Hi Bridget,Sorry but I've just seen your post as I've not spent much time on the site lately still recovering from SCT.
Hope everything goes well with your RT and it gets rid of that horrible pain once and for all.
Let us know how things go.

Take care…Keith.

Hi Sylvia,I did the full 8 cycles and had my 2nd SCT last month.
I was discharged from hospital 15th Aug and now recovering at home.
I contacted E-Coli while in hospital and was quite ill losing alot of weight which I don't have much of to begin with LOL.
I'm just about starting to feel more like my old self but still need to be careful in case…[Read more]

Hi John,this is a problem I also have and have the bruises to prove it.
I had my second sct last month and was having blood tests every day while in hospital and my veins just about packed up altogether.
When I had my first transplant it was through a hickman line but this time the Melphalan was infused through a vein in my hand and some of it…[Read more]

Hi Jet,I've only just read your post and the excellent advice you've had.
I go in for my 2nd SCT on 2nd Aug same date as yourself.
It's true that everyone reacts different to the drugs and recovery times do vary.
I had my first one in May 2008 which lasted 2yrs 4mths before I relapsed last year and then had 8 cycles of Velcade which started Jan…[Read more]

Hi Min,I had exactly the same experience after my first SCT.
I was constantly feeling bloated as if I was full of air and it lasted nearly 2 weeks after the SCT.
I could'nt eat or drink a thing and had to be on a drip to prevent becoming dehydrated.
It was a terrible feeling which was caused by the Melphalan but it did pass at which point I…[Read more]

Best of luck with the sct Debs mine is on 2nd Aug.
I've been eating for England since Jan and put on a stone which is'nt too bad considering.
It's all because of the Dex although I've been off the meds for a month now so things are starting to settle down.
I know you might not feel like reading posts for a while but do get well soon Debs and I…[Read more]

Hi Sarah,sorry to hear Gordon's PP's are rising and therefore his 2nd sct has failed.
I hope that the new drugs do the trick and achieve a long remission.
I have not been feeling too good since I finished the last cycle of Velcade 2 weeks ago and I go for a 2nd sct on 2nd Aug.
It's been 3 years since my original diagnosis and I'm just sick of…[Read more]

Hi Roz I've just read your post about me and I'm really touched by it.
You are such a lovely person to ask after me in that way.
In future I will keep in touch as I don't want you fretting LOL.
THB I did'nt have alot to report and I was'nt feeling too good so did not log on for a while.
Thank's again Roz and don't forget to take care of…[Read more]

Thank's guys for your kind thoughts.
Yes Roz I'm still here alive and kicking.
I just want to get this latest episode over and get back to a drug free life once again.
To answer your point Dai I too was quite surprised to complete the full 8 cycles mainly because of the hand and foot spasms that kicked in at the halfway point and were addressed…[Read more]

Hi Min I've only just picked up on your post and sorry to hear how Peter is suffering at the moment.
One of the things I'm noticing is the way this horrible disease seems to wear us all down patients and carers alike.
I won't go into all the details of my own situation AGAIN as it's the same old trampled ground but the whole thing does get to me…[Read more]

Dear Susan,I've only just read of your sad loss and my heart goes out to you and your family.
The last time I saw Kevin was at the "Peer Group Network" meeting in London last year when as usual he was very upbeat and positive.
He was a great guy and I always enjoyed talking to both of you.

God Bless and remember we are all here for you at…[Read more]

I'm very sorry to hear of your sad loss Tina.
Words can never be enough in these sad times but the memories you have after 34yrs will give you comfort and help you get through it all I'm sure.

Best of luck for the future with many years of good health and happiness.

Keith.

I hope the Velcade has got you off to a positive start Dai?
I completed my 6th cycle of 8 today(Fri) and go to the Freeman hospital next Thurs to discuss a possible 2nd SCT.
Velcade has knocked the PP's from 14 when I relapsed down to 3.65 todate.
I've covered some of the more acute side effects in previous posts but all in all I think I've…[Read more]

David your post hit me real hard!!!
I know what you mean about getting things in order but please don't think about dropping anchor yet,there's plenty more left in your tank I'm sure:-) I myself get waves of feeling this way but the problem is there's still so much that I want to do in this life that I'm in no hurry to go to the next,that's…[Read more]

Hi Min,sorry about the delayed response but have been busy over the last 3,weeks.
I will be having sct at the Freeman and will find out more when I go on the 19th May.
It's a 86 mile round trip which is a bit of a bind but it has to be done.
Hope you are both doing well and I'll let you know what's happening after my visit to the hospital next…[Read more]

Hello Eve,Dehydration and fever-like symtoms is how I feel also.
Usually the day of treatment as well as the days in between although there are different degrees of how bad it can be.
I get very tired during each cycle with little respite before it all starts over again.
You should never fight against the fatigue as it only makes it…[Read more]