Hi Pat

Well I for one don't blame you getting a cleaner in and I would take the glasses off till he/she starts then you wont see the dust Lol.
Keep taking the Tabs Girl you are moving the correct way.

Love from "Dusty" Tom Onwards and Upwards. xxxx

Now, a month on, it looks like I may restart Chemo. They are changing me from PAD to Revlimid and Dexy. They are absolutely certain the PAD caused the extremely high enzyme levels in the liver (Alaninaminotransfer should be below 50, went up to 1100 at one stage). Paraproteins have stayed relatively stable.

This will hopefully begin next week…[Read more]

Hi Pat

Yes there is,I stand in amazement at people who do not get help in the house ,but if cleaning floats your husbands boat????,it's ok. I intend to spend as much time with Slim,not cleaning,less cooking and more going out.

As for depression it must come with the territory ,its the ability to recognise it,do something about it,and not…[Read more]

Hi Helen

Like you, our one son started uni 4 weeks after my SCT and the other a year later. We hardly see them now they are living away from home, until they return for holiday periods or phone us for money, help with accommodation problems or lifts back home.

You are right, you never seem to stop worrying about them. You try to offer…[Read more]

Hi Sandie

I think your mom at aged 87 is coping really well with taking her drugs and still managing to look after herself with your help. I know I would have struggled without my husband's help, especially dealing with the side effects of fatigue and bone pain. My husband had to take over all of the cooking, cleaning, washing, etc because I…[Read more]

Hi liz I went to Australia last dec 3 months after SCT my doc gave me a course of antibiotics just in case .
First flight slept most of it second one kept drinking water, stewardess were great gave me large bottles.
Just relax and enjoy love Etta ..

Hi Liz

Hope you have a brilliant time – bit green with envy 🙂 frank is 7 weeks post SCT and Frank is also looking forward to a nice holiday. He smouldered for nearly 7 years so we travelled a lot. I am a bit paranoid. We use Quinessence Synergy. We have been using it for years. Before we board flight put a few drops on hanky and just stiff…[Read more]

Hi Sandiex

Your mum should only get zometa side effects for a short while and it does work wonders with bones for a short period. Why Warfarin and not Claxane you could do them for mum they will do the same job but cost more, I would consider Claxane to be very important as chemo side effects are blood clots!!!,

Sandiex Osteo Cronosis of…[Read more]

Hi David

Have been told war horse is a wonderful stage production,my granddaughters loved it,might get to see it myself one day.

The new combo of drugs should see you through the paracetamol gives an extra dimention to any morphine drug,plus if you have liquid back up as well.Slims on combination ,just about keeps pain under control,he is…[Read more]

Good luck Scott. Hope you get a long remission

Jean x

Hi Clare

Welcome to the Myeloma club!!,patient,carer or family,I hope you get a good response to all questions.

My husband is 69 this year he had SCT after two courses of chemo,CDT plus Velcade., He only got 6 months remission. After the 100 days,he went to Kings I can assure you these top notch London hospitals,know there job,they do it all…[Read more]

Thanks Helen for the good wishes. I tried to get tipsy but with the whole family together – frank and 2 sons United supporters and 2 Liverpool supporters – lets just say it was not a quiet day :-D. I'm really surprised how well Frank is getting on. He said last night he was doing to look at flights for Malaga but I sort of side tracked it.…[Read more]

The French (known in Europe for being hypochondriacs) are very much into pill boxes for 7 days dosage and the Germans like them as well, I use a spreadsheet with tick boxes, I only tick when I have actually pulled out the ones to be taken. My wife wants me to have a pill box for holidays and short breaks.

Frank thanks you all for your good wishes. Don't know whether its a good thing or not but he is slightly tipsy at the moment 🙂 He did enjoy himself and that s the main thing. We had to leave the restaurant a little early – have you guessed – yup United were playing but he continued partying even after the draw.

Thank you all again
Love…

Hi Scott

Well a good luck from iccle ole me on this road to remission 😀
It is a bit of a "Wringer" type of treatment BUT I have to say its well worth it on this road you have been forced onto, this is now your road to remission and I for one wish you well, I went through it in December 09 and I sit her in remission and drug free so I can…[Read more]

Hi Vicki and Colin

Am sure I don't know who says onwards and upwards 😛 but am sure that "Person" is correct Lol

Love Tom oh and that Onwards and Upwards Chappie Lol xxx Have a good week you all xxx

Hi Helen

I can completely understand your comments about how much you should tell your son about your myeloma relapse especially with his forthcoming exams. Whilst I was going through CTD treatment, my one son was revising and taking his AS levels and the other his A level retakes.

The eldest son was absolutely fine with his A levels,…[Read more]

Hi David

That's a good idea, especially during the times when you have to take quite a few tablets. Jan x

Thanks for the thought. Off to the hospital this Thursday for full blood tests. If all goes well I will start again soon thereafter. As a stop gap I have to take the Dexy for the next 4 days. We wait and see.

Richard

Good luck with your SCT, the worst part about the harvest is having to lay still for 5 hours! As for the rest of the journey I am sure that you will take it in your stride, all of us react in a different way to the treatment, but you know the unpleasantness only lasts for a short while and hopefully the outcome is worth while and it leads to a…[Read more]