep fit

Love Tom "Onwards and Upwards" xxx

Hi Eve and Slim

Well as you know I am in remission and only have Zometa every four weeks, but thats not to say I am back to my normal self (even if i knew what normal is/was)

Had SCT in Dec 09 Back to work May 2010 and still working (well clocking on lol)

I had to get some sleepy Tabs to help me to have a half decent nights sleep and…[Read more]

Hi Chrissie

Iam so sorry to hear about David its such a shame to lose some one to this Bloody MM.

Please dont beat yourself up over wether you should or should not have started the treatment as you know David was a fighter and wanted to do his best to beat it.

Love and Hugs

Tom xxxx

Hi Chrissie
I am so sorry for your loss,I am also awake in the early hours wondering what the future holds,we never know what to do for the best, you just try to do your best and try to remain positive.

People who have been through the same thing will reply to you,and try to help you get through this awful time,just try to remain positive,and…[Read more]

Thank you everyone for your good wishers and advice on SCT.

Still waiting on letter from Kings.!!!

Slim stopped Chemo a week before Christmas and has not been well since,it started on Christmas day,and has gradually got worst,on his last blood test on the 28th his kidney level functions were just starting to rise,so more blood test this…[Read more]

Hi Kay

Aww Bless If its not one thing its another 🙁 Gout is pretty painful or so am told? heres me thinking you could only get gout in your Big Toe :-S yep am a numpty of the first order:-/

Hope The Tabs work untill all bloods are checked.

Love and cyber hugs

Tom xxxx

Hi Sarah and Henry

Sorry but I have never suffered headaches, I hope Henry soon gets them sorted.

Tom "Onwards and Upwards" xxxx