Hi Karen, said it before, dread those days before clinic, just like you.
Best of luck, if you see Dr Barton say hello from me.
Hope it goes well on Thursday.
Regards
Tony F

Unfortunately, we all know that horrible time will come, let’s just hope that your consultant is thinking ahead rather than respomding to some specific data. All the best and I hope your wife’s remission continues on.

Richard

Hi, when I was having my stem cell transplant the hospital I attend have a six roomed isolation ward with private facilities ‘5 star’ there was a gent from the Middle East having a SCT, according to my nurse the whole treatment including harvest was £250,000.
Hope that helps
Regards
Tony F

Hi,

I can’t help with an idea of the cost of a SCT but your post worries me and probably a few others. After the government has decided to cut the Cancer fund and all the money wasted with more reforma, perhaps, you – the patients (I can’t, I live overseas) ought to start lobbying your MP’s or e-petition No 10. Afterall, it is your lives they are…[Read more]

Dear Helen

What’s ironing lol!!!

Hi Helen

Dog is fine just an old man the vet said,not to feed him on are rich food,but he does like smoked salmon and scrambled egg plus bacon butties.
Legs collapse every now and then,will not leave house when Slim is very ill,would not go out yesterday,but today went to beach be it all 15 minutes.

Gammon steak in a cheese sauce tonight!!!!. Lol.

Thank you,for all your thoughts.

I very seldom leave Slim now,he has to be good before I think of going even to get a paper,today the district nurse came to change his driver and 2 carers came so I popped out with the dog,he knows he has to do a super fast pooh. Lol.

I have agreed to a hospice nurse for tonight!?, coming at 10 pm going at…[Read more]

Eve, so sorry. I am thinking of you both.
Regards
Tony F

Hi all

As I am on thought I would let you know what is going on in are lives,hope it’s not to frightening but it does not seem like this to me.

Slim is on palliative care,plus we have two carers coming in 4 times a day,plus district nurse to do driver,I have back up medican and I often have to call the district nurses out any time,they work 24…[Read more]

Tom

It’s all that gallivanting and beer drinking lol!!!?

Go for it Tom,make the most of the time ,this is what every one should be doing,a bit of a rest will do you some good. Love Eve.

G&T for me please.

Hi David and all you others.

Yep am still here lol, and I wasnt an SCN ha ha.

Hope your doing good David as we are at this sunny end 🙂 yes as Jean says bloods taken last Friday and results today:-)

Bit of an update on me seen as am on the forum.

Myeloma came back December last year (i got four years remission from SCT #1) was put on Velcade…[Read more]

Hi Dick

I know,I can always remember thinking,I wish I had known that at first,we try to cram all this information in and it is hard,Slims consultant was very good at answering my questions with ” don,t worry about that” hindsight is a wonderful thing! And the best place to come for knowledge is here on this site,there is always someone in front…[Read more]

Hi Eve,

I’m sure there’s a lot of us on this Forum that are thinking of you and Slim at the moment.You’re probably as strong as Slim is stubborn but that doesn’t mean people can’t help when needed.

All the best Richard

Hi Bryn and all the other new comers that have joined this post.

We all approach the news of Myeloma differently ,we were just glad we new what it was!!!!
Then you get all these books and you are having to make choices about things you do not know anything about,you spend time reading a book,but it’s hard to understand at first.

As Dick says…[Read more]

Just to add to Martin’s post, before seeing your consultant, write down a list of questions and don’t be afraid to ask. It will all help with you understanding your illness and living with it.

Hi David

Not sure about Tom posting on forum (not on much myself) but he’s been posting on Facebook. I know he had bloods taken last week and sees consultant on Thursday. Will post on Facebook that you are asking for him. Hope things are good for you
Jean x

Holly, sorry that you have joined this club, but it is the best place for sound advice and guidance. I was diagnosed in 2012, went onto the myeloma XI drug trial! it is all tablet form! no hospital stay. This was followed by a stem cell transplant. Not trying to tell you that it was easy, but I did it, so have many others. My paraprotiens have…[Read more]

Hi David

Yes someone is trying to kill you!?, your body!

When it gets to this stage do you find it’s just something else to add to the list????
Slims was a SNCO Richard so that explains every thing,cannot see him repenting he is to stubborn!!!!

His own doctor came to see him yesterday as his dosage in his driver is very high,plus backup…[Read more]

No, no ones trying to kill you, God just hates ex SNCO’s. They kept blaspheming and using bad language to the youth in their care. You could always repent and see if he lets you off. 🙂