What a sad situation to be in for the consultant let alone the patient, I would of thought the majority of people go into the medical profession because of a desire to care and look after others. It's a mad system that then makes these same people question the level of care they should give. Who can benefit from it? Resources are finite but surely…[Read more]

Hi Helen

Good to here you are being pro active as young Tom would say, I would gladly have a bet with you,they will still make you wait,they know best attitude !!!!!

The Velcade takes so long because it ends up going to five different departments and if there not on the ball,or forget to send it to next department,!!! And as you say they…[Read more]

Hi Margret

Welcome,
Bonefos question I cannot help,but I was surprised you have been a drug so long,you do not give a great deal of detail,have you been Diagnosed with Myeloma or are you looking for an illness for symptoms????

With the drug you are taking plus quantity and length of time,it must have some effect,why have you been on them…[Read more]

Hope the PAD goes well, I was on PAD but then put on Revlimid despite it being known to stress the liver. All suspended now – see my new post in 'treatments'.

The PAD made me very ill for a week after but compared to the Revlimid it was the lesser evil I think. As for funding, the attitude here is so different because the funding is different.…[Read more]

Thanks Tom I appreciate that. Will order paperback

Jean

Hi Tom

I had listened to an article on diet on radio 4 by a presenter who has MM and they talked about Mediterranean diets (Wendy posted link on Facebook ). So when i read your post i was very interested so I went on to Amazon to order the kindle version of it and this was the message that popped up

This book is currently unavailable…[Read more]

Hi Maureen

Good to hear from you,it will do you both good to get away from hospital,I use to sneak Slim out a lot,as he hated the hospital and they had no day room,We use to spend a lot of time in the chapel .

I married Slim after 30 odd years together,are anniversary is 24 May married in ITU,we tried for 14 February but Slim was in…[Read more]

Thanks Tom.. I have been using the mouthwash also like its going out of fashion because mouth ulcers is something I have always suffered from and that scares me hence I also use the mouthwash and the Nystatin. Right nurse has give me a sleeping tablet as I haven't had much sleep the past 2 nights.. good night everyone
Mandy x

Mandy it dunt matter what junk you eat it puts the weight on before you lose it.
Can I just remind you to use Mouthwash please use it every time you go into the bathroom, every time you have nothing to do and every time you get up to walk around the room, use it as if its going out of fashion and hopefully like me you will have little mouth…[Read more]

Hi Jo

Yes we can wait as we know its going to be ok 😀 just means we will have a weekend of celebrations 😛 and that can't be bad can it he he.

Hope your still doing well.

Love Tom xxx

I am eating a lot but mostly all of the wrong things – I have developed a terrible sweet tooth – got to stop it I dont want to gain the weight… I will keep you posted about the x-ray – fingers crossed I am right and the doctor is wrong. hehehe, Mandy x

Thanks Tony.. thats very reassuring – about the weather at least.. haha. I love the outdoors and have such a happy social and family life I am not going to let anything take that away from me and I am going to be a Nanny in October so thats something worth fighting for 🙂 Its also my 50th birthday in October so that 2 good things to get better…[Read more]

Hey Mandy

Don't rush that poorly bit lol, it will be here before you know it. Hope you are eating as much as you can and some as soon you won't want to eat.
Hope your X ray is ok, stay well and strong.

Love Tom Onwards and Upwards xxx

Hi Mandy, hang on in there, sounds as though you have the right attitude to get through it all, regardless.
I know where you are at, was there earlier in the year and am ok now, even the hair has come back. Any hardships are only short lived, just think when you get home the weather may possibly be summer, sunny and warm, and you can recoup in…[Read more]

Hi Gill and Dave

It isn't a walk in the park but its a doable, I had mine in Dec 09 and am now still in remission and doing great thanks to my SCT.
Would I do it again ? In a heartbeat.

Good Luck with it all.

Tom Onwards and Upwards xx

Hello Gill and Dave. I am 68, was diagnosed end March 2012. Had lenalidomide, cyclophosphamide, dex and ranitidine for five months, no further drugs until December when there was an aborted attempt to harvest stem cells ( got an infection ) harvest restarted mid January with the transplant beginning February.
Like you Dave during those months…[Read more]

Hi Gill

I was diagnosed last October, I am in hospital now having had my SCT today. I was on the clinical trials prior to this and I must confess the side effects I suffered were really rough. My feelings are what choices do I have so after talking to myself, reading other peoples journeys I decided I didn't really have any other choice. I…[Read more]