That is such a lenghthy and useful response, thank you SO much for taking the time to write it. It has given us lots to think about, and ask about, and I feel bouyed to get on the case! It is also so good (well not 'good' but I am sure you get my drift) to hear of someone with similar experiences. So reassuring to know you are not…[Read more]

I was hoping some of you clever lot may have some thoughts on this – our consultant does not seem to be being that helpful, or perhaps I am being unfair.

My mum is currently being treated, and is now about 4.5 months in from diagnosis and on about the 5th cycle of RCD (she is on the myeloma XI trial). She has had some side effects…[Read more]

My first time of writing, dragged out of the woodwork by your mention of the trial! My mum is recently (Aug Bank Hol) diagnosed and was also invited to join the trial. We looked at it pretty much as you did – it can't be a bad thing to potentially have access to these drugs (though the randomisation can be annoying as you still don't…[Read more]