Aww and here is my bloods, tell me what they look like lol

lol. My blood markers were at the start of Velcade …….
Hb…13.4
WBC..4.9
Plts..2.50
Neuts…2.58

Then after 3lots of Velcade it is……

Hb…128
Wbc…6.0
Plts….191
Nuets….5.4

Not sure where the Dec point should be as I have one middle front and back on these lol.

Hi Andy
Well done on that beer, am sure you have seen my photos on face book from Sunday afternoon I had more than the one started at 12 and went home (was taken home to be fair) at 5.30 ish lol

Enjoy more beer as the weeks go on and I will help you at Scunny lol

Love to you both

Tom onwards and upwards ..

Certainly a positive for us following behind you to aspire to.

Hi Wendy,

Don’t panic, you are going through the same emotions as virtually everyone else on this website has had. The good news is that it’s been spotted so it means they can treat it sooner. Have you read up on it yet, if not do so but be wary of everything you read on the internet. As you’ve probably been told, MM is such an individual desease…[Read more]

Had a bit of a set back this weekend – nothing major so far. Our daughter has had a cold /cough for the last week and up until Friday I managed. Then a cough started , still there Saturday but no raised temperature. Yesterday my voice became hoarse so my wife was concerned so she phoned the hospital. So far they believe it’s viral, I need to…[Read more]

Read the last couple of posts, Andy has hit the nail on the head. Drugs are available if you are willing to pay and take the risk – after all you can get any drug that’s available in another country if you are willing to pay.

Mark, you’ve raised a relevant point but I would suggest that the party your MP belongs to may affect his response. I…[Read more]

Hi everyone
I’m back on the beer whoops I mean Pomalidomide started again Tuesday. My neuts were 0.7 on Monday yeahhhh.
Had my bloods checked Friday and my neuts were up to 1.2 which is high for me. So went out for a celebratory drink last night.
I’m expecting my neuts to drop as I get further into my cycle but hopefully not so far that they need…[Read more]

CDT is used for initial front line treatment because it is very effective. Also a cheaper option I must admit. Velcade is not a wonder drug it has serious side effects and it is also considered to only give short remissions. Just because drugs are new doesn’t mean they are more effective than established treatments.
In the USA you get insurance…[Read more]

Good news Scott, It’s not much fun but as others say it’s doable. Hope it goes well,

Richard

I think there are two issues here, 1st the drug companies do have an almost monopoly on drug pricing and do make big profits for shareholders. What you have to remember is that a lot of the big institutional shareholders are pension funds and insurance companies. The pharmaceuticals pump a lot of money into peoples pension funds.

Next not…[Read more]

Right, just come back from the hospital, they did blood and they show my white blood cell count is up to 3.2, just another 0.8 to go and I’m in the normal range 🙂 Doctor was very happy, I can relax my diet a bit but still have to continue with mouth wash and a drug to reduce mouth infection – not the dreaded orange ampho stuff fortunately.…[Read more]

Hi there, sorry you’ve had to join us but at least you are better informed than many and gone through the trauma of a cancer diagnosis before. My wife tends to read and research everything whereas I don’t worry about things I can’t change. She thinks I’m just a bimbler but I like to think life is too short – especially now – to worry about…[Read more]

It seem that different hospitals have different ways of doing a SCT.
I had my hickman line put in on February 8th and was let home the same day. On February 9th I went back for the Melphalan cocktail, was kept in overnight and received my stemcells back on February 10th. Again, I was allowed to go home that evening.
I didn’t go back into hospital…[Read more]

That’s good news Ann, I’m surprised they will let him out, the side effects from the Mephalan are not nice. All the best for the next few weeks.

Richard

Hi Ang, Carol.

Glad to hear you made good progress Carol. I had the same and still do with the dripping nose. My wife won’t let me out without a face mask and that just exasperates the problem. Have to throw away the mask after a few minutes because it’s sodden. It was a couple of days at home before the runny nose improved but I still have…[Read more]

Hi Jeff,

I don’t think the LRI is isolated, it often takes me upto 2 hours to wait to see my doctor at Mannheim. I don’t know what they do at the LRI but here I arrive, within 30 minutes I have blood taken and they wait for the results. If it’s just white cells, platelets and haemoglobin, that’s done in a couple of minutes but normally they do a…[Read more]

Hi Everyone

As some one who is a carer to my husband,and over a period of 3 years,and going to are local hospital 15 miles plus Kings in London 86 miles,now Royal Marsden in Sutton just on 100 miles,double with return journey I know a fair bit about it.

As Ellen says unless you are on Trials treatment by NICE is adhered too.
If your local…[Read more]

Oh I think most patients with Myeloma have a multi disciplinary team working for them – I know I have. From my specialist nurse up to a Professor at another hospital. I’ve seen them all at one time or another too!

Andy.

Hi Jeff.
From my time on this forum the question of the best hospitals for treatment does come up occasionally. I know Dia moved from Wales to Nottingham because he felt it was in his best interests to do so. The major problem is for people who don’t live near a “big” hospital they get seen at their local hospital but they may not have a “big”…[Read more]