eve replied to the topic Syngeneic SCT in the forum Newcomers 14 years, 4 months ago
Hi Bellis
Just thought I would pop in and say hello,and offer you a welcome
I cannot help you with your posting,
I am assuming your mums twin will donate stem cells!!!!!.
If it is ,it sounds wonderful to me,I hope it works out for your mum,and someone is able to give you some help,Any advancement on treatment,is something we all like to…[Read more]
eve replied to the topic Registration guide… in the forum Newcomers 14 years, 5 months ago
Hi Andy
I have a slight problem,and do not know who to ask so i have come to you handy Andy,
Do not know how to change my name on this site,as I now have a different surname,can you help.
kind regard Eve
eve replied to the topic Dad diagnosed with Myeloma last week – Starting chemo this week in the forum Newcomers 14 years, 5 months ago
Hi VIcki
We were told if have little side effects on first cycle the rest are usualy the same but everyone is different.
You do not say what type of Myeloma your dad has,they take bloods and get 2 cycle within days,Once your dad starts on bone infusions the pain will easy but in the mean time make sure you tell the clinic it is very important…[Read more]
eve replied to the topic Whats The Daftest Thing Said To You !! in the forum Off topic 14 years, 5 months ago
There is all so a good side for example I changed my gp within the practice because i felt I needed someone who would listen to me.The new gp is a lady and talking to her,she told me on mondays she does her home visits in her own time before she starts surgery,i bet not many gp do that.
When Slim was going to ITU he was rambling on about getting…[Read more]
eve replied to the topic Admitted yesterday. in the forum Carers 14 years, 5 months ago
Hi Min
It makes me so mad when I read about some of the things that go on in hospitals,but glad Peter is eating,a good sign. Its all just awaiting game hoping every day he will get a little bit better.
It will get better Min,look at us,2 months on slowly Slim is feeling better every day,and does not remember much of the bad times.At times i…[Read more]
eve replied to the topic dad just diagnosed at 48 in the forum Newcomers 14 years, 5 months ago
Hello Meika and Christin
Just to say a welcome to you,
May i suggest you look at the post[ a ray of hope ]then go back over the old post,you can do this by clicking on photo.
It might give you some hope and encouragement.
best wishers eve
eve replied to the topic Whats The Daftest Thing Said To You !! in the forum Off topic 14 years, 5 months ago
Hi
Thought of some more stupid remarks,
When Slim was in A&E,being sent home,I pointed out his bp 60 over 40 told it did not matter!!!!!!
|Fathers Day went to barby,first time out with people for a long time,daughters sil,came over saying Slim you look rearly well,I expected you to be looking,ill and grey looking,did not comment on his 5inch…[Read more]
eve replied to the topic Admitted yesterday. in the forum Carers 14 years, 5 months ago
Hi Min
How are things going with Peter and yourself,is he starting to pick up ?
Have you far to travel to hospital ,It all takes so much energy,It is suppose to be a nice day today,although its raining right now,lets hope the sun comes out,I find things all ways seem a little bit better on sunny days.
This is just to let you know,I am thinking…[Read more]
eve replied to the topic Memory Book – right or wrong? in the forum General 14 years, 5 months ago
Good luck Angelina glad you have decided what to do,if your sil says anything you tell her straight,she would not be able to walk a mile in your shoes. until you are going through this thing,no one has any understanding how it is.Can I say now you have decided to do this,make sure you put something in your boxes that has John smell on it,sounds…[Read more]
eve replied to the topic A ray of hope in the forum General 14 years, 5 months ago
Hi MaRi
I just cannot imagine it,London to Brighton,56 miles is it,with that great big hill you have to ride up,it gives us so much hope.he must be fit.
Thank you for your post,my husband is on his 5th cycle of ctd and had complications with pneumonia,some times I just cannot see any progress,and then some one posts with such good news and its…[Read more]
eve replied to the topic 2nd SCT in the forum Treatment 14 years, 5 months ago
Hi Keith
I think we were all wondering what happened to you,but to scared to ask,as we new you were going through a bad time,but its lovely to here you are doing well.
Have a good break away from it all,wish i could do the same [I am jealous ] Best Wishers Eve
eve replied to the topic Whats The Daftest Thing Said To You !! in the forum Off topic 14 years, 5 months ago
Hi Ladies
The worst thing that was ever said to me concerned my first grandchild who has cp.I was walking him,and met a male friend who new my daughter,and was explaining why Matty was in a wheelchair.
He asked if my daughter Ruth was going to keep him!!!!!!!I often feel like coming out with comments{no hes going out with the rubbish] just to…[Read more]
eve replied to the topic Admitted yesterday. in the forum Carers 14 years, 5 months ago
Hi Min
So sorry to hear peter,s not doing to well,but we both know how quickly it can turn round,a few days on a drip works wonders,Slim had a feed in his neck with lots of tubes to be able to have lots of drips,with machine,s going off every five minutes,not nice at all,It must be awful having to go home and leave him there.
I hope today…[Read more]
tom replied to the topic Pain Relief Changeover in the forum Treatment 14 years, 5 months ago
Hi Bridget
Sorry to hear bout your pain:-( bit of a Begger this MM, hope you get sorted out 😀 and the pain is reduced.
Love and Hugs
Tom xxxx
tom replied to the topic 3rd Relapse? in the forum General 14 years, 5 months ago
Hi Michelle
Sorry to hear about your Mum and the setback she is having.
I also am chuffed the Dr is on the ball and sorting your Mum out 😀
Catcha Lata
Love and Hugs sent to your Mum (oh and one for you Michelle 😀 )
Tom "Onwards and Upwards" xxxx
tom replied to the topic Renal failure in the forum General 14 years, 5 months ago
Hi Jess
And sorry I cant help on this one? just wanted to wish you well, and add you could poss phone the Nurse and ask them am sure they could help on this one.
Hugs
Tom xx
tom replied to the topic Diarrhea in the forum Side-effects 14 years, 5 months ago
Hi Wendy
Welcome Home (as they say) am pleased it was only a holls bug 😀 (am sure i said that Ok:-/ )
Good Luck
Tom "Onwards and Upwards" xx
eve replied to the topic Education Needed in the forum Off topic 14 years, 5 months ago
Hi Roz
I feel like a naughty school girl,the first time i thought what an earth have I said,because I do not swear normally,I was upset by the whole thing,and thought,have i offended someone.
The second one ,was saying H-e-l-l.Tom told me how to get round it,but you have to question ,who would find it offensive
Glad you seem more upbeat…[Read more]
tom replied to the topic V3/1 Bad news… Excellent news… in the forum Treatment 14 years, 5 months ago
Well Done that Dai and Janet "the gun jumper" as for playing the guitar later trust me Dai I aint got PN and I still cant play a note he he.
Keep it up and Good Luck and well done to you all
Tom
tom replied to the topic Revlamid in the forum Treatment 14 years, 5 months ago
Hi Colpot
Thats good news 😀 and am sure you are very happy with the reduction.
Its great when it all falls into place 🙂
Tom "Onwards and Upwards"