Hi Andy,good to see you in fine fettle as usual LOL. For 2 guys who supposed to be ill we don't look too bad do we? Nice to see you also Steph. Starting to feel tired now and no steroids for the next 4,days
the comedown starts as of now. Patrick was in later and is starting a new treatment in order to get his marrow activated, all very…[Read more]

Hi David
I'm not sure your PP figure suggests a relapse before having a BMB first to confirm.
After my first SCT I achieved Zero PP's which stayed that way for nearly 2 years before going up to 5 and then 28 at which point I had a BMB which confirmed a relapse. Your own PP figure is not outlandish and could be a blip either way no Consultant…[Read more]

Hi Wendy
only just read your posting about relapse. I've relapsed 3 times as you no doubt already know. My treatment started
around 2 months from each relapse although the actual relapse date is difficult to determine. I developed pain in my ribcage and generally felt tired and unwell. I had a blood test and bone marrow biopsy which showed PP's…[Read more]

Hello Maurine,I found Velcade to be very receptive and so worked very well for me.I did get tired during the day and there was some constipation but that's par for the course with most if not all of these treatments.

I start with CDT Tuesday and hope it does the trick as I haven't many options left.

Hope the Velcade works for you…[Read more]

Hi Sarah Jane,now you don't want figures like mine but here they are for what it's worth.

WBC(2.5)
Hb(7.5)
Plts(14)
Neuts(1.0
PP's(55)

Of course I'm way down the road, 2 SCT's, and 3 relapses inside 12 months but I'm still battling on.
Once your first SCT fails that's when the fun really starts and if you do manage to get a second It's…[Read more]

Thank's Helen,Wendy and Eve for your support. I did mention Velcade to the Consultant and he did say it could be a possibility but no more than that. CDT and MPT were the more likely options. I got a phone call this morning asking me to come in on Thursday for a blood test just in case I need another transfusion which would be done on Friday. I'll…[Read more]

I had my 2nd cycle of Bendamustine Thurs/Fri just before New Year and since then I can't say I am firing on all cylinders. I am having blood tests twice weekly which is killing my Veins I've also had two blood transfusions and two platelet transfusions in the last two weeks. I feel very tired and have had very bad abdominal pain. My Hb and…[Read more]

Thank's Tom, You're a real trouper that's for sure.

Take care mate and have a great New Year, just make sure you watch the demon drink lol.

Keith.

Thank's to all for your kind replies.

I had my 2nd infusion of Bendamustine today and received the results of my latest Blood test taken yesterday.
Platelets up from 14-31 (no doubt the unit of Platelet concentrate helped) Neuts at 3.6 the highest for 5 months although Hb is still a bit sluggish 8.2 down to 7.7 having Blood Transfusion Monday…[Read more]

Hello Helen
always lovely to hear from you.
You say you have been sledgehammered into remission,in my case it feels more like submission lol.
When I went to the hospital there was 3 of our support group all sitting there with heavy colds.
Well it's that time of year but we always seem to get it much worse than the run of the mill…[Read more]

Thank's for that Eva and I'll be checking it out tomorrow when I go in for more blood tests.

Best Wishes Eva.

Keith.

Hi Michele

It's interesting what you say about the Spleen. During my last but one admission into hospital one of the Doctors after examining me asked if I had an enlarged Spleen and of course I said no as during all the tests I've had this has never been mentioned before but after what you say it's got me thinking. I did ask him why he said…[Read more]

Excellent stuff Andy everything helps in the fight.

Keith.

Thank's Tom,David,Dai,June,Sue,Andy,michele,Eve,Ann,don't think I've missed anyone? Go for a blood test tomorrow morning then that's it until Thursday when I start up the Bendamustine.
Merry Christmas everybody and hope you all have a good one.

Keith.

Thank's Eve, actually I did have a Blood and Platelet transfusion just before I was discharged from hospital last Tuesday. My Hb went up to 9.7 but then back down to 8.9. I never get into double figures and all since I was on Revlimid which hammered the PP's but at a cost. I should have restarted my treatment of Bendamustine last Monday but had to…[Read more]

David, if you think that you need to get the old coffin ready with figures like that try looking at mine.
Hb 8.9 WBC 2.9 Neuts 2.1 Plts18 with figures like those I should be hearing the soil hitting the lid already lol.
Ha-way man you are doing great and don't worry about the PP's as they fluctuate up and down anyway. And as for going from 3…[Read more]