Hi Helen well just as I thought I've relapsed for the second time and have been penciled in for a clinical trial.
I'll put more details in a new post asap.

Take care.

Love and best wishes… Keith.

Hello Helen, I go away 16th June so another 9 days to go.
Yes it was a bit of a so and so but nothing I can do about it unfortunately.
I have a blood test today before the Zometa in the morning and then see the Consultant in the afternoon.
I'll be surprised if I haven't relapsed for the second time as everything would seem to point to the fact…[Read more]

Hi Liz sorry to hear of Kev's relapse.
I had a similar experience late 2010 when I relapsed after 2yrs 4,months.
I had been feeling unwell for a month prior and was in a lot of pain so knew something was amiss.
I was put onto Velcade/Dex after having a bmb which confirmed the relapse which put me into remission and my 2nd sct last August.
I…[Read more]

Hello Peggy…I had my 3rd BMB Tuesday and go for the result 7/06/11 unless I get a call before then like on the previous occasion (hope not) when the news was not what I wanted to hear.
Still we only get what we are given in this life and it's seldom what we want so take it on the chin and just get on with it.
Whatever happens I'm off on…[Read more]

Thank's for your replies everybody…To answer your point Dai no I'm not on any maintenance therapy.
The only treatment I get is Zometa once a month when I have my bloods checked at the same time.
The Consultant did say that having the BMB was a precaution just incase the MM had become active in the bone marrow which hopefully is not the…[Read more]

Hi Sarah/Henry have the same problem myself 9mths post 2nd sct.
I had a similar problem after my first transplant but it only lasted 5 weeks.
I think it's the damage the high dose Melphalan does to the cells in your skin and it is something we just have to put up with although there are creams that can help.
Try to keep your skin well hydrated…[Read more]

Hi Tina, I do sympathise with you on this one,I've just got over a bout of it which lasted nearly 3 weeks.
Peppermint is an excellent remedy as is drinking hot water.
I went out and bought some pro biotic tablets and take one per day which also seems to help.
I went to my local hospital and got checked over by a doctor as I was passing lots of…[Read more]

Hi Dai, I too have had pain, in my right shoulder and the left side of my neck, also some days I get a crunching sensation in my neck as if the bones are grinding together,and they most likely are doing just that.
I've also had a burning sensation type of pain in the middle of my back.
All of this seems to come and go but it is…[Read more]

Hi Jet, I must have missed a thread somewhere when I read you are having another SCT and an Allo at that.
I remember you having your first the same week as my 2nd in Aug 2011.
Didn't the first one work? and what rotten luck that you have it all again after such a short time.
Who decided on the Allo route? and is your donor a close relation or a…[Read more]

Hi Amelie,I was at the recent Info-Day in Newcastle when the question of a possible 3rd Transplant was asked.
Prof Jackson said that it would be most unlikely that the procedure would be carried out a third time and said that even 2nd transplants were quite rare.
The main criteria are age/fitness of patient, having enough stem cells in reserve…[Read more]

Hi Bridget,I'm pleased you got your laptop and you're back surfing the cyber highway.
I am looking for a new one myself but I'm not sure whether to switch from Windows to an Apple Book Pro.
I do alot of photography and Mac's have very fast Quad core i7 processors plus 2 graphics cards which allows me to edit and post pictures onto my Website…[Read more]

Hi Nicola,the name of the drug could be lenolidomide which I have been told will most likely be my next treatment although I hope not for a long time to come.
I have been fortunate that I've responded well to all the treatments I've had and it must be hard to take when a regime does'nt work as in your dad's case,given that there's not all that…[Read more]

Hello Nicola,I'm sorry to hear that the Velcade did'nt work for your dad.
However this is not at all unusual where this horrid disease is concerned.
You can never tell if a drug is going to work until it's tried when you're dealing with such an individual disease.
Velcade worked for me and I had my 2nd Transplant in Aug last year.
My PP's went…[Read more]

Hi Bridget,you most likely have got your laptop well before reading this post but if not I would say buying a reconditioned machine should be ok if it's from a reputable out-let and with some kind of warranty attached to it.
I would avoid the highstreet and go to a small shop that specialises in building computors as they will give you better…[Read more]

Hi Andy,yes it certainly was a great day.
The thing about the Info-Days is that although the subject(MM)is the same every meeting is a very different experience so it's well worth going to others.
As was said at the meeting treatments are changing all the time so there's always something new to debate and people to meet.
This was the fourth one…[Read more]

Hello Amelie,I had my 2nd SCT last August after 8,cycles of Velcade+Dex.
I managed 2yrs 4mths from my first SCT in May 2008.
I also found sucking the ice-cubes quite sickening,in fact I have avoided ice lollies ever since LOL.
I have not heard of anything you can keep inside your mouth to help it stay cold but there is a spray you can use…[Read more]