[Kazzam2Participant]

I was in the cell directly facing the kitchen. I think I was green cups, (chemo brain me!)

On the 6th June, I am on a clinic/consultant. at 11.25! But I am at the lower level.
My infusion is 23rd May. (day ward). The day ward staff are really nice, but is it me or does it sometimes seem a bit chaotic?
Take care
Karen

[Kazzam2Participant]

Hi Jean,

Thanks for a lovely welcome, I'm just about to put kettle on. Milk and sugar?:-D

Very nice to meet you, hope to share stories and rants in the years to come.

I have been on here all night, well a long time for me anyway>:-) .

See you soon
Regards
Karen

[Kazzam2Participant]

ps I was offered the maintenance drugs on my last visit by Dave, it was a bit out of the blue, and I declined as I want to give my body a rest as it has been battered.
Not sure if i have done the right thing though.
Regards
Karen

[Kazzam2Participant]

Hi TonyF,
I had my SCT on 11th Jan 2013, i was admitted on the 9th Jan> . I was discharched on the 28th Jan, we missed each other by a day. I know Drs Chapman and Barton, but my main consultant is Dr Garg, I seen her a lot when i went for my vertebroplasty to the Spire hospital (husbands cover through work), Dr Rennie did op, it went very well,and originally e said I would need 2, then said one would be okay. Pain at the moment not good and i think I am shrinking again. Had MRI last Saturday. My next clinic is 6th June. I have my Zometta infusion on 23rd of May (4 weekly).
The Macmillan nurses are all very good, especially Dave, who goes the extra mile (for me anyway).
Who knows we may bump into each other sometime.
Take care
Karen

[Kazzam2Participant]

Hi TonyF,
Thanks for the welcome. Nice to meet you.:-) (bit of a smiley monster)
I hope there may be times when I can somehow help or support.
Regards
Karen

[Kazzam2Participant]

Thanks Etta,

I can tell already that people are friendly.

I put my story on my profile but will copy to here.

Thanks again Etta, nice to meet you. Karen 🙂

I am a 51 year old married mother of 2 teenage girls. Diagnosed aged 50 in July 2012, with Multiple Myeloma. Changed all our lives forever. We live in Rutland, but our nearest hospital is Leicester Royal infirmary, almost 30 miles away. Treatment to date, CTD chemotherapy in Myeloma Xi trial from August 2012 – four courses. Radiotherapy 8 gy to spine from T5 to T12 with an exit dose to the sternum. Vertebroplasty to 3 vertabrae, further vertebroplasty (cementing) awaited. (2nd MRI 11/5/2013) Autologous stem cell transplant January 2013 (stem cells in store) Medication at present Zoledronic acid (zometta) every 4 weeks. (bone strengthner) Morphine, zomorph 40mg twice daily Adcal-D3 oramorph Paracetamol. My consultant prescribeAzithromycin(antibiotics for emergencies), i am allergic to penencilln (sp) I have a back brace that has never been properly fitted. I have a slight curve, the physio recomended that I spent some time each day on a gym ball, it really helps with posture. I have a perching stool in the kitchen, murder keeping my cats off it. A board for the bath, again somebody was to come round an fit it. 9 months(approx). I do not bath anyway as it is very uncomfatable, and I cannot lie down I have a blue badge (parking0, which is very useful, though I have not driven myself for sometime. Worse than all this is the fact my consultant signed me of work for another 6 months, because of pain, risk of infection (I am a school cook) and I am waiting another vertebroplasty. Although i have family, they are out at school/college/work, so I have a lot of time alone. Our nearest realatives are 3 hours away and the few friends I have are working of course. I have nice next door neighbours, but cannot impose daily. As well as my job I used to work on Saturdays in our local cancer research shop, i miss that too, although I chat every now and then to the manager, I must ask my consultant can I go back. Is there an infection risk though. My husband (and daughters) has/have been very supportive and strong, but I sometimes feel guilty, as it has not only changed my life but of course all of us. I think my husband over worries sometimes, that is not a critisism, he has been great, I do not know how I could cope without him. Thanks for listening, reading through some threads, you all seem a friendly bunch, not the best way to make friends, but I hope we can. Take care Karen
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