Hi Jo

Don't know when we find out about scan. He won't phone her. Reckons if there is anything on scan she will let him know. He finally got to see dental consultant about painful tooth. (only took them a few months). Tooth has to come out. Bone is exposed. Surgeon says because of zometa there is a chance it will not heal. He put off extraction…[Read more]

Hi MIn
Not good min,
I now know why they call those little girls who try to get you walking o/t,they go over the top,left Slim for 4hrs he was due to eat,have cat scan and have a rest period, this ot decided Slim was going to walk,ith zimmer with sticks and do stairs and Slim put on a great act and did the lot only to be exhausted for rest of…[Read more]

Oh Jo here is Tom walking away Blushing he he 😎

Hi Marion

Ye its hard even for me and I am 55 years young 😀

As its hard to understand a fast talking Dr why dont you ask to have a copy of the notes that is sent to your dads Dr 😀 that way it can be read and re read until its sinks in 😎

I also have my fingers crossed for your Dad

Love

Tom "Onwards and Upwards" xxx

Hi Marian

So sorry to read your Dad has MM, but you have come to the correct place here for help and advice 😀

I was told in 2009 that I had MM and have had a stem cell transplant and doing good, do you know what treatment your Dad will be having? as we all have different treatment due to the MM

I wish your Dad well in his forthcoming…[Read more]

Hi Eve

Its a bit of a B-A-S-T-A-R-D this MM (see now av shown you he he)

Am sure Slim will be Ok its just getting his meds right that causes a big problem :-/

And as for Slim Looking in good shape, I think its an MM thing cos I know that all us suffering MM look bloody good to say what we are and have gone through 😀

Good Luck and…[Read more]

Hi min
just woke up, thank thank you so much,I need to know there is hope to give him hope,At the moment reading your message you could be talking about Slim I know I have left him tonight wondering if this is the end.The doctors do not know it,his attertude is I have got away with it for 66 years!!!!I suppose,because of his life style he has…[Read more]

Hi to you all

Tom you are going to have to tell me how i can do it,because I know I am loosing the plot.
just got back from hospital.Slim had cat scan today,not good news.
Blood clots on lungs,also cavities might be mm or could be tb.my own thoughts are possible asbestos as Slim use to sleep under the piping on board ship as a young…[Read more]

Hey Eve

Trust me girl us lot are not easy to offend:-D and it must be the Skool prefect that felt it might be dodgey 😎 I know I have tried to use MANY a cuss word and it wont let me He he (but av found a way round it ha ha.)

Hope you and Slim are doing OK

Lots of Love from one "Unaffected bout comments" Tom xxx

ps let me know if…[Read more]

Hi Eve

I'm with Bridget and Jo. How is Slim? Do take care of yourself.
Love Jean xx

Yes Bridget CF is a horrible disease. 30 years ago, our friends son died of it at age 16. They are still very much involved in CF (fund raising etc) and tell us of the great progress that has been made.

Tell your daughter that the best cure for hang over is the "hair of the dog". (that's my excuse)

My best wishes
JEan xx

Hi Bridget

I can understand how your mum feels. It's bad enough watching a loved partner ging through this horrible illness, never mind watching your child.

I hope all goes well tomorrow and I will be thinking of you and you will be in my prayers. Do let me know how thing go.

Lov Jean xx

Pamela

Doing this from my phone as lost connection on lap top! Sorry to hear that you are having pain. This is such a shi**y disease. Hope you loose the pain soon. Frank and dr have had run ins. The last visit it was like watching top dogs vying for position. She said she thought he had cracked a rib he told her she was wrong and he knew his…[Read more]

Hi Pamela

Great to hear from you. Been looking at wedding photos on Facebook. Looked like everyone had a great time. I hope you are keeping well (know that is a stupid thing to say – but you know what I mean). I will be going with Frank – poor man can't go any where without me!! Did you ask them how long it would take for results to get to…[Read more]

Hi Min

I know what you mean. The doc gives me diazepam 5 mgs. He gives me 28 at a time, but
I only take them when a G and T stops working. Packet lasts me about 10 weeks.
Take care
Love Jean xx

Hi Bridget

Thanks for that. I do admit to being a nut case!!! I was much worse but counsellor sorted me out. How is your pain?
Remember Frank pain in side. He kept saying it was muscular and turned out he was right. Hope you got your pain sorted.
MRI scan tomorrow scares th cr**p out of me. You would think that I was having it.
Hope you…[Read more]

Hi Kathleen

If you are loosing the plot then so am I. I am a carer to my hubby Frank diagnosed Sep 2006 with SMM. He is not on treatment, but at last visit she discussed future treatment. Also sent him for skeletal Xray and tomorrow he is going for an MRI. I watch him like a hawk If he pulls a face I'm asking whats wrong!! For a long…[Read more]

First chance to reply
Ward went in lock down today no new admissions place swarming with cleaners. Slims septic pneumonia is back, had 24 hour bug,on the whole much better,Test to see if there is an under lying infection.Doctor does not think it is directly related to mm,except concerning the body being at low ebb,to pick up infections.all the…[Read more]

HI Bridget,

You are all ways there to support people,in time of need,I wish you well and will try to follow your post to support you as much as I can.best wishers eve