Oh Sarah I am so very very sorry to hear your sad news. My heartfelt sympathy to you and your family. I have followed Gordon's and your journey through this horrible disease. You both have been inspirations to me and am sure a lot of your friends on the forum. My thoughts and prayers are with you and your family.

My deepest sympathy and…[Read more]

Hi Peter and Scott
Very interesting from Dr Berenson,Trying to find all the information i can,to try to understand the going down sct or not.!!!!
My husband Slim has just finished 6cycle of ctd,it looks if they will not be recommending sct,because of his lungs,when he had septic pneumonia,the cat scan showed mass blood clots plus wedge shape…[Read more]

Hi Peggy
Do not know how you managed it but you have two post in General with same title one very up beat,other one not so,!!!! just found this one,as i was looking to see how you were managing:-)
I do not know if anybody has mentioned it,but drinking water is so important for your kidneys,if you find it hard drink anything you like,you may find…[Read more]

Hi there Dai
You have a large leg but still keeping your sense of humour.:-P
May I say Dai your a man who is very good with words,so why not use this gift,you must have a local paper!!!!,copies to executives plus,to paper,hate to say it,but works wonders,like a pain in there side.
Other option is to pay privately it should not cost very much…[Read more]

Hi Gill
I know what you mean when you say privileged ,I am not religious ,but i do thinkwe learn so much about life in times like these.
No one wants to go on this journey,but in many ways it is not only a learning curve but it puts life in perspective,and in turn enriches it.

Fifteen years ago i started another journey.My grandsons,again a…[Read more]

Hi Sarah
Keeping up with your post just so you know you are never far away from my thoughts. Eve

Well Dai

Whats the verdict !!!!! I know your enjoying the massage so much you have forgotten to tell us.LOL:-) Love Eve

Hi Peggy

Glad to hear you are up and about,sounds if you are feeling a whole lot better,Its amazing how much information you manage to absorb ,and how you get in to routine,so glad your well keep posting Eve

Hi Gill
Its in Side Effects,under Starting Therapy, I missed it completly then when I saw it realised Lara is new to forum,and no one except Bridget had replied ,could not help her just welcome Lara to the site, love Eve

Hi Lara
Just read your post ,do not know how i missed it,!!!!!
Let me welcome you to this site,and the start of your fathers journey!! it,s not all doom and gloom,treat it like a learning curve.:-)
I cannot help you with your problem,but by replying to your post it will take it back up to the top of the section,and someone who can answer your…[Read more]

Hi Sarah
I wish I could bottle this!!!,Just think Dai a welsh man saying a scouse is extended family !! LOL.new that would make you laugh Sarah its like comparing Lancashire with Yorkshire LOL.,but Myeloma does not know boundaries:-) .

Be strong Sarah,enjoy this time,not many people have this time,I wish you a good journey,Thinking of you…[Read more]

Hi Gina
Your mum has been here before,something is not right!!! anti inflamitories i always thought was a no no,don,t quote me ask the nurse.I think you remember what Slim went through,and it started with blood pressure going low,Please get in touch with the hospital.If her gp prescribed blood pressure tablets the hospital do not like to…[Read more]

Hi Eve and all

What you have all said is so true. This site has been my lifeline for a long time for which I am very grateful. Like David says it also puts your problems into prospective. I hope you are all well and hope Slim and Peter are feeling better.

Love Jean xxT

Thanks Bridget, but am sure all my bits will mbe of an advisery role these days Lol, the kids just might let me use the sdrill once or twice 🙂

Love Tom "Onwards and Upwards" xxx

Hi Sarah
Thinking of you today,as every one on this sight is,many because we know some were down the line it is going to be one of us,so sad that it has come around so fast.we all know what a roller coast of a ride this is and i do not think anyone is ever prepared for the future.
On the plus side you are getting Gordon home,and that in it,s…[Read more]

Dear Sarah
Min and Bridget have said it all. I am so sorry what you are going through. I know Gordon Is surrounded by love. My thoughts and prayers are with you both. As Bridget says "hang in there". I pray that there will be some improvement. Sarah I can only offer my prayers and love.

God bless Jean xx

Hi Jo

I must say I am not that good?? we are having a new Kitchen but am having a great deal of help from Craig (our next door neighbor)

Good to hear you and Geoff (ur old husband? ur words not mine ha ha) go for your daily walk and I tell you three miles is a bloody good walk (unless a pint is at the end of it he he )

And its great to…[Read more]

Hi Carol
Yep My Boys nay men all over 25and kids of their own Lol, have taken most of my tools and my "Fishing gear" saying "you dont need to cut the hedges we will do it, you dont want to go fishing and carry all this gear?" and as it happens I dont 🙁 whan hedge needs cuting My wee Cragie (ok he is over 6 foot tall) nips round and cuts it…[Read more]