Hi Dai

Well we do not need to ask were all that talent comes from:-)you have every right to feel very proud,this is what life is about,doing a good job.
I know the feeling of missing a daughter,one of my daughter,s live in New Zealand only moved out there3 years ago,taking two very young children with her,so journey home is not on the…[Read more]

Hi Sarah,
Just so sorry to here sct failed,i agree with Bridget it is a bstd illness,Slims on a low dose of Dex now and seems to be coping better with it.
I even let him drive now,before every journey was,like a nightmare.
Let us know how you get on. best wishers Eve

Hi Eve and Jo

Well the Cucumbers are allegedly good for Cancer sufferers, and a few of us here have sat in a "Cyber" greenhouse drinking Red wine and eating cucumbers8-) Hope that clears that one up and you now know am normal (yep normal even in a Cyber greenhouse ha ha)

Love from One cucumered

Tom "Onwards and Upwards" xxx

Hi Tom
I won,t ask what you do with the cucumber ,the mind boggles!!!:-S
PS is it any thing to do with onward and upwards

Hi Peggy

A warm welcome to our ever growing band of MM'ers

Yep I was same but I didn't put them both together for some months after I started treatment.

Am sure you will get the help you need as and when for you and your Daughter, if not shout out loud.

Good Luck on the treatment you start and have a good day for your Birhtday (well…[Read more]

Hi Gill

First dont listen to Eve "re the drink" as its done me the world of good over the last 40 years lol.

But seriously a warm welcome to the site but sorry you had to join.
I was Diagnosed in Jan 2009 and had CDT then Stem cell harvest leading to a Stem cell transplant in december 2009, and am still in remission and doing good:-D still…[Read more]

Hi Gill

Welcome to this site, I think we have 3 Gills now so do you become gill20?
Sounds if they have caught you early with having mgus.
My husband has mm and is on Myeloma X1 trials he got cdt side on 5 cycle having 6 cycle then see consultant.Just had another bone marrow sample taken yesterday.Thing seem to be going in the right…[Read more]

Hi Peggy
My if you have not got enough on your plate and this has happened you must be devastated.What a start to a birthday.It will get better,I know that it does not seem this way right now,but there are people ahead of you with not just myeloma,but extra problems as well so you are not alone on this journey.

Its my husband with mm,I also…[Read more]

Hi Jo

The young bride is doing great, and as for keeping me in check (just looked behind me to see she aint their;-) ) well she has a hard job doing that Lol.
Take a look at the photo and see how much I spoil the young bride (tom looks over his shoulder to make sure she cant see)

Hope your Doing Ok Jo xxxxx

Hi Joanne

Am pleased your Father in law is now on the treatment regime, and the advice I can give is for the pending treatment is Rest and take one day at a time:-D

Your Father in law will have his off days/weeks? but you will know it wont be "Him" it will be the drugs:-/ and not forgetting you and mother in law need your rest…[Read more]

Hi Gill

Well what a great lot of replie's you have 😀 and am sure I cant add anymore to this great advise you already have.

BUT am a Mere Male and you know we have to have our penny's worth 😀

First am sorry you had to join this great site, but also to let you know its also the best, its a roller coaster but to make it short, I am now…[Read more]

Hi Helen

Am Pleased your Mum is getting better, and am sure the Zometa will cause no more problem:-D
As for me well roughly I was diagnosed in Jan 2009 went on CDT, then had stem cell harvest and leading up to a Stem Cell Transplant in December 2009, went back to work In May 2010 on light duties, and thats where I stand now, and the only…[Read more]

Hi Helen
Good to know your mum feels a lot better. Its very worrying at the start,but your mum will soon get into the routine of things,do keep posting,it might help your mum to post as well,there is light at the end of the tunnel.
There will always be people who can help you,with any questions, so good luck and keep in touch eve

Hi Helen

Sorry you have had to join this site,but you are welcome.
this is what the site is for to ask question,get support,and rant and rave if you wish.so welcome again to the big learning curve.

Ask your Questions on the other sites as,Re starting a discussion is not were people on this site look very often,you will be picked up ,on…[Read more]

Hi Gill

Welcome to the site,Its either you so shocked or it is a relieve that at least you know have a name to your illness,sorry you have to join us.
Ask any questions you need answers for,or thing you do not understand,look on it as a big learning curve.
I wish you a good journey eve

Hi Dai
Sounds if you are going through the mill,so what can i say your knacked through lack of sleep,Let it all out if any body is entitled to blast off its you,think of it as just another hurdle,and if you refuse to jump over it,i,ll bash you with my hand bag 😛
Tomorrow is another day,try to stay positive,do not let your demons rise to the…[Read more]

Hi Helen and Mum

Sorry you are here 🙁 but its best place 😀

I am on Zometa and the first time I had it I had flue like symptoms for a few days (aches and pains in bone structure) but it only was that first time, I now go every four weeks for my infusion and so far tomorrow (thurs) will be my 13th and all is going great.

Good Luck to…[Read more]

Hi Joanne

I also am sorry you have had to joint this site, but trust me its the best place for help/advice and folk to listen to us when we need a rant.
As Kay says its an individual illness and not one thing suits another.
Take the pen and Paper and make notes its not going to be easy to remember everything, also ask the Consultant to send…[Read more]

Hi Christin

Yep I know all about takin three rather than one step:-D but as time went on I knew (nearly as much as Elaine) that I had to take it Easy so am sure your Dad will also get it Lol.

Love from a mere male 😎

Tom "Onwards and Upwards" xxx

Hi Vicki

Yes it made me weary and yes strugled to sleep at the same time (strange that Dex) but I got sleeping tablets and took them sparingly as i dint want to get hooked on them 😀

Am not sure if the Spondylitis ur Dad has is connected to the MM but am sure someone will pop on and advise 😎

I am just having four weekly Zometa…[Read more]