[LexGeoffParticipant]

Hi Maureen, so many very sad stories – I really don’t think anyone appreciates what a horrible disease MM is. You’re at such an early stage that my heart goes out to you.

Thanks for the support group info – I may well look into it. Take care, and thank you so much for your email.

With best wishes, Alexis

[LexGeoffParticipant]

Dear Lyn

Dear Lyn, thank you so much for your thoughtful reply, and I am just so sorry your loss is so recent – I can’t believe you took the time to respond when you are going through those raw first few months.

You have hit the nail on the head on many fronts – I just feel it’s so difficult to talk to someone who hasn’t been through it (and I lost my best-friend of 40 years to cancer the year before I lost Geoff, so really good friends are few and far between).

I had to laugh at your techno bit – I, too, am still trying to read the “where the stop cock is, and which bits deal with which on the electrics”, hand-written by Geoff before he initially went into the Marsden for his stem-cell transplant! If you can work out the PM bit, I would be delighted to hear from you, but where to start?!

With best wishes, Alexis

[LexGeoffParticipant]

Hi Chrissie, I read your sad, sad email a few days ago, and wanted to think carefully before replying. I lost the love of my life, Geoff, just over two years ago to MM. He was only 52 – we'd been married for 30 years, were very much in love and we did everything together.

Geoff had been in total remission for 3 years before he went into total "melt down" in September 2009. I looked after him for five weeks in hospital, before his body finally gave up.

I, too, didn't know how I would survive without Geoff (or, more importantly, whether I wanted to survive) and was at an absolute loss as to how to manage. I just wanted to say to you that, two years on, after an enormous amount of loving care from friends & family, I have finally reached a point of acknowledgement about what happened to my lovely man, and have even found myself singing along to songs, something I thought I would never do!

I've taken the advice alluded to by others who have responded to you – take all the support you can get, take each day (or hour) as it comes, and – eventually – you might find peace. I also found counselling enormously helpful, guiding me through the awful experience itself, and then later on helping me to find my way through it.

I would be more than happy to hear from you, just if you need a listening ear or need to have a rant.

I can't say more – the experience is too huge for anyone to handle who's not been through it, but the offer is there.

You are in my thoughts. Alexis

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