thanks Jo
Have managed to get rehydration powders and some energy drinks which I am mixing with drinks,that he likes.Also find straw is helping ,every 10 min I make him have a few sips,seems to be working,plus the threat of hospital,
First time Slim has not got out of bed,

Thanks again jo,it brings it home how this mm reacts so different on people

Thanks for reply
Hard to get fluid in Slim,has been so good about it for last 6weeks,has a sore throat,as drugs attack soft tissue,I know this is going to be a hard time,but the low bp is it normal ,
My daughter has found a chemist open and managed to get rehydration powder,plus energy drinks,having to put them in other mixers to make them…[Read more]

Hi Keith and NIgel
I just found your post when I was looking for some info on feeling so bad,my partner is just finishing 3 cycle of ctd and starts 4 on Friday.

The problem is he feels so bad,ended up in hospital yesterday,very dizzy ,turned out,low blood pressure and Dehydration ,although he was drinking well up to feeling lethargic last week…[Read more]

Hey Jo

I know what you mean about Strangford!! We had a lovely sunny day today but this evening it rained. Robert (from Southampton)arriving tomorrow txt to see if it was hot here!!!!! I can't remember the last time it was hot here, warm yes but hot – no. He must have a short memory. Looking forward to Sunday as we will have all our boys…[Read more]

Gill
That is the best news that I have heard in a long time. (since Shirley's news) I am so very pleased for you both. It's so good that you questioned the ones in the "know", a lot of people would take what the professionals say as "gospel" My very best to you and Stephen and have a BILLIANT weekend.

Love Jean xx

Hi Gill
You must be over the moon,I am so glad for you both,never,never give up hope,we do not know what is round the corner:-)
It does make you think,were would you be,if the conversation about how much stem cells were taken last time?
Enjoy this lovely weather and have a lovely Easter .eve

Thank you all for your kind words and support, and laugh. I don't know what I would do without you lot.

Weather still good here. Hope so where you all are. Have a great weekend.
Love Jean xx

Hey David that was some surprise! I was expeting to see some lovly hoppy bunny!!

Have a good Easter
Love Jean xx

Min so sorry that you had such a dreadful time. I know what you mean about the comfort zone of the hospital being near by. I know you can't relax – been there – and would much rather be at home.

You think you have it tough where you are Min, you shoud try living in Northern Ireland – especially where we are. Our weather is terrible – now,…[Read more]

Hi Everyone

Yes I can confirm kent south coast is basking in the sun,hotter than Spain,West Coast of France even Cyprus.24 degrees here in sunny Deal no wind sea as calm as can be,when its like this you cannot beat it.
We had planned a few days break only up the road,but Slim not well enough,first time out yesterday for a week,but he did enjoy…[Read more]

good on you girl,
Have a lovely evening eve

Dear Gill

I am so sorry to hear your terrible news. I just don't know what to say to you. I can understand you being in pieces. You have been a tower of strength to people on this forum and I hope that we an be of help and support to you. My love thoughts and prayers are with you both.

God bless
Love Jean xx

Dear Gill

What can one say,sorry does not seem enough,The only thing I can say is I believe no one dies until they have had enough,and there seems to be acceptance of death,
If it is any help to you I try to look ,at are life together and think of all the good things we have done,and when i look back I consider that we are very lucky people,I…[Read more]

David have you got "bugs" in my house!!!!!!! Very good
Love Jean x

Hi Jo

Will do. Not looking foward to it. Get myself in a right state!! Will keep fingers crossed for you. Hope all goes well at your appointment.

Love Jean xx

HI Everybody

Thanks for the info on Maxi-Joule Bridget,I tried doctors for a product you could sprinkle on food,told only certain products on nhs.E Mailed one manufacture who sent soup samples through to district nurse for me,not very nice.Will try this see if it works.
Perkymite I would give anything to see Slim drink,a glass of wine or even…[Read more]

Hi Jo
Had a lovely time. Lovely hot weather, nice food. Couple of days we could not go out as Franks pain was too much. But then it went away for 3 days and came back. Both of us are confined to Barracks today as we have "runny tummy". Hospital postponed appointment until next Thursday. Will have a list of questions as long as your arm. Hope…[Read more]

HI everybody

Thank you for confirming all those side effects poor Slim going through the lot, hard to watch at times.The only thing he has not done is put on weight,in fact this worries me,tried every thing,he cannot stand any of the soups and drinks to build him up,and his food intake is very poor,says he feels full all the time,would be…[Read more]