Dear Tom and Min

Thank you both for your replies

Tom thanks but I can't show Frank your reply – this hubby of mi e is a one off – he is such a private person – he doesn't discuss his illness with anyone. He's always FINE. when anyone asks him. Not even his sons and as far as I'm concerned it's like trying to get blood out of a stone getting…[Read more]

I think that person explained it so well,some one once told me never refuse an invite or opportunity,keep opening the doors in front of you,your past will always follow you through the door.
I have a friend who,s husband is planning his funeral,I have known him for 30 years,he knows he has not got a lot of time,and I have found out,so much in one…[Read more]

Hi Gill

Yep I remember your jaw problem on Face book, well av had the Zmeta now every four weeks for just over tw years now, I will be pleased when its (if) all done I hate the "Lets hunt a vein Lol"

Yep it would be better if the meds they gave you to make you better caused no side effects :-S

Tom "Onwards and Upwards" xxx

Hi Eve

Am pleased it was the tooth 😎

I think we are all the same as Slim ie looking so well 🙂 the only time I looked like the man thats got Cancer was when I had my Transplant and lost all my hair (never grew back proper?? am sure i had hair on top??? he he) how many times have we been told "Wow your looking well" 😀

The Two year…[Read more]

Hi Jean and Frank

Well Frank I hope Jean shows you this one 😀 my Friend , I am the MM fella and like to still be the big strong (not silent) type the hairy arse docker BUT and I mean BUT with MM if I am under the weather I, my wife three sons and five grandki well you know what and who I mean well they Monitorer me Temp, pain score, the full…[Read more]

Dear Jo and Bridget

Thanks for your replies. Frank is in bed and that is not like him. We were supposed to go out tonight for our sons birthday but that was cancelled. The boys are coming here but Frank has told me that he is not getting out of bed he feels so bad. I think this bloody disease has reared it's ugly head!! Thanks again it is such…[Read more]

Hi Mari
How is Steve getting on with the Velcade!!!!!!!

Hi Tom
It is the tooth Tom,lol
If he had his way,it would be straight forward job,see dentist,don,t bother with injection,tooth out.lol:-0
I am the coward in the family:-(
When we listed the drugs and complications like his lungs,for the dentist,It surprised me how much there was to be written down,I could not equate it to Slim because he is…[Read more]

Hi All

Well I cant say I know how you all feel, cos i dont and will I ever know how you all feel??? well am afraid and pleased to say No am sure i wont with me being the MM Person am not set up for going first but Elaine(the young bride) and I are Looking along those lines.

The Only Advice I can give is Please Please dont feel sorry to have…[Read more]

Hi Gilly

As like us all its great to read your 15 months post transplant and doing great in remission 😎 Gilly are you not on Zometa or anything like that at the moment? I have to take it till 2 years post transplant and that will be up on the 22nd of this month 😎

Merry Xmas and a Truly Well New Year xxx

Tom "Onwards and Upwards"…

Hi Craig and Etta

Sorry to hear you aint feeling good Etta, as for the depression I am sure I never had any? ? but I did have a stint at talking to a councelor and found it a great help and if that was me being depressed and getting better then so be it it worked for me I think most big hospitals have them it might be worth an Ask 😀

I…[Read more]

Hi Gary
Forgot to mention,have you looked in related conditions,there is a few younger people on there who have gone through the same thing as your sister,
Eve

Hi Craig
This is were you have to be strong,when Slim was in ITU,he was saying and seeing all sought of things,does not remember anything,In fact a lot of his short term memory has gone,but that,s not important,he is still here,and although not his old self,I am grateful.
Low blood pressure is my first marker with Slim,even before other symptoms…[Read more]

Blimey it's been a while since I had time to get on!

Just to keep you all updated, Etta has had a rotten time of it over the past couple of weeks. Her legs got extremely weak to the point she couldn't get out of bed. We finally got a physio referral and they came out to give her exercises to help strengthen them.

Unfortunately, 3 days later…[Read more]

Hi All
Well if there is a link Slims must be from his Slavakien side,and we have no history there.
I do not know if I am bitter,but Slims mum died last year age 84,she was not a very nice person,so it does seem a little unfair,but that sums up life sometimes.
I know we worry about our partners David, managing, worrying about what the future…[Read more]

Hi Terry
Yes they are the same thing,I use that reference,as to me it is a biopsy because it looks at cells in the bone marrow,and it is the one test they can confirm myeloma and the only way of telling what is going on inside the bones.
I agree failure is not an option,it,s important to be positive.Eve

Hi David
I think everyone judges there own life span on there parents,Slim and I were talking about it today,I said after the initial shock of being told you have Cancer,you become more acceptant,Slim answer was,he was the one with Cancer not me,and he never looked at it as a shock,his father was a soldier who died in the 2WW age 28,and Slim was…[Read more]

Hi Gary
Welcome to the site,as a carer i and others,have been standing,just were your standing and feeling the same as you,no matter what we say you are going to worry,but welcome to the roller coaster.Do not feel embarrassed,just feel glad you are not alone,and everyone on here knows how you feel.:-)

Please get your sister to join the under…[Read more]

Hi Terry
Come on just to tell you what BMB is,it,s Bone Marrow Biopsy.
Slim has to have them as other results do not show true readings and the only way to tell if Chemo is effective is by BMB,and general health.
Slims on a three week cycle of Velcade 2 weeks on one week off a combination of VCD on different days,just finished 6 cycle waiting…[Read more]