eve replied to the topic myeloma X1 trial in the forum General 14 years, 9 months ago
hi david
Have two boxes for pills,My partner insist on doing his own pills,but there are so many,some days its 45 pills other days as little as25.Plus pills from our own doctor.We have agreed that I check them as sometimes he can be confused becuase of condition.there has to be an easy way of doing this.
I hope someone can tell me of an…[Read more]
eve replied to the topic myeloma X1 trial in the forum General 14 years, 9 months ago
Hi Marion My partner started on trials today he was allocated to ctd group.Have found the last couple of weeks mind blowing.So much to take in and so many visits to hospital.Then coming to terms with illness and how it will effect future life.It is early days for us,the amount of tablets is mind blowing.CTD drugs then pain releave plus tablets…[Read more]
jmsmyth replied to the topic Excercise for over 50s in the forum Off topic 14 years, 9 months ago
Min you got me as well!!!! I was trying to figure out where you would get potatoe bags!
Jean
tom replied to the topic HOT AND SPOTTY in the forum Side-effects 14 years, 9 months ago
Hi Chris
I also had a rash on my body during CTD, it soon went 😀
Do you go to the AE at hospital with Hubby?? me I have been told if I have anyproblem to phone our Onc ward and speak to the Consultant or the Staff Nurse, they have more knowledge about the MM
Good Luck
Tom "Onwards and Upwards" xx
tom replied to the topic Denial – My thought for the day. in the forum General 14 years, 9 months ago
Hi Chris
And am I pleased you joined us 😀 but sorry you had to 🙁
I am sure you will all cope with whatever is thrown at youe and Hubby (sorry you didn't say his name)
Dont forget we have you now so pull up the chair and ask say what you want, we are all here for each other 😎
Tom "Onwards and Upwards" xxx
jmsmyth replied to the topic Stiff joints/difficulty moving – Try this in the forum Off topic 14 years, 9 months ago
Hi David
I feel so disillusioned!!! I thought I was great doing my Wee Fit!!
REgards Jean
tom replied to the topic surgery resulting from MM in the forum Newcomers 14 years, 9 months ago
Hi Sylvia
And That we are (optimistic that is he he) me I dont think April is too far out? so the crossing to Cork should be OK
I used to hate the heat and sun and love the wind rain and snow But since getting MM you could throw me all the sunshine that you can because I defiantly feel the cold these days8-) so the sooner the better and…[Read more]
tom replied to the topic surgery resulting from MM in the forum Newcomers 14 years, 9 months ago
Hi Gaye
April 15th MMmm Interesting
I think it could be today 😀 well we dont need the sun 😎 do we? we just need to be a wee bit daft he he.
Photo to follow ha ha.
Weekend nearly over and a new week ready to kick off, hope you all had a great w/end and are looking forward to the new week 🙂
Have a Good Un
Love
Tom…[Read more]
tom replied to the topic Another newbie. in the forum Newcomers 14 years, 9 months ago
Oh Sorry to hear that Em 🙁 but am sure they will sort Dad out Ok.
Its a case of working out what works and what isn't working with us lot 🙁
Your Dad might just need his meds tweeking a little bit 🙂
I also dont like a fuss caused over me so think I know how your Dad will feel.
We have to take it one day at a time 😀 and it will…[Read more]
tom replied to the topic Another newbie. in the forum Newcomers 14 years, 9 months ago
Hi Em
Well I am sorry to welcome you to this site 🙁 but that said you will find it One of the best around, we have great folk that have got good advice to help you and your Dad through this one step at a time 🙂
Humour you cant beat it at a time like this and never lose it as I know it has perked me up no end over these last couple of…[Read more]
tom replied to the topic Denial – My thought for the day. in the forum General 14 years, 9 months ago
Oh Gaye I think?? no I know we all have the "Onwards and Upwards" streak running through us 😀 , we just need to look at the Positive Posts that are on here 😎
And Many great Posts are from yourgood self Gaye and for that I thank you 😀
You make me smile you make me laugh and in this cold weather that a good thing :-S
Once again…[Read more]
tom replied to the topic Am new on here! in the forum Newcomers 14 years, 9 months ago
Just nipped in to say Hi and Good Luck
Tom xxx
tom replied to the topic Dad diagnosed last week in the forum Newcomers 14 years, 9 months ago
Hello Tanya
Sorry to hear about your Dad 🙁
But you know your Dad and am sure you know he will cope with what this darned MM throws at him.
Bridget is correct can your Half sister help out, have you tied the Social Service to see how they can help.
Good Luck and not forgeting yourself as it is too easy to forget about you and your…[Read more]
tom replied to the topic New to Dad with Myeloma in the forum Newcomers 14 years, 9 months ago
Hi Clara
Well you have had some great advice on here 😀
And that only leaves me to say
Good Luck to you and your Dad with his forthcoming treatment:-)
Am sure it will run smooth
Love
Tom "Onwards and Upwards" xxx
tom replied to the topic surgery resulting from MM in the forum Newcomers 14 years, 9 months ago
Your More than Welcome Sylvia, and I also am waiting to have some proper sun on the back of my fat neck 😀
Not be long before we can all sit outside 🙂
Love Tom xx
jmsmyth replied to the topic Blooming Dex!!!! Again in the forum Side-effects 14 years, 9 months ago
Hi Bridget
I am so sorry to read that you are having such a rough time. The only thing I know about Dex is what I read here – and it seems to be really unpleasant. Your family and friends know the real you, so will understand that it is the "dreaded Dex". You listen to all our rants, so carry on as much as you like.
Hope you start to…[Read more]
jmsmyth replied to the topic Who the heck are you. in the forum Off topic 14 years, 9 months ago
My hubby Frank has SMM, diagnosed in Sept 2006 after blood tests for something else. Had MRI and biopsy and were told he had Multiple Myeloma. It was some time before we found out it was SMM – no-one told us. Frank also has chronic back pain but consultant says nothing to do with Myeloma – it is an old injury. I am not allowed to ask…[Read more]
jmsmyth replied to the topic This might brighten your day in the forum Off topic 14 years, 9 months ago
Brightened my day to. Makes you wonder, these highly educated people can be as thick
As two short planks. Long may it continue – even if it's just to give us a laugh.
Love Jean xx
tom replied to the topic Am new on here! in the forum Newcomers 14 years, 9 months ago
Hi Angie
A warm welcome to you, hope all goes well with your Mum's treatment.
You will know by now anything you need to know just ask 😀
Hi Clara
The same warm welcome is sent to you this is one of the best sites around so you will feel at home in no time 🙂
Love Tom xxx
tom replied to the topic Newcomer in the forum Newcomers 14 years, 9 months ago
Hi Steph
Sorry you have had to join this mad Band of folk, but a warm welcome to you and yours.
I wish you and your nan all the best for this Tuesday.
love Tom "Onwards and Upwards" xxx