Only 3.5in one go!!! That's great.

I know you tend to want to get this over and done with,but you are wise to have that holiday . Good luck Eve

Hi Mohammad

Sorry your Mum has got MM but a warm welcome to you both.

As for PN it is a side effect am afraid I suggest she talks to her Consultant they might reduce the drug dose that she is on and the sooner the better I think.

Tom Onwards and Upwards

Hi Billy
Well done on getting that news 😀 I know how good that feels (still remember it lol)
Good Luck with your Transplant its a bit uphill sometimes but well worth it 😎

Eve I never said my buds are back I just like the "Feeling" Lol, and trust me you can take my name anywhere it will stand you in good stead :Lol hope your both doing…[Read more]

Hi all

Frank went to hospital to the clinic. After 3 hour wait we saw consultant who was furious. I have never seem her so angry. She said she left instructions that Frank was not to come to clinic until Monday. She said had she have known that he was coming she would have ensured he would have been sent to day unit, bloods taken and she…[Read more]

Hi Peter

Very good news,you must be feeling on top of the world

Was interesting what you said about not likening alcohols Slim is the same and he loved his wine. He even tried a G&T yet other people enjoy drinks wonder why taste buds do not come back with some people.
I will not take Toms name in vain ,!!! Lol Eve

Dear Mega, Dai and Eve

Thanks for your replies. I have Re read other post and what is going on in my tummy seems to be the norm:-S. Dai Frank managed to get up the stairs – mind you it took him some time – and I pretended to be busy in another room. He wanted to do it on his own and didn't want me to see him struggle. He said last night he…[Read more]

Hi there, I'm new to this also but reading through the posts prior to signing up, I would say we are in good company. I get a bit emotional with some posts but overall it is uplifting and good to know you are not alone.

I don't know if you know your history but during WW2, young RAF pilots that were severely burnt went to a specialist pioneer…[Read more]

Hi Jean and also you Frank.

You so look forward to coming home,then it flops and becomes scary,no support .!!!! We all had it Jean,but your an old hand now,Frank will go in for blood checks,any problems, will be picked up only when they are completely happy with him,concerning bloods and platelets,it will become less visits for hospital. The…[Read more]

Hi

I cannot advice you,but I know someone who can,ring the Myeloma Nurses on here,there are also video s in the library part of genuine people who have treatments,when you have two disease s it complicates things.

I will say no one can guarantee what remission. Anyone can get,they can only hope for time,and if doctors valued patients…[Read more]

Hi Maureen

I am not surprised by your story,as Slim and a few others have gone through a similar path,I actually sent a letter to my original doctor asking for an explanation ,thinking he might just have the guts to admit,the mistakes he made,but it was a waste of time.I phoned for a referral ,you need them private or not,another doctor phoned…[Read more]

Long day for you two Dai and Janet 🙁 but it looks like it was worth the wait 😀 albeit am sure it can be done faster, it cant be good sat up in hospital waiting.
Keep well Dai and hope you stay on treatment till it sorts it all out.

Tom Onwards and Upwards

Hi everyone

Andy I think Velcade is around £ 750 per phial,but the makers of Velcade have some form of agreement that if it does not reduce the Myeloma. by 50 percent the health service do not pay for it plus it is a trial drug unobtainable,as not passed by NICE,,that's the way I read it any way,don,t quote me David. Lol

To give my local…[Read more]

Oh and as to cost – I read over the weekend that Revlamid is $425 a pill :-0 obviously that's in America.

Every day is a gift ( and expensive )
Andy

Hi David
First of all I only see one consultant and she has been my consultant since I was diagnosed. Obviously if I have an emergency whilst she is unavailable due to holidays or at another clinic I see another doctor but my consultant is the one that treats my myeloma. I have been referred on to Prof. Jackson at Newcastle due to my myeloma…[Read more]

Hi Suzanne

Sorry you had to join us 🙁 but a warm welcome you will find in here great bunch of folks 😎

You will find a few blogs on here with people going through or have gone through the SCT, I did not do a Blog wish I had as you soon forget (well I did) the SCT is an uphill struggle at times but its a "Doable" I done mine in December…[Read more]

Hi David

I see you are quoting me, At the time I ask Slims consultant about possible maintenance ,with Velcade I explained Slim had had CDT then Velcade then SCT and wanted to know if there was the possibility maintenance. As at the moment it is 10 percent in bones. I was just putting a possibility forward rather than possibil round of…[Read more]

I think now, its not so much seeing my family in a new light but taken them less for granted. Both my wife and I are probably more caring to each other, I think we became a little too complacent about our marriage because we were doing the normal marital thing including the odd argument. Now we both want the other to enjoy what we have together.…[Read more]

Hi there, I'm afraid I have just startedas well, albeit a few weeks sooner than you. I also have a young family, a daughter of 6 so I would assume your thought process will be same as mine, how to look after the children, what to tell the younger ones, the future for them etc.

As for the treatment, I am also on PAD and had my first chemo early…[Read more]

Thank you Andy and Sue

Andy at least we got SCT stage,will be your turn,a doña we hope..xxxxxx

Sue how are you doing,now the rush is over,I hope you are managing to sleep,give yourself time to recover.

I am off today for afternoon tea,( Mother's Day present from one of my daughters ) I have invited Jenny who has become a friend,her…[Read more]