My husband is 70 and had SCT March and is coming along. His consultant made his day when she toOld him he looked like he was mid 50’s lol

Hope things improve
Jean x

Hi Chris

Glad that things are going good for you. Frank had SCT In March and like you he’s going through th re-vacation. He’s had second lot and brought a lot of material to read about the vacations. We did laugh as all the points started “if your child shows ..,,..” He’s 70 so we don’t know what a 70 year old would experience!!!!!!

Hope…[Read more]

Hi San,

If the hospital is talking about a nursing home then they are probably being realistic as well as optimistic.Surprised you posted in ‘end of life and grief’, your mum has not gone yet. I can read your concern and fear in your post but she might just hang in there for a while. You say you haven’t visited because you have a cold, perhaps…[Read more]

Hi Maureen

I have been taking Manuku honey for about 5 years and haven’t had as much as a cold. Hope I Hevesy spoke too soon. Frank won’t take it as he says it’s too sweet. Hope Ian is improving

Jean

Hi Tracy,

Your emotions sound true to form, a number of us felt useless, a burden to others and in limbo, like you, I couldn’t slow down, my wife kept telling me to rest, we had a home help but I ended up doing things before she came to help – not very helpful but I had to do it so that I still had a sense of self worth.

You haven’t said how…[Read more]

Follow Tony’s advice. The survival rate stats are historichal, whilst giving an indication, they don’t always take into account modern developments in medicine and care, there will always be a time lag, secondly, the illness is seen as an old persons illness, how many of those who were diagnosed with MM would have died within 5 years anyway?

You…[Read more]

Hi, I was told not to bother with taking supplements, just eat a good healthy balanced diet, veg and fruit especially. Told not to drink green tea!
The specialist nurse at the hospital should give you a diet sheet, my wife likens the diet to a pregnancy diet?
As for survival stats, ignore them, I guess we are all in the lap of the gods.
Did I read…[Read more]

Hi Caroline, Carol,

Your both moving on, I suppose you can’t really stop it even if you wanted to but it will be over soon enough. Not long to the new year and a new start. – PMA

I’m sure Graham will have given up his stemcells by the time you read this, hopefully it went smoothly. Let’s hope the next stage happens soon.

Hi Luciano

Sorry you have been diagnosed with smouldering MM. My husband was diagnosed with smouldering in 2006. He had STC In March this year. He is improving a little every day and in September we went on a 16 day cruise round the Med. When he was smouldering we made the best of things and went travelling quite a lot. When Frank was…[Read more]

Thanks Andy for passing on the post. I too was emembering Dai yesterday and thinking Bout his family. He kept popping into my head the oddest of times. His sister Angie posted a link to song on Facebook that was composed by a friend of Dai. If you get a chance listen to,it it is beautiful. He will be sorely missed but his memory and spirit will…[Read more]

Carol,

You are following the same path as so many others. They all say it’s hard but doable. Just concentrate on the benefits after SCT – Positive Mental Attitude. You’ve still got to see your granddaughter in the New Year.

I am sure you’ll be fine.

Richard

Bah Humbug! lol

Morning Caroline,

Nothing like knowing there’re others in the same boat, we can learn so much off each other. Now you need to keep us who are following in your footsteps posted on your progress.

Richard

Hi Stuart.
The new web site looks great.
Now the bad bit. – I find scrolling through the posts on the forum very slow and it’s very difficult to edit a post. I’m using an iPad. I haven’t tried it out in my PC yet though I will give it a go when I’ve dusted the cobwebs of that ancient piece of machinery.
I’m not blaming your work just wondering if…[Read more]

Hi Scott

Yes, I’m still taking my daily curcumin and I still believe it’s helped me over the past three years of remission. After a bad cold and chest infection last Christmas, my light chains appear to have increased at a much steadier rate over the last year. Although that was my only cold for three years, with no other infections, which is…[Read more]

Hi Andy and of course the family and extended family of Our Dai.

Yes I spent a lot of Today thinking about Our Dai and the strength,wisdom and knowledge he passed onto to us all even when he wasn’t so well himself.

That and all you others that helped and are still helping is a great strength to us going through our treatment.

Our Dai will be up…[Read more]

Hi Angela
Well you ought to tell my young bride to listen to cos she dunt ha ha.
Well am sure you have seen my post telling you I am going back on treatment, but I have had a great four years and am well rested for the next road to remission am just taking a bit of a detour

Hi Andy,

Today was a good day for me with having the Stemcell collection but Dai was always in the back of my mind. Unfortunately there is no end to those being affected by this dreadful illness but the likes of Dai have made it easier for many of us to come to terms with the illness and gave us hope about the outcome. He will forever be in my…[Read more]