jmsmyth replied to the topic New Carer saying Hello in the forum Carers 13 years, 11 months ago
Hi Lynda
I too wold like to welcome you to the site that you would rather not be a member. I am a carer (hate that word) for my hubby and I have received tremendous support, advice and comfort from the wonderful people on the forum.
My very best to you and Pete
Love Jean xx
jmsmyth started the topic Wedding. in the forum General 13 years, 11 months ago
Hello to all from the madhouse!! Wedding on 27 th was brilliant. We all had such great day and it was lovely to see two young people so much in love starting out on their life together. There were quite a number of tears as one of Stevens friends died recently and Steven made a toast to him. Frank got to bed at 4 am but he is paying for it now.…[Read more]
eve replied to the topic Hello everybody in the forum General 13 years, 11 months ago
Hi Everyone
So glad everyone had a lovely Christmas,
We went to one of my daughters who,s husband cooked a lovely meal,Slim managed a sip of champagne,and some christmas dinner,then went to the land of nod,decided to take him home as everyone was tip toeing round him,was in bed by 5 pm.,Boxing day came and went for Slim,but I had a lovely walk…[Read more]
eve replied to the topic Happy Christmas Day in the forum Off topic 13 years, 11 months ago
Hi Dai
Merry Christmas and here,s to a good new year,this Christmas I was thinking it must be better than last year when Slim was so ill,well it was a bit better,Slim managed to eat half his dinner and was falling a sleep at the table,grand kids thought it was hilarious ,after tip toeing around him for a hour decided to take him home,boxing day…[Read more]
eve replied to the topic New Carer saying Hello in the forum Carers 13 years, 11 months ago
Hi Linda
Welcome,you are not alone and we have all felt exactly what your feelings are at this moment,even the guilt,wishing you had made hubby go to the doctors months before,looking for a reason why this myeloma started wondering about what the future holds and how an earth are you going to cope.
Treatment a bit mind blowing,we use to…[Read more]
tom replied to the topic christmas in the forum End of Life and Grief 13 years, 11 months ago
Hi Min and Roz
Well done to you both am sure it wasn't easy for either of you but I send My Love and Hugs to you both ((((xxx))))
Love
Tom xxx
tom replied to the topic Hello everybody in the forum General 13 years, 11 months ago
Hi Shirl
Am pleased you had a great time 🙂 think we are all spoilt rottn dont you think 😀
Elaine and I had a great time over the Xmas time (now back at work) but its very tiring, roll on the new year am sure some of ours will want a baby sitter (saves me going out lol)
Enjoy the week end with your sister.
Tom xxx
tom replied to the topic update on Henry in the forum General 13 years, 11 months ago
Hi Sarah and Henry
I hope you all had a great day and are feeling well.
Love
Tom "Onwards and Upwards" xxx
tom replied to the topic Keeping up appearances in the forum General 13 years, 11 months ago
Hi Helen
Well its a bugger this Bloomin Chest Infection seems we all are prone to those 🙁 and worry not you look Beautiful with short hair, no need for the wig 🙂
Hope you were strong enough to enjoy the day
Love and Hugs
Tom "Onwards and Upwards" xxxx
eve replied to the topic It's my Birthday… in the forum Off topic 13 years, 11 months ago
Happy Birthday Dia,
many more of them,simply pleasures are the best,so glad your Janet and you are enjoying them.
take care love Eve and Slim.
eve started the topic Carers. in the forum Carers 13 years, 11 months ago
To All Carers
As a carer myself,I know how exhausting it can feel.
The person you shared you life with has slowly changed
There is so much more to do,and your life has slowly been taken over
Its not just the extra work,it,s the mood swings,the company and the loss of all the thing you use to do,and you cannot see it getting any better.
I…[Read more]
eve replied to the topic Banks!! Why do we have them in the forum General 13 years, 11 months ago
Hi Sarah
Banks are there just to squeeze as much money out of you as they can.!!!!
If its any help in the future Sarah,we had an awful lot of problems with Slims mum,s banks,and had to go to the court of protection which in it,s self is a robbing legal organisation,but because of the problems we had,we decided that we had to make plans if…[Read more]
eve replied to the topic A very merry dex – mas! in the forum Treatment 13 years, 11 months ago
Hi Mari
Dex for Christmas,at the least Steve should have a good appetite,and be on a bit of a high,a little bit more energy and less sleeping,that,s what I call a Christmas present from the nhs.
Hope the Velcade works for Steve,it seems to have worked for Slim,he has started on a tablet to help him sleep at night,sorry we did not do it earlier…[Read more]
eve replied to the topic HAPPY CHRISTMAS! in the forum General 13 years, 11 months ago
Hi Everyone
My Christmas wishes to you all,plus the team behind this site in Myeloma UK.
Today my main thoughts are to the people who have stopped posting for what ever reason,you might have left us,but your not forgotten,and to all the people who look in to this site but never post,remember you have something to give,and that,s your…[Read more]
jmsmyth replied to the topic A happy Christmas and a healthy New Year to all in the forum Off topic 13 years, 11 months ago
A brilliant Christmas and a healthy happy new year to all my cyber friends. And a big thank you for all the support.
Love Jean. Xx
tom replied to the topic Banks!! Why do we have them in the forum General 13 years, 11 months ago
Banks/Solicitors oh please dont start me 🙂
Yes Sarah its a bit of a bugger when you think all is in place to make things easier for when we need things to run smooth for some plonka to let it all fail makes me boil.
Pay nowt to them for more than the year for charges.
Love Tom xxx
tom replied to the topic relative of myeloma sufferer in the forum Newcomers 13 years, 11 months ago
Hi Rosin
I am pleased you father in law made the decision to move into the nursing home and if your father in law is settled it makes it better all round.
Good Luck to you all and hope Father in Law soon settles in.
Love
Tom xxxx
tom replied to the topic update on Henry in the forum General 13 years, 11 months ago
Hi Sarah and Henry
Good Luck for the SCT I am sure it will go well, dont worry too much about the weight loss I soon got mine back after SCT and with a vengancce Ha ha
Love#
Tom "Onwards and Upwards" xx
tom replied to the topic First relapse in the forum General 13 years, 11 months ago
Hi Caitriona
Sorry I cant help on this one, just wanted to wish you and your Dad Good Luck, am sure some one will pop in and have the help and advice you need.
Good Luck with the Chemo
Tom "Onwards and Upwards" xx
eve replied to the topic Memory loss in the forum Treatment 13 years, 11 months ago
Hi Everyone
Yes I can accept some forgetfulness is age related,sorry boys and girls it,s the Chemo,we have lists for every thing you could imagine,and if things are not in hand reaching distance,they are never found again,stands up two steps,then cannot remember why he got up,good job he has not lost his sense of humour,we can at least have a…[Read more]