Hi Gill
Just to wish you and Stephen good luck,hope every thing goes to plan,and you can have a bit of a rest soon,have noticed you are another one,who burns the midnight oil,terrible when sleep will just not come:-(
The rugby has taken over from the post on here a little bit,I enjoy the solitude of the early hours,If I want to feel a bit sorry…[Read more]

Hi Gina
Glad you and your sister enjoyed the info day:-)It helps i think when you meet people who have been living with MM a log time,it gives you a lot of hope,and on bad days,you can think its just a slight hiccup,and tomorrow will be better;-)
My nearest info day will be London next year,and nearest support group is over 60 miles away, that,s…[Read more]

Hi Aileen

And a warm welcome from iccle ole me 😀 and as for not knowing type you have joint me as I aint a clue what type i have and i have had it since 2009:-0
But am gonna find out next time i see my Dr? in about three months I think :-S

Good Luck with your treatment.

Hugs

Tom "Onwards and Upwards" xxx

Hi Deb's

As you know I am a fiar few months Post sct and as for hair growth (and am sure you wont have this problem) facial hair? if I dont shave for a day or two I get a Pencil tash ? seem to have a line of "None Growth" around the mouth and chin? but am nearly used to it by now? so will let it grow as it comes 😎

Tom xx

Thanks Gina am doing "Spot On" thanks 😎 some weeks i dont know I have MM 😀 then the iccle devil pops up and tells me am "Tired" :-S but hey ho thats MM for you :-0

Tom "Onwards and Upwards" xx

Hi Gina
Thanks for the post 😀 pleased you had a great day (bet it was a long day)
as for me I aint been to one yet? (my fault).

Love
Tom "Onwards and Upwards" xxx

Hello Alexis and John

A warm welcome to the site one that you and John will find a great help as you go down the road of MM.

No need to sign up just post add to other posts or make your own post and do your bio, I for one would love to read it.
Folk on here are like the info line as they help,comfort and support each other in their good and…[Read more]

Hi Alexis
My name is Eve welcome to the club,i never introduced myself officially,just,joined in,Then some one put on a thread"Who the Heck are you" think you will find it in Off Topic just scroll down.I came out on that no reason it cannot be updated on.:-)
So good luck,By the way i am a carer to my husband, keep posting Eve

Hi Ivan
It does depend on what type of Myeloma you have and how much bone damage and tumours,plus lesions.some are more aggressive than others.
This is such an individual decease you cannot go on anybodies bench makers.
Did you ask why they had taken you off CDT and put you on Velcade after just a few cycles???? You would normally do at least 4…[Read more]

Hi Ailleen
Welcome to the site,i have been on here since February,and must admit in the bad times could not have managed with out it.:-(
As David says some one is always ahead of you on this journey,I am a carer to my husband,It does take a little bit of time to take in,but my attitude is i want to know everything about this MM,
So do not…[Read more]

hi Ivan
Worth checking out,blood clots one of the side effects,pity about CDT,Slims on 2 cycle of Velcade,no big side effects(touch wood).
It might seem very small ,(like a sore leg) but do get things checked out.
will not have blood clots in future with Clexane surprised you were on such a low does,you look a big man from photo,goes on weight…[Read more]

Hi Bridget

Sorry your first lot dint go too well 🙁 But am pleased the next one was better 😀

This MM is a bit of a trickster as you say runs smooth (ish) then wallop a smack at the side of the head and it takes weeks before a decision can be made re the meds:-S am sure the know about the pain and fear folk are in and the wait should…[Read more]

Hi Helen

Erm Now do I post a photo of me with hair?? and do I post the one with a side parting? or the one with a middle parting? or the one that was after My young Bride Elaine gave me a perm that I tried to comb out ha ha ha.

What was my head like before kids made me bald? well it was Long (past my shoulders) Jet black and wavy 😀 8-)…[Read more]

Hi Nettie
Got to say you have got some guts!!!.but understand were you are coming from,My money will be on its way to you as soon as i work out how to do it,will put it on my facebook,people seem to find it an easy way to give.
My son in law just done the three peak challenge in 24hr.in shocking conditions,the group raised 7000 for childrens…[Read more]

Hi Ted
Must admit never heard of phone appointment !!!. We can ring after 1pm for app.now have a doctor just for extra app and surgery has very early app and late app at 7am and up to 7pm twice a week.
it is getting past the reception desk is the big thing,for eg: my husband has injections which he does himself,my doctors do not like having to…[Read more]

Hi Gill and Bridget,
Gill all that sea air was doing Stephen some good LOL
Talking about the h-e-l-l word,how can they consider it inappropriate !!!!!
Taken a second look at the carpet and walls urghhhhh,bought him a bucket with lid he can carry round .
Bridget good to hear you are in good spirit, or as are tom would say Onward and Upward:-)
love Eve

Hi bridget
just caught you post before i closed down,i must tell you what went on today,
Went to hospital today,should have gone yesterday,Slim not well,but hung on till last minute,did not matter he painted the white carpet with sick,thats never ever going to come out.:-/
Saw doctor,"o yes his eyes said,no you think you have an infection,I…[Read more]

Hi Bridget
How are you doing,!! I know by your post,you seem cheerful,its what I call a happy face:-).is the pain starting to get under control,that,s the main thing,Day by day Bridget,you have so much going for you.Keep smiling Eve

Hi Everyone
My word to day is UNDERSTANDING
I have chosen this as I think as a word it says a lot.

ING

Eve

Hi Martin
May I say thank you for letting us know about your father,condolences to all your family.
He died at home with his family,I could not think of a better way to die,I have never heard of the Crossroad girls,but i do know the Macmillan do what they can to make the passing easy,I am so glad your mother found some comfort in this.We fight…[Read more]