Hi Jim and welcome,

Sorry about the delay, been a bit hectic this past couple of weeks!

My wife got diagnosed late August and she too is on the XI trial on CDT up in Preston. The levels are coming down every time we get checked (just starting the third cycle this week), so that's good. As everyone has said its pretty individual as to how…[Read more]

Hi Roz
You are coming up to your own 1 year soon!!,so my thoughts are with you,I have to confess when people say it gets easier!! I have my doubts the loss just becomes more acceptable,but it,s always there,but in time the good memories remain.
I hope you have planned to do something,even if it just opening a bottle of wine and enjoying that…[Read more]

Hi Everybody
I am on a bit of a high at the moment,slept well for the first time in ages.mind you G&T wine an d baileys helped.LOL but feel wonderful this morning and its such a lovely day the sun shining,and everyone seem to be out walking this morning.8-)
Min you were right about not giving up,and with out your support,i think i might…[Read more]

Hi Sarah and Henry,

My wife Etta is going through the same thing at the moment but she's a few cycles behind you (just starting her third). She's finding it a bit hard going on the CDT treatment though as its leaving her very weak and she's sleeping lots.

They've told us to expect 6 cycles before the SCT so I'll be keeping an eye on your…[Read more]

Hi Dad and Abi
Welcome to the site,It is no use telling you not to worry because your world has just been invaded by Myeloma,and your thinking this cannot be happening to your dad.
There is so much to take in,so just try to take it one day at a time,I found it useful to ask friends and relatives to stop phoning all the time,because I was just…[Read more]

Hello Abi and your Dad

A warm welcome to this warm band of MM'ers its a great site as you probably know by now 😀

Your first session with your Dad's Consultant will be scary and might get too much info at the start but fortunatly it will all fall into place as the months flow along.

Good Luck to your Dad on his forthcomming road to…[Read more]

Hi Eve and of course Slim

Congratulations to you Both, Slims Dr's and all the Nurses that has crossed you and Slim's Path a well done to you all.

Keep up the great work and you know that Slim and yourgoodself are an Inspiration to others.

Please see the attached Photo its your own Smily face for you Hope you like it.

Tom "Onwards and…[Read more]

Hi Sarah and Henry

Looking good that Henry is doing well on his 5th cycle 😀

And Sarah Honest it aint no good holding things back, as I tell my Youmg Bride Elaine I might have MM but I aint gonna break so if it needs saying say it 😀 and she now does (should realy tell her i dint mean her to be this loud lol)

Hope all goes well with…[Read more]

Hi Abi

I am sorry that you have to join our merry band but a heartful welcome. You will get support, information and even fun (although you wont feel like that now) from the people on this site. I agree with David about the recorder. My husband has MM and Elizabeth (on the forum) mentioned about the recorder. I bought one from Gizoo.co.uk.…[Read more]

Eve so happy for you both. I know the relief that you are feeling. Long may it continue. As Tom says "upwards and onwards".
Love Jean x

Welcome back Min. New photo? Or am I not very observant? Very nice. YAPPING – what my Westie is doing at the moment. ING

Jean x

Way to go Caz

And I wish I kept some form of notes 🙁 cos i would love to see how I reacted with all my Tabs 😀

Keep it going strong.

Love
Tom "Onwards and Upwards" xxx

Hi Eve

Hope things go great for Slim today. Will cross everything.

Jean xx

Well Dia
Are you doing as you should and listening to your body!!!:-P

Bridget what is it with kids,that its always mums fault,I could write a book about all the things I am responsible for,even to them marrying men over 6ft!!.It seems because I married a small man,they have hated not being taller so I am to blame, LOL.:-S
Any way it,s…[Read more]

Hi Bridget
Good to see you posting,and glad to hear not many side effects from Bendamustine.Sue,s husband who is on it,is not bringing PP down,but again not going up.
As for the apology about inhalers I do not expect one,this is what this site is about information and discussion and we women can talk talk and talk.Eve

Hello Roz
The inhalers work,and you pay a price if you forget to use them!!,When i first started using them,many years ago, I fought it like h e l l big mistake realised it is very much a preventive medication.
My daughter blames me for all her ailments!! even to the point of having big breast,to drip gravy down.LOL. The woe,s of being a mum. love Eve

Hey where are all these big words coming from. Someone swallowed a DICTIONARY.

ARY next

Jean x

Hi Roz

I just feel for you all that have lost your loved ones to this bl**dy disease. I know how I felt when my lovely mum passed and writing to her was the only thing that helped me. I still read the "letter" and oh boy I said some awful things to her but I know she understood.

I hope you are feeling better and hope your daughter gets in…[Read more]

Hi Dai

Am Sorry you weren't well enough to attend the confrence but am pleased you listened to Janet, and I know that Janet knows best 😀

As for your Feeling Guilty for not attending well you can take a bit more of your Good advise on board for yourself "If need to Rest and dont go out"

Wishing you a speedy recovery and Thank Janet for…[Read more]