Hi Ted

Great news. So glad to hear it. Frank is same. Consultant says everything is stable and does not need treatment. I am just so thankful. The A & E of the hospital has closed so if any Myeloma patient feeks ill they have to go to another hospital. Consultant hoping mad as she says patient in one place and notes and staff to deal with…[Read more]

Hi Sue
just to tell you about point 2 of your questions?
Slim has Velcade twice a week dose has always been 2.3

We had appointments at 9 for bloods and 1 o clock for Velcade.
leaving at 8 in morning bloods taken then stayed in city,went back for Velcade by 3 o clock often no velcade getting treatment at 4.30,if we are lucky home by 6.We…[Read more]

Hi Jo
Sorry you have been poorly 🙁 BUT you also know how to make a young man "Blush" or is it cos my Commie is too close to the heater 🙂 and as for the Next to you am sure you wont need me nor anyone else for many a year to come 😀 al keep on keeping you all cheered up if you keep on keeping fit 🙂 love and Bigger Hugs ((((())))

Tom…[Read more]

Hi Roz

I know you are correct it will be (well it dunt help) this time of the year Dark mornings and dark nights 🙁 aint good and the thought of another bereavement isn't too good either 🙁 Min is correct the loved one has passed away but am sure is still listening to you talk 😀 cant answer back but am sure they listen 😀

The Pills am…[Read more]

Oh Eve My you know how to make a man blush. "Tom walks away blushing":-) well I would if I knew how to Ha ha.
Yes Eve it has worked for me but I used to ask Q when I was on treatment but as am in Remission I have nothing to ask:-D and My Dr and I are very happy with that 😎

As most of you know I "worry about not worrying" he he Na my Dr's…[Read more]

Hi David
I know you are in remission,was it the same through treatment!!
I agree completely with you, in terms of getting results,and agree,you can almost see the reactions on the professionals faces(patients who think they know best).
I feel they have failed to keep up with the times,I do accept many people do not want to know!!! fair enough…[Read more]

Hi David
I have no problem getting blood results I ask for them at the beginning of each cycle the nurses print them off,and I can see straight away if there are any problems.I find the chemo nurses are willing to expain anything I do not understand,and since Slim has been on Velcade take more of an active roll,concerning his general…[Read more]

Hi all

REHERSAL. which life isn't.

SAL next

Jean x

Hi Everyone

how about a small one but still important RICHER

For having loved and lived giving HER,ans I am not talking about money.Eve

Hi Jim
What is going on!!!!has something happened ,have you all these e mails on your computer,going into trash can,or are you to ill to reply.
Hope it,s just the trash can eating them up rather than the latter.LOL Eve

Hi Min
It all comes down to lack of knowledge and when you get conflicting answers from the professionals, it does make you question everything around you.
I know what your saying Min as when he was first admitted they took bone marrow,full body xrays and MRI and result confirmed and talking about Myeloma trials within days.

I do not have the…[Read more]

Hi Min

When Frank had the Bmb we were told to go and have some lunch and come back to the Unit. This we did and the results were ready. Maybe 2 hours. Does it differ from lab to lab?

good luck Dai. You are very eloquent a d will get the points over.

Love Jean. x

Hi Jo
How are you doing,thought you might post to let us know about info day.Did it go well. Love Eve

Hi Tom
I believe what ever works for you as an individual:-)that,s what is most important you are the person living with it,and it seem to work very well for you,all ways cheerful,never worry unless the doctor is not smiling,were would we be if we did not have people like you Tom on this forum.
So consider yourself an asset. Love Eve

Aww bless and Hugs ((())) Roz, I dont knnow how you feel I can only offer a cyber hug and an ear to listen.

I haven't looked at Holidays for disabled people so to be fair not sure how they work.
I can send you Cyber hugs and My prayers to help you through your difficult time ((())).

Take Care Roz
Love and Hugs ((()))

Tom xxxx

Hi Dai and everyone else

Many Thanks dai for taking this difficlt job on, as you know me I have said that am Happy if the Dr is happy and am realy trying to change that Veiw:-S

As Eve says we are in 3 catagries and I am "The ones who go in to treatment with doctors know best." type of guy its worked for me but I know what you all say I…[Read more]

Hi Dai
I will see what I can do,I know boffins deal with the fact side of the treatment,understandable so ,but first and foremost I am a carer to some one who is very ill and is going to pass away,either from Myeloma or a related illness,so as such I tend to be emotional about it.So you Dai are going to have to bear with me.I do write as I…[Read more]

Hi Tina
Well done on that Windsurf, and always next time for the Scuba diving, am sure Patrick was Looking over you when you were Winsurfing and gung hoing over your new found hobby, take care of the toe and welcome home.

Hugs ((()))

Tom xxx

Here here Roz

GEONITICS

ICS next

Love Jean