Hello Gaye,just read your post and hope everything goes well for you.
This question of pain and the way it is approached by different doctors beggars belief.

I have relapsed after 2yrs 8mths and have terrible pain in my ribs and left shoulder blade for the last 10,weeks.

My proteins are at 7 and the BMB showed the MM has become active…[Read more]

Hello everyone,It's going to be 8,cycles of Velcade+good old Dex.
I start it all this Friday 13.30 a whole new journey in my treatment.

At the end of it a second SCT if all goes well.

Doc said apart from the MM my kidney/liver function are all ok.
Even my blood calcium levels are also fine but the MM is active in the Bonemarrow and without…[Read more]

Hi Gill,I was going to start a new thread on Velcade but I might as well just tag on to yours.
I saw the Doc today and start Velcade/Dex on friday.
I had Dex with my first-line treatment(40mil on each of the 4 days in the cycle) and had no real problem with it apart from wanting to eat for England.

I am also starting on Zometa instead of the…[Read more]

Hi Roz,I really appreciate your kind words,taking the time to write your post after everything you've had to go through takes a very special person.

I have always read your posts with the hope that things would take a turn for the better with regard to Michael's Myeloma problems.

You both had a really tough time and deserved much better from…[Read more]

Hi Bridget, I had Radiotherapy to my Spine/neck and collarbone after first being diagnosed to repair fractures and a collapsed vertabrae.
It was'nt too bad,only problem for me was difficulty in swallowing and the skin became very red but all of this only lasted 3 days.

It was around 6-8 weeks before I felt the benefit of the treatment with the…[Read more]

Thank's girls your thoughts are much appreciated.
I'm getting ready for round 2 as I like to call it.
Treatment is due to start on Tues after Monday's consultation.
The Doctor said he wanted to discuss at least 2 treatment options with me before deciding which way to go.
I can't really complain as I've had over 2 years of mainly good health…[Read more]

Hi Dave…No can't be a bad hair week as I don't have any LOL.
I shave mine off anyway so the Chemo was no problem for me in that respect.
Yeah 2.8 is quite a good remission period but we always want more don't we?
I was really quite ill after the Melphalan and don't look forward to that scenario allover again but if the needs must…..
When…[Read more]

Hi Tom,to briefly answer your question yes the pain is constant and occurs all over the upper part of my body in partucular the neck and shoulders.
It's a perminent ache only interupted with excruciating spasms.
I get alot of rib,neck and shoulder pain in particular.
This is because of the fractures I suffered in these areas before my diagnosis…[Read more]

Hi David,in answer to your question about pain I've had different degrees of it since I was first diagnosed just over 3 years ago.
It usually comes and goes and is'nt too debilitating but this has gone on for around 10 weeks and is much more severe.
I was originally mis-diagnosed by my GP for 18,months and have had multiple fractures therefore…[Read more]

I'm so sorry to hear such sad news.
Words are never enough in times like these but we are all thinking of you Roz.

God Bless you.

Keith.

Hello Gaye, and yes I could'nt agree more with your sentiments.
Christmas is a family time and it gives us all the chance to reflect.
This Site does give alot of comfort to patients and carers alike and long may it continue to do so.

My only wish for 2011 is that a major breakthrough will be made in the fight against this awful disease.

So…[Read more]

Thank's Gaye&Bridget,thought I'd post this just before I go out to the party.
Yes you are right Bridget,in fact I was told I was a pepperpot shortly after being diagnosed and did'nt know quite how to take it LOL.

I was shown the original MRI which showed up as black patches over my upper torso and worrying for me at the time I can tell…[Read more]

Hi Tom, I've read that exposure to petro-chemicals,radio waves,mobile phone masts ect could all be factors in developing MM but it's all just speculation
and even if true the Government and or companies involved would never admit it to be the case.
Just imagine the compensation claims that would come from it.
Yes research should carry on to…[Read more]