Hi everyone, hope you are all feeling ok at the moment. Well I had my operation last week and I must say it was a great success, I have no pain from the fractured vertebras at all.
But, would you believe I now have pain from muscle spasms, the hospital have given me some diazepam to help relax my muscles, they also increased my oxycodone to 110…[Read more]

Hi Dai

Well you are wrong about one thing,I am not sorry I asked!!! I hope you have a really good summer,I know how much I miss about our life before MM took its toll and living on memories is not the real thing,2. 1/2 years for us,with six months remission when Slim was not great is not enough. You are a lot longer and like us whole routine…[Read more]

Hi Dai

How are things going!!! 10 days is a long time when you are waiting to see what results you will get from GCSF,do you feel good in yourself !!! Are you able to enjoy some free time away from medication!!

Spring is late this year,but it is lovely to see the blossom and flowers in bloom,so looking forward to the heavy smell of the…[Read more]

Hello Linda,

You were brave taking part in a netball match! I haven't played netball since primary school, although I remember playing goal attack for many years and thoroughly enjoying the game. My youngest son is almost 21 and he is studying sport and coaching at uni because he wants to become a PE teacher. His main sports are football,…[Read more]

Thanks for info Andy.
Hope it goes well

Tom x

Your welcome and I hope it soon heals.

Love Tom Onwards and Upwards xxx

Hi Vicki and Colin

Am pleased the Vino is going down ok, and yes the Young Bride and I had a great time, our youngest grandchild Sophie was one year old.
And don't forget we all help each other am pleased to say.

Love Tom Onwards and Upwards xxx

Hi Hawkeye

Belated Birthday greetings to your Mum 😀 same day as our Youngest Granddaughter now age One, so it's a great day all round.

Am pleased Mum is doing better.
Give her a cuddle from me

Love Tom Onwards and Upwards xx

Hi Linda

It's really good to hear from other myeloma patients who have been in remission for a long period of time and who have been able to maintain a good quality of life after undergoing chemotherapy and SCT. It's great news you were able to resume,maintain and enjoy your employment for so many years without any problems with your bone…[Read more]

Hi Tom

Well you know am on nothing so I can't help, just wanted to say hope your SCT is not delayed

From one Tom to Another Onwards and Upwards

Hi Tom
I had CTD for 6 months and am now 15 months post SCT.
I still get the odd bone twinge in different parts every now and again and have been assured that it's due to damage done prior to my diagnosis.
My PP's have remained steady at below 1 since SCT so I have no reason to disbelieve what the specialist says.

Hope this reassures you a…[Read more]

Hello The Wife

Welcome,sorry there is no name,my names Eve,and in a very similar position,except we know its back,how quickly it is going we do not know,Slim has another BMB today!!!.three months from his last one.

Please have no secrets between you,if he is in pain he is thinking the same!!!! Be open talk it is the only way to get the…[Read more]

So sorry to read about your mum, strange how mm treats everyone differently. I am also being treated at the Leicester Royal Infirmary, I have found them to be very thorough and caring. I am sure that they will do their level best for your mum.
Hope it goes well for her tomorrow.
Regards Tony F

Hi Jane

I haven't had RT but my young bride (Elaine) had it after her op for breast cancer, Elaine burnt but the Nurse gave her two lots of cream to put it on it, but for the life of us we cant remember what it was called.

It might be worth a call to the place where you had your RT and ask them over the phone for advice, but 3 years is a…[Read more]

Hi firstly welcome sorry your husband is having a lot of pain. I to thought the worst when my arm and shoulder started aching,but I have started some physio and if it doesn't work they are going to unlock it with key hole surgery.
Try not to let it niggle at you I know my husband worry s about me hope you get an appointment soon.
Regards Etta .

Right, been to hospital this morning and the liver enzyme levels are going up again. The paraproteins are on the increase so the doctor has decided to go ahead with Revlimid-Dexy Chemo starting tomorrow. The Revlimid she tells me can also be dangerous with raised enzyme levels. She didn't look too happy but believes it's worth the risk – I'll find…[Read more]

Vickie and Colin

Am well chuffed to read that Colin has turned that corner 😀 I remember that turn for me real well, its a great feeling at the time and still is, still not as fit as I used to be but at the moment its good Enough for me.

Get out and enjoy the Sun crack open that Wine (later though lol)

Love Tom Onwards and upwards xx

I second that Jean As Jean says Andy you have put into writing for us all and done it eloquently (I have spell check)

I also am pleased that you will be representing us from here.
You will do us and Keith Proud.

RIP Keith

Tom Onwards and Upwards x

Andy that was so lovely written. You were able to write things that I would not be able to put in writing. Thank you for that. Andy I think you would a great representative for Keith's cyber friends at this most sad time. My thoughts and love will be with Sue and family and you and all his friends.

Love Jean xx