Hi Frances

My hairdresser didn’t want to dye my hair until all the chemo and drugs were out of my system.
I tolerated being grey for over a year but felt so ancient that I took the plunge and had a semi-permanent colour put on earlier this year.

I now have a root touch-up every 3 months or so and can honestly say it did me the world of good both…[Read more]

Hi Fiona.
I was put forward for an Allo over 2 years ago because I didn’t respond to any treatments. At the time it was regarded as a matter of urgency. A match was found and detailed blood analysis was done. Unfortunately the match wasn’t exact and I was told though the mortality rate was 20% in this case I’d probably not make it out of hospital!…[Read more]

Hi Maureen

You did a good thing by getting a second opinion ,life’s to short to waste time with stroppy consultants!!!

If Andy can get 22 cycles plus some people get a lot more then it’s a good thing,cyclophosphamide knocks the cells but at a price???? Dex seems to enhance the other drugs like Revilimid

Good luck on your journey. Love Eve

Hi Fiona

Two years is a long time in the Myeloma Bubble,time for new drugs to come on and advancement on ideas,never forget everything is just an opinion!!!!

The say you have to put your trust in someone,put your trust in each other Philip to make the most of what every lies ahead,and never never give in,and you Fiona to make sure every day is…[Read more]

Hi cancer kid, otherwise known as Don. What a wonderful outlook on life and death. I hope that you are considered an inspiration at the hospital, if I had to be parked up next to anyone in hospital I would choose you, a laugh a minute, bet you keep them on their toes.
Good luck.
Tony F

Hi Chrissie, funny how you get conflicting advice from all sorts of areas, I was told definitely not to drink green tea! So who is right? Wish I knew.
Still life goes on!
Regards
Tony F

Nothing more to say Don, I wish you all the best for the future.
Regards
Tony F

Hi Don,

Crumbs, what a time you have been having, hope all goes well with your keyhole surgery on Monday.  You must be feeling quite battered by everything that has been happening to you.

I too love the humour, keep positive, medical science is amazing these days.

Best wishes

Karen

Hi Steve,

My GP was great but it is for sure a waiting game as you go through all the tests.
What my GP initially said was that every answer raised another question and this may be where you are in your journey right now.

I wish you well.

( I emailed the webteam about the tradestore advert as it looks to appear on lots of posts…inappropriate…[Read more]

Hello Stuart

Just popped in on Fiona,s post to say hello! We met at the Marsden by the car parking machine that eats money !!! Lol

Slim is now on Palliative care,the Velcade worked again,but blocked arteries were the on going problem,which resulted in other issues.

Sorry for taking over your post Fiona,hope is a wonderful thing just keep…[Read more]

Hi Susie,

I don’t live in your area, but is there a support group near you? Might be how you could talk to other people using the same hospital team.

Karen

Hi Maureen

You are right to get a second opinion ,you do not need a stroppy doctor,Slim has always had the cyclophosphamide and Dex combination,you need a hospital that is able to tweek the treatment to suit the person.
Better to get a second opinion in the early days,I would look up to find out more about the hospital and consultant,you do need…[Read more]

Hi Helen

Good to know you are doing fairly ok,may be pomilidomyde will be the one for you!!!
Slim did well using Velcade second time round,knocked to 10 percent on 3 cycles,the platelets and artery blockages were the problems.

Once he realised what was going on,had an impact,but just wanted to get home,did not want it to be this way,but the…[Read more]

Fiona

You have had one of the best experts in Prof Morgan,Slim had Faith Davies,but sadly both going to America in July!!

Just sent an E Mail to Sharon thanking the unit for all there support.

Andy was on Revilimid for 22 cycles ,Slim only got 4 cycles as it knocks bloods to nothing,but Andy is the better one to consult.

I think the…[Read more]

Hi Fiona

Children never say much,and I personally think we do not give them enough credit as often they know what is going on,but do not want to upset mum and dad.

Matty,my grandchild died two years ago and his sister is still going through therapy,it’s not an unmentionable subject,but both siblings have problems on a day to. Day basis.

Looking…[Read more]

Hi Fiona

It does sound if Philip is high risk,they use this term when treatment works well,but starts up again as soon as treatment is finished,which does not give you much time free of treatment,

We all hope for remission,and not to be on pills all the time,all of this is a gamble at choosing the right drugs,as you know in Slims case it did not…[Read more]

Hi Karen

I don’t really know if I am coping well. It is such a devastating thing to be told you have cancer. I too have the thought pop into my head every day. The Consultant told me I was lucky because I was picked up early through routine screening and he sees people who are symptomatic and with kidney damage etc and in a much worse state than…[Read more]

Hi Helen

I sent an E mail to you!,So my question is are you alright????,or just making the most of this beautiful weather.

Slim has had another spell in hospital,he comes home today!!!at peace with myself,would have liked ,the hospital to forget about ticking so many boxes and consider the patient and carer before they feel the need to send in…[Read more]

Hi

Myeloma has a major effect on carers,it is wise to know what to expect as the years pass and learn to come to terms with it,as the years go by you do learn to accept and come to terms with your husbands illness,so try not to look to far ahead as nature will take it’s course and as time goes by acceptance and a form of peace follows.
On a more…[Read more]