Well done Ellen, congratulations to you and the whole team, really well deserved.
Regards
Tony F

Congratulations Ellen to you and all the team. A well deserved award

Regards Jean

Hi Maureen saw the registrar and she was happy with franks bloods. The MRI results were not back (he got it last Wednesday) she said that in most cases it’s a good thing as if there was something wrong the report would come up fast. She said she would phoe with the results as we are booked to go away next Thursday and I want the results before I…[Read more]

Morning Rebecca

Not sure who will be doing the BMB Dr J did the last one and it was Ok ? Helen done two on me and I had one done in castle hill and that was the worse one .

As for the PN so far its not a problem ? I feel something but nowt to talk or write home about it was worse on my CDT just got rid of it for the darn MM to kick back in again…[Read more]

Hi Sarah

Am sorry i have no knowledge of the regime your Hubby has been put on just wanted to wish you both well on the road to remission.

Tom Onwards and Upwards  xx

Hi June

Sory to hear about your relapse,

had my CTD and Stem Transplant in 2009, but it kicked back in last december.#

I just had my Velcade (Cycle four week three)  I have Velcade, Dex and Zometa.

I am doing great with it albeit tired a lot but I listen to my body and when it tells me to sleep I sleep Ha ha.

I asked my Consultant Dr Jalihal…[Read more]

Hi Graeme

Not a problem, I found out that it had come back after having my regular bloods done, but in reality am sure my wife and i had known as i had lost weight again and that for us was an early indicator.

Bearing in Mind all MM patients  differ in how they cope from one to another even when on the same treatment that said I had to go on…[Read more]

Great news Maureen. Always boosting to read. Glad you had a nice break. We are odd to consultant tomorrow. Really hate it. Always scared of what she will say
Take care
Jean x

Good news about the Velcade. Any sign of Neuropathy yet?

|Well Good Folk, my tip for the dreaded Hiccups  is as follows :::

Fill mouth with water, put fingers in your ears (so you cant hear) and then swallow slowly SLOWLY.

Good Luck it works for me when i get them on Steroids and even the my family and friends everytime

Tom Onwards and upwards xxxx

Hi Lois

I have one or two

Hiccups My Cure when you get them ::: fill your mouth with water, place fingers in ears to block them, then swallow slowly till all water has gone, (works for me every time)

surround yourself with nice people.

be honest with Family and friends with how you feel, honest it helps you and them cope better

Listen to your…[Read more]

Hi Susie

Sorry in my late reply and am sorry I cant help as so far i have a little bit of back pain but its (or so am told) arthritis ???   am sure your bloods will tell your Consultant if the Myeloma has kicked in and my advice would be to talk to him or his secretary and ask for more bloods to be taken and let them have a look.

Good Luck and…[Read more]

Hi Graham

Sorry for the delay in my reply, but a warm welcome.

I am age 58 now and had my treatment CDT in feb 2009 leading up to my SCT in December 2009 was in remission and drug free for four years,

So what you are going through is a doable but you will have to listen to your body and when it tells you to rest rest its the only way.

My…[Read more]

Hi Keith

Well done you are running nearly 🙂 as for the weight loss mine was a fair lot but my Dr (GP) would have told me that should be my normal weight ha ha.

as for hunger am on it with the Dexam afraid but al cope with it and start to cut down. keep on going like you are Keith

Tom Onwards and Upwards

Hi

I would agree with Rebecca,I think it is very important to know at least the basics in terms of bloods and results of test,so this has been my job as a carer,but saying that I do not always tell Slim the whole facts unless he ask me.

As time goes on other factors come in to play,that may effect your body,in Slims case it was a blocked artery…[Read more]

People come, people go, the good thing is that their knowledge is normally past to other team members and with their knowledge and experience, research and innovation continues to carry on. There is always a feeling of something lost, a vacuum, when a highly prized team member moves on but that can often lead to an even more capable person taking…[Read more]

Hi Rebecca,

I believe that a steep drop at the start of Velcade followed buy a flattening out of the curve is normal. As for the hair, I have a simiar thing, I was before chemo blonde/light brown depending on sun bleaching. I still can’t work out what colour I’m going to end up. My stubble gives me a black moustache and blonde beard.

Hi Rebecca,

I haven’t had a BMB. Here in Germany they want to do it at 4 weeks post SCT, I said no and pointed out that in the UK it is done at 100 days. My consultant said that in the UK they do it properly! So it has been delayed. I still haven’t one because my blood indicators are preferred by my consultant as she believes they give a more…[Read more]

Hi Rebecca,

Interesting that your consultant hasn’t told you your IgG figure. Are you MM type IgG- Kappa? It may be that you may be type IgA for example or don’t secreet proteins and so they base their staging on the light chains. Watching and waiting is along the lines of no news is good news. I still have the bone pain, the breathlessness…[Read more]