Well that one worked its on lets try another one Ha ha, me Relaxing in Onesie ha ha

Hope its not too much of a shock he he

Love Tom xx

Dear Keith and Sue

My Thoughts and prayers are with you both at this time.
Am sure you knew you were getting closer and I hope its a comfortable Journey.

Ellen Many thanks for the info, and if it possible to send our best to them Both I would greatly appreciate it.

Love to you Both

Tom xxxx

Hi Sarah
And Thanks (gosh I do wish I could Blush) x

I hope Life has slowed down for you now as am sure it cant all be rush rush rush? or can it?

And you are welcome
Love Tom xxx

Well, there's not a lot for me to add except welcome to a very exclusive club, membership criteria is high, if I remember rightly there's only about 4000 new members a year to the Myeloma Club in the UK and not all are on this website.

Think I'll begin the overseas branch.

Anyway, if nothing else, it is good to talk and there is a sense of…[Read more]

Hi Nikki

Frank was in the same boat. All his bloods were dood except for potassium. The kept him in an extra 3 days on a drip.potassium started to rise and they said he could go home. Frank asked was it his own body or the potassium drip that was responsible for the increase. They said it was a good point and kept him in another day. They gave…[Read more]

Hi Ann.
Welcome to the forum sorry that you've had to join us.
I was diagnosed after 18 months of back pain. It first presented itself whilst training for the London marathon 2010 I was finally diagnosed Oct 2011 – 3 days before our wedding.
We returned from a short honeymoon to our first meeting with our consultant to be told myeloma is not…[Read more]

Hi Maureen

I'm not sure what normal levels of Kappa/Lambda light chains should be for myeloma patients. All I know is that the cancer treatment aims to reduce the light chains to as low as possible. Mine were reduced from 2,200 to 45 after treatment which were considered to be good, so Ian's results at 52 also look good. What were they before…[Read more]

Hi Ann

Yes, my vertebrae collapsed whilst I was asleep but I didn't feel a thing until I woke up. I lost 3" in height and as a result have a hump in the top of my back. It took me ages to get used of my reduced height. I've shrunk to 5'1" and my one son is 6'2" – he now looks so tall next to me. Like you, I went to A&E the week prior to my…[Read more]

Hi Nikki

I was unable to eat anything and drink very little following my SCT for a good ten days due to constant feeling of nausea, actual sickness, sore/dry mouth which all combined together causing a complete loss of appetite. Even with three different types of anti sickness drugs the nausea wouldn't subside and food/water wouldn't stay…[Read more]

Hi Helen

I just remember when you were diagnosed,with a simple blood test,as a nurse you never saw it coming,you questioned yourself ,no matter who you are aches and pains are a part of life,it is looking back and thinking as a nurse,I should have seen that coming,or as Sue says hindsight .

I do think sometimes the patient can be to close ,I…[Read more]

Hi Maureen

I'm so pleased to read your husband's light chains have reduced to a low level. My CDT and SCT were covered with my husband's private medical insurance provided via his long term employer. The actual insurance cover was with Aviva. They were very good at covering all of the bills for my initial treatment.

However, when I had…[Read more]

Hi, we have a very lively border collie, I think that it is the dog that has kept me going through the whole process. As Tom said don't get overwhelmed by cleaning everything, just be sensible, I carry on just as I used to with dog, just wash my hands after stroking him, like me he's very confused by everything. I've gone back to walking him…[Read more]

Tanya

Am sure you know I am so sorry to hear about your dads Passing.

I am pleased you spent your time with him as he went to sleep am sure it was/is a comfort to you at this sad Time.

Stay well Tanya.

Love Tom xx

thanks folks all better now. 😀

And this great weather is dong me great guns

hope it lasts

Tom Onwards and upwards xx

Hey Tom

Good Luck with it I had my SCT in December 2009 and am sat here still in remission and drug free 😎

Tom Onwards and Upwards 😀

Hi Charlie and Mary

No I didn't keep them away from me but to be fair Elaine (the young bride) had to clean Sam the parrots cage out for me, but I still had a wee cuddle from Charlie our Yorkie 😎

Elaine and I are not what people call domesticated to be fair might be that's why I have done so well Lol.

Am Sure its going to be fine…[Read more]

Hi Ann

A warm welcome to this great Forum, I see you have made yourself comfy already That's Good 😀

I wish you well in your road to remission, looks like you might be going down the road I travelled, My first defence was CTD then onto Stem Cell Transplant, I have 5 sessions of CTD then waited for a spot to have my SCT and all this was in…[Read more]

Ignore my last post concerning being ok for Chemo. Had a bloodtest on 8 April prior to the chemo starting and was told my enzyme levels in the liver were way to high – 20 x higher than normal. So, back into hospital straight away where I stayed until yesterday.

The enzyme levels are still too high and they are now concerned about the MM. They…[Read more]