HI Jean

I am a new be to this site and also to mm,my partner is on his 29 day of cdt.He has had pain in his right side for a long time,he originally thought he had broken ribs.When it was first diagnosed the damage to the large bones were in shoulder blades and skull plus spine,these showed on skeleton exray and mri scan. ct scan has not been…[Read more]

Hi Amanda

I'm glad you got it sorted. I hope it is as helpful to you as it was for me.

Best wishes
Jean x

Hi Gill

I hope Sephen gets many many more years. I really admire your attitude to this bl**dy awful disease – I wish I could be more like you. Take care and may your God bless you.

Love Jean xx

Hi Amanda

Here in Belfast counselling is available, it was arranged through the Cancer Resource Center. I went to counselling when Frank was first diagnosed. I went for about 6 months and it really helped me. I had to go back again to see the counsellor iddle of last year afor about 2 months. Declan (the consellor was brilliant) and the…[Read more]

Hi

I travel every year in motor home making are way through France then Spain and on to Portugal 'we have needed a doctor once in France and a dentist no problems just paid are 20euro,s and then paid for tablets.In Spain you can take your repeat prescription in to chemist and you can get it over counter we do this all the time as doctor,s are…[Read more]

Hi Amanda

My welcome also to the site. The site and the lovlely people
on it has seen me through ddifficult times. My husband was diagnosed with Smoulderig Myeloma in September 2006. I really did not understand whY they did not start treatment right away. The only thing they give Frank was was Zometa for about 6 months. But he has great…[Read more]

Hi Amanda, and sister

Sorry you have to join this band of MM'ers, but to be honest they are a great bunch of folks.

I have MM and was told in Jan 2009 and started CTD in Feb leading up to a succefull Stem Cell Transplan and Yes am with you Re the Carer? it aint for me, dont know what I would choose?.

And as for the "Lack" of treatment yes…[Read more]

Hi Gaye
I know i am fairly new on here and my partner Slim is only on his 23 day of ctd,I do not understand why everone seems to be on different pain relieve.I am concerned how much Slim takes although hospital is very pleased with progress he was taken off tramadol put on 10 mil of morphine a day plus paracetamol 500.This controls the pain to…[Read more]

Really beautiful Dai. You ae very talented.

Love Jean x

Hi Tracey

May I be the first to welcome you to this great group, I know its one that we didn't want to join 🙁

I also started on CTD then moved on to my Stem Cell Transplant, now 15 months post sct and doing bloomin good.

Good Luck on your treatment.

Tom "Onwards and Upwards" xxx

Hi Tracy

My partner Slim is on 21 day of ctd.He was on B12 vitamins for awhile.I cannot help with gluten intolerance.Slim was very healthy before all this.I think when you are first told about myeloma apart from the shock you start looking for reasons.Everbody will tell you this no one seems to know why or where it comes from,we are all…[Read more]

Hi Roz
And you are more than wlcome, and am pleased it/I make you smile 🙂
So sorry you are having a bad day but you know what they say so its no good me saying it again is there?.

Just give a few thoughts from the Good Times and try and push the times when Michael wasn't himself.

Hugs and Love sent your way keep strong Roz

Tom xxxx

hi Nigel

I agree with you it should be easy to arrange medication between Europe,we know from friends in Holland If they need treatment and it is easier to go to Belgium its no problem.We tried it when Slim needed a hip replacement,2 years wait here,we offered to go to Abbyville in France would have cost NHS 5thousand was refused,they paid 11…[Read more]

Hi Nigel

And a warm welcome to our little band.

I was diagnosed Jan 2009, and since then I have had 5 courses of CTD,stem cell harvest and now am at the 15 month post stem cell transplant and am back at work (light duties)

All through my treatment it has been "Pain Free" :-)and am now still in remission 😎

As you know or will find…[Read more]

Hi Gill

When Frank was first dignosed we used MIA for travel insurance. He is not on any treatment and has only had Zometa. Last time we were going we contacted MIA again and tey refused to insure him. They said that they had changed their policy. They were not very forth coming. W were told about Columbus insurance and we got a gret deal…[Read more]

hi Gill

Thanks for information,will look it up.We travel in a motorhome to France,Spain Portugel,have done all of Europe plus Morocco.This mm has put a stop on are travels for now.We are hoping once Slim gets use to his chemo to travel to France although on treatment,will have to come back every month because of Myeloma Trials.

It is just as…[Read more]

Good Morning Roz

Am pleased you never left this site so no reason to say you have come back 😀

Am pleased you are getting through all this and it is a bloomin bugger all the stuff that needs to be done whilst trying to get to terms with losing your partner.

Am sure the Goverment could link it all together and all that needs to be done…[Read more]

Hi Thanks kwilson for the advice on insurance I will look for that.

Hope everybody is enjoying this lovely weather or is it just south of the thames that has it?

Brilliant Min. Enjoy every minute. After a while you will wonder how on earth you fitted work in!!!

Love Jean xx