Hi there,

I’m afraid what your going through is normal for most families. The Dex causes sleeplessness as well as depression in some people. It really does affect behaviour and causes mood swings. I was very short tempered whilst on it and yet in the middle of the night so high I spent the early hours just writing away silly things or surfing the…[Read more]

Hi Jeffrey.

I go swimming up to 3 times a week. I started during Reha (a German thing where anyone after major illness gets sent to a clinic for rehabilitation). The Physio checked me over and said swimming would be good. Because I have damage to my shoulders she suggested that I swim on my back and do small arm movements. I found after that the…[Read more]

Well, perhaps not a good idea to go swimming in a pool. We were on holiday, I went swimming, had a sauna etc and lo and behold two or three days later, wallop. Probably the worst infection I have ever had, laid me low for ten days! Couldn’t put the infection down to anything but the swimming.
But hey we are all different.
Regards
Tony F

Troll.

I really do not think that this discussion forum is the right place to bring up such a subject.

Hi Linda,

first of all, don’t panic. We all started the same way, in panic and fear about what MM is and what it means to your life. Next, step back and take a deep breath. You’ve already done the right thing by finding this website and posting. I assume that you have appointments with the consultanat lined up, write down questions, don’t worry…[Read more]

Hi Susie.

Since your on Revilimid it could be a side effect of the drug. I used to get intestinal cramps quite regularly at the end of cycles when I was on Revlimid. I also had cramps in my legs and hands.

I wouldn’t advise using a probiotic though it does really depends on your neutrophil level. When I was diagnosed the advice I was given was…[Read more]

Hi Linda

I was diagnosed in October 2011. Due to my myeloma not responding to the normal early treatments I’ve never got to SCT. I’ve been through nearly all of the drugs in the myeloma medicine cabinet and I’m currently on Pomalidomide (Imnovid) . Only Revilimid (Lenalidomide) and Pomalidomide have had any significant effect on my myeloma.

The…[Read more]

Hi Rebecca,

I haven’t a clue what generally causes shortness of breath but in my case MM was diagnosed whilst in hospital with a very severe case of Pneumonia. I still have damage to my left lung and so consequently I have reduced lung capacity. The other thing to note is that MM can also affect the Heamoglobin levels in the blood and it’s that…[Read more]

Hi John,
23 for PP isn’t a bad figure and if it comes down even more all the better, I’ve been at 23 since my SCT last January and still doing ok so don’t worry too much over the figure. There are plenty of other indicators that the medics will look at. Like you I am short of breath after climbing stairs etc but strangely enough not after riding…[Read more]

Hi Rosie

I’m so sorry to read of the passing of your husband Chris. I know your children and family will be of great comfort to you and to help you at this terrible time. Such a lovely picture of your husband – the Glens of Antrim, know it well

God bless you and your lovely family

Jean x

I found they gave my husband the anti sickness pill to near his meal!!!!
If it’s taken half an hour before a meal it settles the gut,so that might be worth trying,and yes some hospitals keep you in until you can hold down your food,Slim just lied!!!! But that was Slim.

Evening Chrissie, so your pp’s are at 23 and you are not on any treatment. Can I ask, have you been on treatment, if so have you had a SCT?
I was diagnosed 3 years ago, put on myeloma XI trial, had a SCT, pps were down to 2. That was almost 2 years ago. No treatment since the SCT. Pps now at 4.9. Specialist doesn’t appear concerned, still no…[Read more]

Really sorry to hear about your loss. For all of us sufferers it’s just a matter of time but to have been robbed of any decent life makes it worse. I hope that the pain will improve over time, my best wishes for the future.

Try a piece of pineapple to clear the pallit ,drink anything you can,it’s hard,fizzy drinks helps,it’s just a matter of perseverance .

Hi

I am sorry to hear about your news,it’s not very nice when all hopes seem to fade,!

You must be absolutely shattered with all that’s been going on since last January,with hardly any time to take everything in,your experiences of hospitals is becoming more commen place,waiting hours just to be put on a drip,when your husband was so ill,it is…[Read more]

Same thing happened to me, very annoying.

Be aware that I’ve just ages filling this in only to find that it froze on me and I had to abort the survey. Very annoying.

Hi there,

Had SCT last January and before that was on VCD. The Velcade gave me neuropothy in my feet. It slowly got worse after the second course but fortunately not in my hands. The Cyclophosphomide didn’t affect me that much I believe but the Dex was the worst. It made me irritable, hyper, unable to sleep. I’m surprised I’m still married. The…[Read more]