Hi Paul
Have a drink while you can,it is allowed because your taste buds,will change some times drastically,my hubby has always liked his wine,and G&T does not like anything now LOL more for me:-P

Good luck with your treatment Eve

how about DELINEATE
Cheated a bit Slims the brains in the family
I have started reading some post out to him though,this morning he was as shocked as I was about Peter,but I think Min would like us to post as usual
Eve

ATE

Min what a terrible shock. I could not believe what I was reading and like the others had to read it a few times. I really dont know what to say to you except I am so so sorry. My heart and love goes out to you and your family. I honestly thought that Peter was going to get over this hurdle. My sincere sympathies to you and your family. My…[Read more]

Oh Min
I am crying as i post so don,t worry if it does not make sense,So so sorry,I just cannot believe it,I know it can happen very quickly,but he was still was walking about.I thought he was going to get over this one.
My heart goes out to you,I just wish I could do more.
All my love Eve
Min I just keep reading your post,so have come back on…[Read more]

what can I say except I am a woman.I have the right bits,just not working Eve

Hi Sarah
Glad to see you are holding up,tell us about your grandchildren. Eve

Bridget you have made me cry,and i have broad shoulders,Bridget do as they ask ,
Go to the hospice and let them get your pain under control.
You have always told us no one should be in pain time to walk the talk,
hugs go out to you Eve

Hi
I thought it had to be together eg:ESS ———-BLESSED.
i had trouble too Eve

Gill I also tried to reply but no luck. Think I'm having a senior moment – the last three letters of the word – Must they be in order? And at the end of the word. Can you post it again?

Jean

Hi Paul
I am a carer to husband Slim,I sent you an email to say something wrong with your posting,other wise a lot more people would be giving you a welcome nod,no one seems to be able to reply to it.
My husband was on cdt to your cdr on myeloma trials,most people take revlimid before bed time helps you sleep.Specially after 4 days of dex you…[Read more]

Dai i do not know why you expect to be informed you only the patient,it does not matter that you have been waiting all day for something and it,s been over ruled by some one further up the ladder and no one has told you,just remember you are now an institutionalised patient:-P
I am counting those days to your holiday now .Eve;-)

Hi All
Must admit I never got pocket money,but I can remember going to the pictures on a Saturday morning,I think thats were my love of western come from,but my big thing was Flash Gorden,he was always on the point of being killed and you had to come back next week to see what happened.!
Talking about cigarettes we could buy looses I know they…[Read more]

Hi Min
Hope Peters picking up a little bit,I use to worry about Slim and his dignity So i tried to be around as much as possibly,but he was so ill,he cannot remember any of it.
I think this will alter his own perspective of illness,and i think your life will get a bit easier Min.
Might do Peter some good to keep a picture on your phone,then…[Read more]

I agree Min we should be able to double up at least 2 of those appointments,We rang last week just to remind them of things that needed to be done,and was told not to worry things were in hand!!!!
when we went on Friday no appointments had been made,nurse made blood and Zometa.Told me nothing had been arranged to late to get hold of anyone.
bank…[Read more]

Hey Min am sure its no help to you or Peter but I threw more pants away after my sct than I had bought in a year, dare I say it dint stop for some weeks after getting home so beware, after food no one dare go to the loo till i had been ha ha.

I also used the throw away pants that they have in hospital 🙂 and brought some Pads home to use when…[Read more]

Hi Eve

Tried to cuss but this site wont allow it ha ha (get on the over 50's)

That time table is taking the w e e , w e e (hope it lets me post this one ha ha) I am having a Zometa infusion tomorrow at 9 am then see the consultant at 11.45 🙁 BUT bless Dr Jalihal he tells me to go straight up to his clinic as soon as I have had my infusion…[Read more]

Hi Chelle

Like the others I am sorry to hear your Hubby is poorly 🙁

Please think on the positive side it will make your journey a little bit easier, its a struggle at times I know but it will help.

I cant offer advice re the meds just to give you both my support.

Love and Hugs ((()))

Tom "Onwards and Upwards" xxxx

Hi Gina

Like the others I am sorry that the Velcade is not working for your Mum 🙁

I hope they soon find some thing that will help and not many side effects? (if only)

Love and Hugs to you all

Tom xxx

Hi Gill

I do feel for you,at least you now know,and the battle begins,we are still waiting on MRI scann date for this Sunday,then hospital appointment for everyday except Thursday,have just worked out the mileage and we will be doing 210 miles to and fro that week.

I do not know which is worst knowing or waiting,Slim seem to take it in his…[Read more]