Hi Trigger

It is very much an individual choice,and it is your mums choice,I would advice that you get a second opinion ,65 is not old.
You do not say what Myeloma your mum has,or what damage she has,or if it’s effected her kidneys these are very important in any decision she makes.

My husbands consultant advised us to go to Kings and speak to…[Read more]

I don’t think the medics base all decisions on cost even though the bean counters will want her consultant to. If she is responding well to chemo and the consultant believes she is going to have a full or almost full remission then SCT might not be necessary. Only your mother’s consultant will be able to make that decision. The other point is that…[Read more]

Trigger I forgot to mention after 100 days he had all tests including PET scan and is in complete remission

Jean

Hi Trigger

Sorry to hear bout your mum. Others will be along who have more experience than me but I will tell you of Frank. He had his STC in Match 2013 one month before his 70th birthday. It was no picnic but he got through it. He’s also like your mum “healthy”. With Frank it’s only now he is coming back to himself. Even though we still had…[Read more]

Now half my post is missing ???????

Hi Maureen and Ian

Pleased bloods are good it’s a step in the right direction, I hope it’s a nice bottle of red you are having

Steph’s make fantastic wives and spotters. My wife is also called Stef and she always spots things before I do and knows what’s going on before most others. I’d probably be dead without her. So here’s to the Steph/f’s out there.

s

OK, So I went to the local Chemist here in Germany and asked for a face mask (Gesicht Maske). The first chemist said they didn’t have any and suggested I tried the German equivalent of Boots. They had none so I went to another Chemist and they had loads so I bought 10 pleased with myself. This was in October prior to a trip to Paris. Now I’m back…[Read more]

Hi Judy
Yes I do take them in morning about 5am but it still makes me lose a few days sleep to be fair and am sure I catch up on a Thursday lol

Liz and Kev

Yes I am still clocking on so far will continue until I just cant do it any-more ?

Have a great week end you all

Love Tom Onwards and upwards xxx

A kiddies dressing up face mask!
Maybe you lost something in the translation! can’t wait to hear what you were given.
Tony F

Having originally come from Leicester it does not surprise me that the hospital has invested heavily. The whole city over the last 20 years has invested heavily in infrastructure and culture. I remember as a teenager / 20 something, we always went to Nottingham for a night out but now, knowing the violence and trouble that regularly happens at the…[Read more]

Thanks for that Tony, will keep you posted.

Richard

Hi all

Well I gave had two lots of Velcade and two lots of steroids and doing well at the moment.
Just had the sleepless nites with the Dex then the fatigue at the end of the week so it’s all good.

Carol looks like your doing well with it good on you,

Mavis yes on for another SCT at the end of this treatment it’s what I said I would do to be…[Read more]

Well done on the SCT. That’s the rough bit over and finished. I hope the following gives you some encouragement ( not that you need it!)
Tomorrow is my one year anniversary since my SCT, I am on the myeloma X1 trial, but I opted for no maintenance drugs. I visit the clinic every three months and today was the day! Since the SCT my pp has always…[Read more]

Hi Ang, we know about stress for carers, before I went in my wife didn’t sleep properly, was verytired, worried sick and had a lot to do. Now I’m back, she slept well last night – can’t think why because she had to share the bed! Anyway I believe what is needed is as much help for the carers as for the sufferers because their stress levels are far…[Read more]

Hi Tom, looked at your bloods, now in my amateur status the HB is heamoglobin – red blood cell count. PLTS is platelets, they have to be in a certain range to ensure your blood is not too thin – doesn’t congeal or too thick – can’t be pumped round by the heart. The important one is the Neuts – white blood cells I believe average is about 4, below…[Read more]

Me being a cynic I see IT specialists as the modern Alchemists – They promise Gold and never deliver. Cost an arm and a leg as well. ha ha.