Hi Nicki

I just want to say it is lovely that you posted how well things are going for your husband,it gives everyone a boost.

I look sometimes at so many young people with this horrible myeloma and think how sad,lives not lived,so you post must be such a big boost.
I wish you both a long and happy life. eve

Min I like Eve wish I had your way with words. That was truly beautiful. We are lucky to have you and Dai. You both can write what a lot of us think but can't express. Thank you

Love Jean xx

Min I think that is lovely,

The pen often means more than the spoken words,I just wish I had the gift,
I have looked on life as a learning curve,for a long time,I honestly believe,that some of the bad things that have happened in my life,an awful lot of good has come out of it too.

I use my denby arabesk and my crystal cut glasses every day…[Read more]

Hi Angelina

Sorry to hear about Johns Problem 🙁

I have had CTD then SCT and so far am doing good only need Zometa once per month, so cant add to this apart from wishing John well 😀

Its been said John is in the best place and being looked after.

Wishing John a seedy recovery to get home soon.

Love

Tom "Onwards and Upwards"…

Hi Liz

I also say phone the Hospital and or the contact Number they gave you.

None of us are the same so need different drugs/meds at different times.

As for me I never hold back calling if need be, we all know our own bodies and what feels "Just not right" is when i call, pleased to say though Not had to call them for some time now :-D…[Read more]

Hi Gaye

Dont we know (or most of us do) about being blooming weary:-S I never know when am getting? (or do i just choose to ignore it?) but my young bride Elaine knows it well:-D so in that matter its all looked after

Good Luck on Thursday 😀 and dont let them make poodles with the Balloons he he

Love and Hugs

Tom "Onwards and…[Read more]

Hi Ali

Am sure when the SCT is due Guy will cope with it well:-D

and Positivity is a great thing, I feel it makes you better faster (but thats just me Ha ha)
Worry not about being busy and not getting on, just dont forget anything troubles you we are here for you.

Love
Tom "Onwards and Upwards" xx

Thanks Dai

Will look at that,Slim goes back on ctd week Tuesday,hope I can fatten him up a bit,they seem keen to put him back on it.I wait and see how he improves.
In need of finding some alternative treatment,

Have you started the music for the lyrics of angels? best wishers eve

hi Everybody
I cannot be much help to you ,only to say weekend or not make that phone call,I have learn,t that you do not hesitate,if in doubt listen to you instincts.

My husband ,has just come out of hospital,They make clinical judgement on a daily bases but at the end of the day you know your partner.
The problem seems to be everyone,reacts…[Read more]

Hi Liz

Sorry to hear that Kev is having such a bad time. I know what you mean about men being stubborn. (sorry all you men out there!). I am sorry that I can't give any help on the problem that Kev is having. Sometimes posts get "way laid" or lost so maybe if you start a new topic under Treatment or Side affects with a heading on the problem -…[Read more]

Dai. Thank you so much. You can put in words what most of us are thinking.
Love Jean. xx

Hi Gina and Mum

Like all the others am pleased your Mum is Still holding back treatment 😀

And as for being tired :-/ tell me about it me I have fell asleep in the pub (and still sober he he) but my young bride Elaine now knows when I am getting tired and makes me go home/or stop what am doing (bless)

Yes its hard to sit back and wait…[Read more]

well David mine was on the 22nd November 1975 😀 now lets see three kids born?? :-/ names ??:-S you ask them and they will tell you its a erm Lee Craig no you Ha ha ye I still get mixed up with the three Sons Names and Grandkids ho ho Love them all (5) but even they know I get confused when I call them He he, Hey Ho am sure its just me 8-)…[Read more]

Hi Ali and Guy

Well am pleased Guy's problems are on the way to being resolved, the bone thing am not sure what if anything Guy is having to help with that? as Bridget says two drugs are used (that i know off) and the one I am having is the Zometa, and that in itself gives me no problems or side effects 😀

Please dont worry about throwing…[Read more]

Hi Gina

My husband diagnosed sept 2006. He is not on any treatment. His protein went up to 31 and then dropped to 24 started to rise again and now is 28. Dr said that would not start treatment as other bloods were within range and kidney function was good. She sent him for MRI scan three weeks ago but have heard nothing yet. We also go back in…[Read more]

Well Dai

What can I say :-/ Lord knows I wanted to say something but couldn't:-( I am so pleased that you Dai helped the likes of me in putting it across with feelings from our hearts, Lord how the tears seem to come easy 🙁

Love and many hugs

Tom xxx

Hi Annika

Am pleased your Husband has coped ok with his line of treatment and just go with the flow, both of you rest when you need to and dont do too much, as for the steroid's My young bride Elaine says that I was OK with the effects 😎 or was she just too kind :-/

Good Luck on the treatment, mine went smooth (ish) and Like Kathleen's…[Read more]

Hi Dai
I loved the lyrics ,now we need the music,so enjoyed your last piece,we are not going to let you slip off with any angels Stay with the angels on this site,we need you.:-)

dear Ali
Sorry you have had to start this journey,As time goes by the medical side gets easier to understand,and you will find this site helps with a lot of the general stuff that comes up with mm.,there will be someone ahead of you in this journey,who knows what you are going through,and no matter how good family and friends are,its the person…[Read more]

Hi Marian

Your welcome.

I hope when you read these post to your Parents it helped them at this difficult time.
Stick to this site its the best honest and true with few scary bits.

I take no notice of the "life Expectancy" as we have new drugs popping up these days 😎

Catch you Lata

Tom "Onwards and Upwards" xx