Dear Gaye

Rest In Peace, I am so sorry I missed your Last Posting with not getting on here often.

You were and still will be an inspiration to me and I will miss your cheery Posts.

Love and Hugs to us all at this sad time ((())))

Dear Sarah

I am so sorry to read about Gordon, I send Our Condolences, Love and loads of Hugs.

Like most of us on here we dont know each other only through the airwaves, but i for one think of every one of you be it Carer/family member or MM sufferer as My Friend and with that in mind its hard to know they are Ill and suffering with this…[Read more]

Morning Ted

Not a problem re the reply 😀

Yep we are all sorry to have this darned MM and its strange I have gone through a Stem Cell Transplant (december 09) and to look at me I dont have a thing wrong with me I look fit I look healthy and the only treatment I am having is a Zometa Infusion once every four weeks:-S but I know I have got…[Read more]

Hi Susannah
I do not know any thing about Bendamustine trials only MX1 trials,I can only go on information I have.This is were Gaya would be very helpful,she fought hard for frontline drugs.
It is postcode lottery,you would think having roughly 3000 patients diagnosed with mm per year they would be trying to sign them all up for trials,because…[Read more]

Hi Min,
You are making me laugh,I know it is not nice,but you know I have been there before,I made up my mind next time it happens I will refuse to take him home.I liked the grassing up bit:-)wicked
I have told Slim I refuse to go though all that again,I felt so guilty I blamed myself for not calling an ambulance sooner.He does not remember much…[Read more]

Hey Gill

I enjoyed that. I am in bed with an infection (keeping away from Frank), I was feeling very sorry for myself but that cheered me up.

Jean

Hi Min
As you know Slims on clinical trials,and must admit some good some bad has come out of it.I do not think it is wholly for are well being.
First you have to ask yourself does the consultant feel so strongly that this medication is the best he can give: the answer should be yes
Second Is the consultant just interested in advancing his own…[Read more]

Hi All
We find are senile moments very funny at times,were does the day go,looking foe keys can take up time,My husband refuses to go in my handbag,he claims he could loose his hand in there,the more we try to be more methodical,the worse it gets how many pairs of reading glasses get lost!!!.then add this Myeloma to the mixture with all these…[Read more]

Hi Gina
I was just thinking the same as Jill how are things going with your mum
love Eve

Hi Dai

Left Liverpool 40 years ago,no regrets,when I first came down here,everyone thought I was Irish LOL now I have a plum in my mouth they think I am Welsh.
I know the Isle of Sheppey,few years since I have been there,Deal name fame is they lost 11 bands men to IRA bomb,they were all musicians no threat to anyone,most 18–21 years old.
I…[Read more]

Hi Jean
He is not to bad in himself considering the ctd has not done the job for him,and now started Velcade,another learning curve, 2weeks on 1 week off just started the week off.
he is not looking forward to having bone marrow taken at end of every cycle, but that is now the only way they can tell what is going on.One minute we are looking at…[Read more]

Yea Eve mydemons wake me up in the early hours – they are quite busy at that time. Hope Slim isfeeling better.

Bridget how are you? Hope good.
Love Jean xx

Hi Pauline and Jean,
Jean and I have had this conversation before,you will find Pauline there are a few others on this site with partners they feel like strangling some times,even with out the illness,that,s part of them,
I think jean and I came to terms with ,what was going on instead of getting angry we took the view( their body there life )it…[Read more]

Hi Pauline

I tried for years to get Frank to talk to someone but he wouldn't. I know it helped me so I hope you have better luck. Some of my friends on the forum said if he (Frank ) wanted they would talk to him. He nearly had a stroke and said there was nothing to talk about!!! It is hard but I have to respect his decisions. Pauline things…[Read more]

Hi Russell
Bone Marrow is the only way to confirm Myeloma 100% it does show in bloods sometimes and sometimes it only shows in Urine there is about 5 different types of Myeloma,and there are related conditions.see related topics!!!
As I said you are young,looks if they have found it early if you look at home page and go into video,s there is a…[Read more]

Hi Dai
Thought i would let you know Dai Slim did not have Picc line,but solved his problem after last week looking like a pin cushion,bought a cheap hot water bottle fill it and wrapped it up in pillow case,applied to arm while waiting to be called in,works a treat,and no time wasting looking for veins:-)been to hospital this morning,have to go…[Read more]

Hi Elizabeth

I read your post before on the little recorder and I got one. Brilliant idea. Thanks for advice.

Take care

Russel good luck for your appointment.
Love Jean x

Hi Tom
Have we missed you yes,yes yes,we thought you got lost in your jungle of cucumbers.We are in need of some cheer on this Forum,as ever one has been having hiccups,and the people who are doing well are reluctant to post ,

Kitchens do keep you busy though,mine is still not quite finished little things like light and blinds,but we will get…[Read more]

Dear Pauline

I am sorry that you are having such a bad time. Reading your post brought back some bad memories. This is such an individual and shi**y disease that people handle differently. When my husband was diagnosed in 2006 he got the family together and told us all that he wanted no research done on the illness and he did not want to…[Read more]

Hi Pauline
In life we seem to find this energy to cope with what ever comes our way,my husband has the same view as you,why worry about it,if you cannot do anything about it!!:-S I how ever try to jump there hurdle first,so i can make it easier for everyone else to get over.
He is the Myeloma sufferer I am the carer,but this diseases has taken…[Read more]