Hi Helen

I am the carer,and cannot blame the dex8-)
Hospital waiting times,grrrrrr organise yourself s if I started,I would need more than this topic. I found it horrendous ,far easier to do a 60mile round trip,specially when Slim was not feeling to good,I have been known to take Slim home after Velcade and go back on my own for tablets…[Read more]

David what a lovely photo 🙂

Love Jean x

Hi Vicki and Colin
Yes I am ready for "the cure" ???? yes I am drug free but it's the same as always when it comes the the bloods,the worry and am sure the stress, but hey ho it has to be done.

Stay well you all.

Tom Onwards and Upwards x

Hi Tony and David

Spring might be late this year,but its worth waiting for after such a long time not being able to enjoy it.

Slim was in hospital for 22 days first time, I use to drive with windows open along the A2 on the way to hospital at 8am back at 9pm,so spring passed me by.the next time Slim was in Kings having SCT,good hospital,but…[Read more]

Hi Dai and Chris
Dai is right I've been through most the standard and some not so standard treatments to no avail. My PP's stubbornly remained in the mid 30's. The criteria I was given at the start of treatment, when my PP's were 50, to get to SCT was at least a 50% reduction in PP levels. So that would of put me in the lower 20's bracket. Anyway…[Read more]

Wonderful, how right you are about the appreciation of the smaller things in life.
Glad that you were able to do it, doesn't it make you feel good!
Regards
Tony F

Dawn.
So sorry to read of your diagnosis, not the place that you really want to be!
People here are all in various stages and are more than willing to share help advice and experiences.
If you feel like it let us know your treatment, don't wish to pry but maybe we can be of support.
Regards
Tony F

Hi Dan

That's wonderful news,give your self a pat on the back,you are doing wonderful. Please take time for your exams ,they are your future and very important,make sure the appropriate authorities know your problems,it,s important.

There is no magic formula ,the general feeling is your dad should get 1/2 the remission ,but lots of factors…[Read more]

Dai I have said that Many a time 😀 that I haven't and never did have it it was all a mix up Ha ha.

But I also feel that I am doing so well (drug free) is because I had enough Stem Cells for two transplants BUT they put them into three bags and not two :-S , so Saffy the consultant gave me the three bags, twice as much as I needed ? so do you…[Read more]

Hi Christine and Chris
Well I honestly cant add to that excellent post of Our Dai's its spot on, no rush nice and steady, you both will have to learn to change with the MM, but always always fight it.

Love tom Onwards and Upwards xx

Hi Ann

Sorry in delay in reply :-0

I think my wait was because my Dr missed me and sent another patient when it should have been me (he got told off though 😛 )then I had to wait for a bed to be free at Hull, as you know it all worked and am still kicking though not as hard 😎

God Luck with all yours.

Love Tom Onwards and upwards xx

Hi Skyblue

I am sorry to read your Grandma has been told she has MM and I hope the treatment is kind to her.
I also think this MM stuff is passed on I have told my three sons if they have bone pain go to Dr and tell them about Me and Ask for Blood tests.

Good Luck to you and your Grandma.

Love Tom Onwards and upwards x

Hi Helen

Yes its work but not hard work to be fair as I have been looked after like a long lost Son at my workplace.
As for driving yes I did and still do after my SCT in 2009 I had to go back to hospital every week for bloods and a check up and I drove to and from Hull 😀 , even after my BMB at 100 days I took a Friend with me to drive home…[Read more]

Hi Sarah
Gosh you have your hands full I can see, and am sure its stressful for you all.

I hope you take some time out for yourself?? as you will need it.
Congrats on the New baby they always bring an extra sparkle to people don't they.

Keep well and say Hi to your mom for me.

Love Tom Onwards and upwards xx

You've asked a very interesting question there Chris.

When I was first diagnozed, my PP's were 46. After 6 rounds of CTD they dropped to below 1, or what the specialist called a "trace".
After SCT, they were still showing as a trace. 15 months later…you've guessed it, still a trace.

At first I wondered if it was worth going through the…[Read more]

Hi Eve
Just thought I'd do a little update whilst I lounge in the sun by the pool 😛
I'm in cycle 15 of RCD now although it hasn't banished the MM it has controlled it for now. Thalidomide didn't work for me, well nothing worked for me, but Revlamid has dampened it down so there's no reason that it shouldn't have the same effect for Slim.…[Read more]

Just want to add my best wishes Geoff take it one day at aime

Love Jean x

Best of luck with your stem cell transplant, had mine in early February, this year, feel great now! Best of luck.
Regards Tony F

Hi Helen

Slim had 6cycles he was much better in himself. On Velcade,hated the messing about between bloods and treatment,we did try to vary it as spent an awful lot of time just waiting round eg bloods 9am Velcade 3pm never,never on time,also once a month tablets late as usual by hours usually 6pm. Towards the end went in at 9am took slim…[Read more]