Hi Vicki and Collin

Good to see you are still going strong,plus started having holidays!!!if it was me,you would not see me for dust,although I realise things are different for everyone. I suppose it was because are life was one long holiday before Myeloma,or should I say it was just a way of life????

Make the most of what you have got!!!and I…[Read more]

Hi Everyone and thank you so much for replying… Things are certainly sent to try us!!
I have already posted in another forum the following:
My consultant paid me his daily visit on Thursday last week and advised me that I would need to have a hard think about which way I would like to go for the future… He could offer me a double stem cell tra…[Read more]

Hi Vicky and Colin

Your wayy too kind I just do what I feel is best, not just for me and mine but all of us Mm folks, as I have to admire to being a iccle bit selfish

Hi David
Sorry your SCT hasn’t been the success you/ we wanted but I have heard that it can get there in time ?!, good luck with the Maintansnce regime and hope your soon into remission.

Hi Keith

Well hope the throat gets no worse ??, gosh you are brave staying at home I was pleased I was in hospital during all mine and am pleased I will be…[Read more]

Hi Mandy

The news is not good,but from previous post you new this was going to be that way,Mandy you had no remission so you are high risk and it’s not great for people in this situation, you have good things on your side,you are young enough to have a back to back SCT,you have a family to keep you going,this is all good.

As for lying in a…[Read more]

Hints and tips. I think the following works for us.

Forget career and materialistic stuff, focus on the truly valuable, for me that’s family and friends.

Don’t let it rule your life, think of the dog wagging its tail, not tail wagging the dog.
Plan. What you want to do, what you need to do.

Accept you will need lots of rest, don’t fight it, as…[Read more]

Hi Jo

Lovely to hear from you.

I miss the holidays as well,but it is out of the question here as well,I did think about trying to book a break in bournmouth at the hotel for cancer patients it’s something to do with the Mac Milan site,but it’s not the sought of holiday Slim wants,in his mind he thinks we can still go in are Motor Home,but with…[Read more]

Hi Helen

Ye the Dex has it’s bad bits also lol, ye but I can’t knid of later in the day as I am at work and what will my gaffer think lol.

Yes it would be good to have SCT over and done with and recoupe in the warmth of the summer, mine was winter in 2009 and it weren’t good cos I really do feel the cold now.
Do the race is now on and we are off

Hi Andrea

Well good luck with it I was on CTD in 2009 and had to pack in work half way through my third 28 day cycles as I was wayy too tired by then had about a year off work that let me have my SCT in December 2009, got four years remission out if that. Just take one day at a time it’s a doable but it has it’s moments stay strong and you will…[Read more]

Hi Keith
Yes the Dex keeps me awake but it will only be for last nite and the Velcade (if it’s same as last five lots) and will need aka ram to wake me up.

The mouthwash like David said should be supplied by the hospital and don’t forget use it near as much as you use the loo and some. That extra extra use helped me no end.
Good luck with it…[Read more]

Hi Jean

Good for you,keep in that frame of mind,never give up,it will take you both a long way,.Eve

Hi Keith

Quick one!!

Get some chlorpromazine tablets from your GP,they stop the hiccups, Eve

Bloomin half post again but am sure you all get my drift lol xxxx

Your all more than welcome and you all are my inspiration, it’s not easy comming onto a site like this Mm am sure but for me it helps reading your good posts and we have many on here that are Onwards and upwards who also Vabyte and do whatever it takes and also know that every day is a gift.

So you all keep me going also

Morning Helen
As you can see by the time of the list I had my Dex yesterday lol.
I think you would beat me if ur July but am gonna race you anyways it gives us some thing to look forwards to dunt it.

I would think for me more autumn early winter for mine beds permitting.

Now the race us on

Helen
Do you have an idea when you will be doing yours ? Have you done the harvest? I forget too much these days so forgive me if you told me ha ha.

I am building up to my 2nd transplant all being well this year.
Had first in 2009 so remember what it was like and don’t have a problem doing it again as it gave me four years drug free and that…[Read more]

Hi Keith
And all the best for you, don’t forget use that mouth wash like it is going out of date I did with my first SCT in 2009 and South was not too bad, am due another one this year when the Velcade sorts the Mm out.

One day at a time Keith

Tom onwards and upwards x

Hi you all

Don’t know where the time has gone ?? Moved home in December (13th) and it’s been all go one way or another.

Anyway my treatment”…… On my third week of my third cycle and all doing well, just feel tired more than I used to but still manage to clock on at work and go out for a pint or three. Sleep like a log now except on my Dex…[Read more]