Hi All
Just a fast one.
The Itch could be your hair starting to grow I had same and when haire rerew it stopped.

Have a great day work for me now 🙂

Tom Onwards and Upwards x

Dear Ann

Am sure its hard for you, and I am sorry you are finding it difficult, rather than being on your own can you not go and visit Family and or Friends, and get them to visit you, I know you might not be up to it but one lovely Lady (Min) said on here that its better to expand your world rather than allow it to close into you.
Am sending…[Read more]

Way to go Val 😀 well done you, am pleased to hear good news again 😎
All the best for your Move and don't lift too heavy a box 🙂

Love Tom Onwards and Upwards xxxx

Hi Eve,

Many thanks for the welcome to the site.

When I was searching for information on the MUK 5 and 6 trials, I found no specific mention of the inclusion criteria requiring participants to have taken Revlimind prior to these trials, but they did specify the maximum number of previous treatments in their inclusion critera, presumably…[Read more]

Val very good news. Well done long may it continue 😀
Love Jean x

Hi Jan

Welcome to the site,and I am sorry you are going out of remission.

I might be wrong on this but reading present information. To be eligible forMUK. 5 I think you have had to had Revidimide ,you do not say if you have been on MX1 trials???.
I thought the criteria was you have had to have had Revidimide ,before acceptance on these…[Read more]

Hi Vicki and Colin

Thanks for thinking of us. Things were going good – neutrofills went up to 1.8 so he came out of isolation. Next day dropped to .2 so back to isolation. Today he is feeling better even got a bit of appetite back. I brought him in melon an ice cream and he wolved it down. Antibiotics finished and so have all IV's. he reckons…[Read more]

Hi, This is my first post, but I have been looking at this site for the past year meaning to participate at some stage. The range of help and advice offered on the site is tremendous and much welcomed. At aged 53, I was diagnosed with kappa light chain myeloma in April 2010 and undertook 4 cycles of CDT followed by a SCT in August 2010.…[Read more]

Hi Joanna

I am sorry you have had to join us,you are so young with children if you want to join the under 50site you have to apply look on this thread I think Deb,s up,d the post last time.

If you do not mind joining the rest of us,it would help if you went on the Newcomers bit,just introduce yourself and tell people a little about…[Read more]

Hi Alco

You can not base having Myeloma purely on urine,other factors are taken into consideration.it is not worth going into unless you are diagnosed with myeloma,low white blood cells can open up many problems,so do not go scaring yourself thinking you have Myeloma it is uncurable.

Go back to your doctor or speak to a well qualified…[Read more]

Hi Dai

It is good news,I hope if the medication you are on does not work I hope you get this one 500 people only,as you said it has to show in urine,

I worry that as Slim did not respond to thalidomide how well will he do on Revidimide ,and if the same conditions apply,he will not qualify for the new trials.

Any one heard from…[Read more]

Hi Jackie

I am so sorry you are finding it difficult to cope at this time my heart goes out to you.

I am fortunate to have never been in this place that you find yourself in so I cant say "I know how it feels" as I cant.
I am doing good but that said Like Dai I talk about it not only to my wife but my Sons also that way their will be no…[Read more]

Hi Nerys

Your more than welcome, and as you say its good to hear about remission and long ones at that 😀

And just to add to the Good news I have been in remission since 2009 and drug free since 2012, and am selfish as I am asking for a longer remission 🙂

Good Luck to you Both

Love Tom Onwards and Upwards xx

Hi Maureen and Ian

That's good news as you say I bet it was the Cake that did it. well done and good luck stay strong.

Love to you Both

Tom Onwards and Upwards xx

Hi Dai and Jean

We are suppose to be getting all these new people to tell us about themselves plus post a picture!!!!!

Dai Slim has had CDT plus Velcade next should be Revidimide,!!!!!! We though we might get 2 years !!!,,the only way we new it had returned was I asked for BMB as it does not show in blood or urine!!!!!!!?. We do not know if…[Read more]

Hi Maureen

Take everything they offer you it will help in the long run,I look back at the first time and thin how an earth did I do it,things also had to be changed at home,a shower instead of a bath,wooden floors in stead of carpet,the list went on and on,and some how I managed it.

This time I will not have all those problems but I am…[Read more]

Hi Eve

I'm so sorry that Slim has had a short remission and has relapsed. My best wishes to Slim and hope they find a treatment that will help

Best wishes to you both
Love Jean x

Hi Leedslass

Sorry but I do not know you name,I see this is the first time on this site,how you ave managed without it,I do not know.
You need some form of help,but only you can decide,as good as family and friends are,they have no idea,what or how they can help unless you tell them.

This illness brings depression with it,not just for the…[Read more]

Hi Jacquie
Well done in getting it sorted, I wont tell you not to worry as you still will, I will just tell you, Take one day at a time and let it run its course its a doable.

Now go and put some weight on first.

Tom Onwards and upwards

Hi Babs

1 year it soon passes,enjoy your holidays ,after last year make this year count. I envy you going to Australia ,we always said we will go there and hire a motor home and do the figure of eight.

Best Wishers Eve