Hi Andy, well those Nasty's have a habit of just jumping on you don't they, one minute I was fine next walla on my back but am on my second day of Anti B's temp has certainly dropped

Hi Sarah am sorry Henry is on Anti B also its a problem we have to cope with these days with MM as soo as I felt it was clearing straight in at drs and Anti B…[Read more]

Hi jean

Ask for the reports on Skelton ex ray and MRI scan you are entitled to both ,if you find them difficult to understand ask them to explain them if you have no response take them to your doctor or find some one who can break down the medical jargon,

Has he had any ex rays done from time he started myeloma to now ???
They do not…[Read more]

Hello Jean

I know it's hard when your loved one has to start treatment. My hubby had no treatment for 6 1/2 years. He then had pain in his side which turned out to be small lesion on ribs. Radio therapist not concerned about it and did no treatment. Then some months after the consultant said it was time to start treatment. I know it is scary…[Read more]

Aw Tom wondered why you were so quiet on Face book :-S . I do hope you are back to your normal self soon. Think of your poor club – like Franks local – there profits have dropped dramatically 😀 Joking Tom!!! Get well soon

Love Jean x

Eve

Glad to hear that Slim has no more lesions. You just seem to be banging your head against a brick wall. Can Ellen or Maggie give you any advice. Franks consultant said that the PET scan was needed to detect how active if at all the Myeloma is. There is no proteins in the blood and as they had been dropping for some months before treatment…[Read more]

Yeah – Tom is back. Watchout for those nasties >:-( hope you have a speedy recovery and can get back to the vodka! Soon 😀 Cheers.
Onwards and upwards

Every day is a gift

Andy

Hi Maureen and Ian

Its good to hear of a good response but its slightly blighted with the shingle I bet.
Take care

Love Tom Onwards and Upwards xxx

Dear Tanya

I am so sorry that your dad is on his final Journey, my thoughts and prayers are with you all at this sad time.

Lots of love and Hugs

Tom xxx

Hi Gill

My its a hard time for any of us to wonder how and why any one could pass away when we are not ready for them to go, but unfortunately we can make that decision.

Its good that you have the photo's to look back onto albeit it makes you sad.

Think of the Good time Gill

Love and Hugs Tom xxx

Hi Jean and Mike

Sorry about the relapse Mike, and am sorry I cant add anything to your post just wanted to wish you both well

Tom Onwards and Upwards xx

Hi Dai

My you have been through the wars and like all good army's got some issues with supplies 🙁

Hope you made that phone call and its soon sorted out Dai.
Fingers crossed for you

Tom Onwards and Upwards

Hi Jacquie

Am sure they wont let you wait too long to get it done, the problem is bed space and as soon as on is free its booked for you.

Good Luck

Tom Onwards and Upwards xx

Hi Jacquie

No – no more chemo. His PPs were 1 when transplant happened. But i know others have had much higher PP when transplant took place. He has been home now over a week and every day there is a slight improvement. No good me telling you not to worry as you will, just as I did. What is the delay? Frank goes to Belfast City Hospital in…[Read more]

Hi Helen as the boys say he must be feeling better as he is complaining 😀 appetite is improving every day. Still not eating a lot but getting there. He had a beer and a whiskey tonight – one thing about Frank – he gets his priorities right. His daily exercise is climbing the stairs a few times a day. When he first came out he couldn't manage…[Read more]

Hello Jacquie

Frank was harvested in December and transplanted end of February. I was also worried I case he relapsed- proteins going up but consultant did not seem to concerned. Maybe someone else on forum can give you more insight into it. I hope Geoff has an easy time with it

Best wishes
Jean

That's right Helen 6 months for USA

Jean x

Hi Jean

I did try again to day,but I was met with same explanation which is PET SCAN WILL NOT TELL YOU WHAT IS GOING ON IN THE BONES. I said I know that but it will show if it in the soft tissue,fell on deaf ears.we know its 10 percent in bones,no extra damage shows on MRI or exrays.. He has another BMB on the 7 of May blood taken for…[Read more]

Hi jean

Looks if your post,slipped down,and you had no reply.

I am sorry Mike has to start treatment after 5years. I take it he has come out of remission !?!!

Velcade did work for Slim,and managed to get to SCT,but he only got 6months before it came back. Asa drug Slim did not have many side effects,in some places they do it subcutaneous…[Read more]