Good luck with your up coming treatment love

Regards
Karen

Hi Jet
I live in Lincolnshire but will be having my SCT at Nottingham . I have already met Proff Rusell ,, did you see him ???
I am on CTD of the trial at the mo cycle 5

Good luck
Regards
Karen x

Hi Kay
I too am new to the site , I have been chatting on the other pages until someone mentioned the under 50s ..
I am 48 & was officially diagnosed August 1st this year just over 4 months ago . I was totally devastated. After being ill for quite some time , vomiting , weight loss , very very tired , headaches & a general unwell feeling ..…[Read more]

Hi Mavis
Thank you for welcoming me to the site forum , yes I am on trial X1 so will be having SCT if all goes to plan .. It will be carried out at Nottingham general hospital as our local hospital isn't equipped (LincolnCounty)

My main problems at the mo are aches and pains mainly in my ribs , & the tremors my whole body shakes , typing is…[Read more]

Hi Dai
Thanks for your reply . I much appreciate all advice & info given .
I too wish I wasn't a member of this forum but I am & I'm glad I found it !! . It helps to know other people know what I'm talking about even though I wish they didn't xx

Regards
Karen

Hi Peter
Really pleased all went well with the CTD , all my numbers appear to be going in the right direction , keep seeing this PP ???? I'm presuming its Paraprotien ?? I don't know anything about this !!!! ? That will be a question for my nurse .
When I was first diagnosed my Light Chains were 14,600 but at last check had reduced to 80.2 .…[Read more]

Dear Eva
Thank you so much for your long & informative reply it was very interesting to read …. You sound like your getting on with things now & that's great .

I will try set myself goals but its making myself do it that's the main problem !!!

Have a good weekend

Regards
Karen

Thank you
For your reply , yes mm does take over my thoughts . I do have a husband but he but he doesn't really understand what's going on , he's not a big reader so hasn't read the literature !!! Only what I explain to him ,
I'm a very private person so not got many close friends (I sound a right saddo) , I spend a lot of time on my own !! ,…[Read more]

Hi Alison
Thanks for kind words , yes I've spoken to the Dr & he gave me some medication
I feel shaky & light headed most of the time
Did you have the SCT ??? .

Ps …. Ya not rambling 🙂

Karen