Hi Dai

I have had the "Swine flu that has two:-/ flu viruses added to it:-S and the Pneumonia jab, the latter No problem the former well it left me with a big lump and a bruise on my arm >:-( but hey if it keeps me well 😎

Good Luck to those that are due to have one 😎

Tom

Well you know I cant make it Debs but you all have a great time 😎 and not too much drink this time girls

Tom xxx

Hi Craig

Well done you 😀 Love the Kick A S S thing he he, pleased everything is starting to run smoother.

Tom "Onwards and Upwards"

Hi Denise

Sorry to read about your Husband but a warm welcome to you Both.

Yes its a lot to take in after you have had MM for some time let alone after such a short time.

If you need to ask and am sure you will ask away not forgetting their is no "Daft/silly" questions

Love
Tom "Onwards and Upwards" xx

Hi Caz

Sorry you had to join us 🙁 but we are a great bunch of folk 😀

I was on CDT in 2009 then followed by a SCT in Dec 09 and still doing great 😎 Good to hear you have a great Consultant that always helps.

Good Luck in your Journey with us.

Love

Tom "Onwards and Upwards" xx

Hi Bridget
Nice to hear from you hoping you are keeping well,and have pain under control:-)
It,s the only way,Otherwise you would just give in,it,s so important to stay positive,just for your own well being,and if you can make people on this site more positive,then it has achieved a good result,and you do this all the time.;-)
We are going in…[Read more]

Hi Gina Mum and sister
Glad to see you are still holding out:-)
must be hard but try looking at some of the trials,you could always ask for a lower dose of Dex,it would give your mum a bit more energy.
Must be hard maintaining a job,fitting your own family in,then looking after your mum,hope your mum takes advantage of all she is due to make…[Read more]

Hi David
Yes it does touch your heart,I could take you some were in this country, very much the same,my grandson goes to a school in Valance school in Westerham in West Kent.A school for profoundly special needs children the only one in Kent

When you go in there are a mass of wheelchairs with smiling children in them,some can operate a switch…[Read more]

Dear Scott
I know,I put weight on all the meals Slim asked for and could not eat,don,t like waste so the dog and I got fat,and Slim got thinner and shorter,
As for drinking, YES guilty,but realised from old,it does not help so try my best to moderate it.( a bottle a day) LOL:-P only kidding but i do understand.:-S
When I was . 30 I had a life…[Read more]

Same here Eve

Hi Everyone
Sometimes you just do not believe what can happen in such a short space of time,I do not know which is worse,1 year or 15 years,It,s never ever going to go away.I suppose we have to draw strength from any remissions and as you say sue,there are good times,
It has made me appreciate Slim more,as for bringing us close,we got married…[Read more]

Hi Everybody
Nice to hear everyone getting out and about:-)
Jean the pneumonia jab is good ,once in a lifetime but will not protect you from every type:-(
Glad to hear your enjoying Spain,and Ted enjoy your holiday to Cornwall.
Love Eve

Hi Craig
How did you manage to get sod through the senses ,you cannot say h-e-l-l with out getting your hand slapped on here:-P lol
good for you ,about getting help,don,t forget some people never ever draw there pension on here,work for a life time,and never get to collect.So take everything you can,I got messed up by pension people who lost…[Read more]

Hi Min
So glad you are looking forward to the holiday,There is lots to do there,the only thing I found was just keeping myself covered up,except in pool or in hotel,need light clothes,taxi,s can be a bit of a rip off,negotiate before you get in.Good place to buy gold.Have a wonderful time.
Do not forget to tell us all about it when you get back.:-) eve

Thanks Eve and Bridget.

We've not had any contact with the Macmillan nurses yet, something that the district nurse was going to chase up for us. It's good to know that they are there to help sorting out the financial side for us as that's a worry at the moment.

We've been relying heavily on family and me taking days off at the moment but I…[Read more]

Hi Mari
How are things going for Steve and yourself ,its all a bit of wait and see,not a nice position to be in,but it just might be a blip
Hope Steve is keeping fit on the bike,long rides might take his mind off things.As Deb say,s retail therapy is a good thing shops are full of lovely things,might be worth your while to take your mind off…[Read more]

Good Morning Every One
Susannah thank you for information and yes i will be interested on your husbands progress,it,s a good thing for us to know about new trials,and it has to be helpful to you to be able to talk about it openly so I am looking forward to see how things are going,about the Dex on MYeloma X1 trial the dose was reduced on Slim to…[Read more]

Hi Craig
Just read your post do not know if you have looked at the financial side of things,but i found this a great help,just to have someone come in and do some heavy stuff,worth looking into,Slim gets attendance allowance as over 65,but Etta at 54 should qualify for independent living allowance plus carers allowance.It means you can go to…[Read more]

Good morning all,

Just to give an update. After being bed bound for 2 weeks (we had to get the doctor out who said she was just exhausted with not sleeping, so she gave her some sleeping tablets) we went to see our consultant today.

Good news the count is down from 1176 to 200. Over the bleeding moon! Doc was very pleased, a bit concerned…[Read more]