Etta started the topic New to Forum. in the forum Newcomers 14 years, 1 month ago
Hi, I've just been diagnosed with Multiple Myeloma.
I had never even heard of it before I got the news, and everything just seems to have happened in a rush, 3 weeks from diagnosis to start of treatment!
Hubby is typing this as, at the moment, I'm feeling yuck and he can type faster than me!
I'm on day 6 of treatment and just had the Zometa…[Read more]
tom replied to the topic Some good news! in the forum General 14 years, 1 month ago
Hi Liz and Kev
Well I wonder why the Hickmen Line? I had a femerol line when I had my Harvest and SCT am told its less invasive and less likely to get an infection in it???
But when I have my Four Weekly Zometa it is like "Chase the tube" lol and yep Angie gets the "Hot Towel" for my hand but its not working all the time (but it feels…[Read more]
tom replied to the topic Radiotherapy Appointment Tomorrow!! Yippee!! in the forum Treatment 14 years, 1 month ago
And a Good evening to you Bridget:-D
And am I pleased your pain has gone 😀 gosh I wish i could hug you ((())) bless that R/T 😎
And hey we can cope with the tiredness and NO pain 😀 and long may it continue.
Elaine and I are doing great in this weather And I Love it::: dont know about anyone else but::: prior to me having MM I…[Read more]
tom replied to the topic another 3 months in the forum General 14 years, 1 month ago
hey up Ted (a northern saying)
I am sure that we as MM badge wearers none of us know what will is going to happen as the bLo**ming MM throws a bit of a curve and throws it all out :-S
Regards
Tom "Onwards and Upwards" 🙂
tom replied to the topic Hi I am new Help – Now that I have relapsed in the forum Newcomers 14 years, 1 month ago
Hi Terry
May I be one of many to welcome you to this great site:-D but sorry to see you here:-(
Reading your post am sure you will sail through it all and a lot of it as you know is S**t :-/
Me I had lots of CDT and a SCT (December 09) and am doing great only on Zometa now 😎
Good Luck Terry
Tom "Onwards and Upwards" x
eve replied to the topic Us who get left behind in the forum Off topic 14 years, 1 month ago
Hi Roz
I have only just seen this post,and as you know I am not in your position,so in truth cannot begin to understand,loosing my partner through death,although i do know that this will happen in the future.:-( I always thought it was that I would go first.because Slim until now was the healthy one with good genes,just shows how wrong one can…[Read more]
eve replied to the topic What do you think? in the forum Off topic 14 years, 1 month ago
Hi min
Who,s ears?if big Slims if small mine,having trouble reducing size of photo,tried putting one of Slim and me on,so thats the ears and fence LOL,my dog is better looking.Love Eve
eve started the topic Big dog. in the forum Off topic 14 years, 1 month ago
Hi Everybody
Failed miserable to get photo up in Size,cannot change size,so you will have to settle for 2 eyes and a wet nose that belong to my dog.Will keep practising .He is cute love him to bits.Eve
eve replied to the topic Hi I am new Help – Now that I have relapsed in the forum Newcomers 14 years, 1 month ago
Hi Terry
First may i give you a welcome to this site,I am a carer to my husband but you will find lots of different people on here who can give you advice and boost you up when you need it.
I can only tell you about Velcade but others on here have been on a journey with similar problems,
may I say Velcade is not the last resort,My husband was…[Read more]
eve replied to the topic Infoday for Plymouth Support Group in the forum General 14 years, 1 month ago
Hi Shirl
Just seen your post ,do not know how I missed it.
Well stuck in hospital with the weather so lovely out side,no fun and tired up to oxygen ,you don,t have one of those massive tanks do you,or can you get about with a portable one?
I take it the info day was at your own hospital?
anyway at least your home now,this weather is going to…[Read more]
tom replied to the topic Radiotherapy Appointment Tomorrow!! Yippee!! in the forum Treatment 14 years, 1 month ago
Hi Bridget
How are you today? Hope your Pain is still kicked into touch:-D
Love and Hugs
Tom ((()))) "Onwards and Upwards" xx
tom replied to the topic Some good news! in the forum General 14 years, 1 month ago
Hi Liz and Kev
Hope you enjoy the break next week 😀 and hope the sun stays with us till you have had the aforementioned break 😎
Now those Pesky veins:-S they found one of mine first time 😀 last Thursday so was thinking its an in and out today:-D but my records were not at the day ward so I was sat with just having a fluid drip in…[Read more]
tom replied to the topic Nettie's finally gone mad!!!! in the forum General 14 years, 1 month ago
Morning Nettie
Well prayers said for you today so now you know you aint on your own the Lord is with you (hope he aint scared of heights:-S )
Love
Tom "Onwards and Downwards" xxx
jmsmyth replied to the topic About as ff Topic as you Can Get -2 in the forum Off topic 14 years, 1 month ago
Next word
LIABILITY
Over to ITY
Love Jean x
eve replied to the topic About as ff Topic as you Can Get -2 in the forum Off topic 14 years, 1 month ago
My word is
QUESTIONABLY
Leaving BLY
To me this is what life is about at the moment:-) Eve
eve replied to the topic About time I joined the Forum !!!! in the forum Newcomers 14 years, 1 month ago
Hi Min
Lovely to hear you are posting again,so worried for you at one time,knowing daughter lived away and son at sea.
I have thought about starting a support group,but it would not be practical for me personally.For a start no way would Slim go!!:-P,Have been trying to get him to go to London,but no go!!!!!
He is a very self contained…[Read more]
eve replied to the topic About time I joined the Forum !!!! in the forum Newcomers 14 years, 1 month ago
Hi Peter
Thanks for replying,its just interesting the different ways Velcade is given,and with different drug combinations,and how effective it is on different MM,:-S
You are the first person I have heard from who was on Velcade and 3 years on is alive and kicking,half the problem is I am 80 miles away from a support group and this is a life…[Read more]
eve replied to the topic New Discussion Forum Category in the forum General 14 years, 1 month ago
Hi Ellen
I have been posting on here since February this year,and found some thing I believed did not exist(cyber friends),so yes I mourn their loss,it also brings it home,this is going to happen to me.:-(
I would have loved my husband to have sailed through this horribly treatment,and come out the other side,like Jet,who only wants positive…[Read more]
tom replied to the topic New Discussion Forum Category in the forum General 14 years, 1 month ago
Hi Ellen
Thank you for kicking off this difficult subject, but here is my thoughts::::
I am the one that has MM and am helped by My Wife, three sons, three daughter in laws and five (soon to be six:-D ) Granddchildren, and yes we "My Wife and I" talk about "end of life" and yes Elaine said she would look forward to the help and advice that…[Read more]
tom replied to the topic Mini Allo Transplant in the forum General 14 years, 1 month ago
Hi Wendy
Am sorry I cant help you with this one all I had was a SCT and nothing else talked about? but am still in remission some 21 months ago and am still doing great 😀
But am sure you will have some one nip on here and help in the answers you need.
Good Luck in your recovery from your transplant:-D
Love
Tom "Onwards and…[Read more]